Review
Multidisciplinary Sciences
Rafael del-Pino-Casado, Emilia Priego-Cubero, Catalina Lopez-Martinez, Vasiliki Orgeta
Summary: There is a significant positive association between subjective caregiver burden and anxiety symptoms in informal caregivers. Addressing subjective caregiver burden may help prevent clinically significant anxiety in the growing number of family carers worldwide. Subgroup analyses did not show differences by study design, sampling, control of confounders, or care-recipient characteristics.
Article
Geriatrics & Gerontology
S. Brini, A. Hodkinson, A. Davies, S. Hirani, R. Gathercole, R. Howard, S. P. Newman
Summary: Our study, conducted on a large cohort of dementia caregivers, demonstrates that living with a care recipient with dementia is associated with greater burden and poorer psychological wellbeing compared to caregivers living elsewhere. Our findings highlight the importance of considering caregivers' living arrangements in strategies aimed at improving their burden and psychological wellbeing.
AGING & MENTAL HEALTH
(2022)
Article
Public, Environmental & Occupational Health
Marta Nemcikova, Zuzana Katreniakova, Iveta Nagyova
Summary: This study aimed to investigate the associations of caregiver burden in informal caregivers of persons living with dementia (PLwD) with perceived social support, positive caregiving experience, and applying therapeutic communication methods. The results showed that higher perceived social support, positive caregiving experience, and caregiving intensity were significantly associated with lower caregiver burden. The associations between caregiver burden and applying two therapeutic communication methods were not significant.
FRONTIERS IN PUBLIC HEALTH
(2023)
Article
Rehabilitation
Chung Lin Kew, Candice L. Osborne
Summary: The purpose of this study was to determine if commonly used caregiver burden assessments, such as Zarit Burden Interview (ZBI), Caregiver Reaction Assessment Scale (CRA), Caregiver Burden Inventory (CBI), and Caregiver Strain Index (CSI), provide a comprehensive understanding of the burden that informal caregivers face. The results suggest that these assessments may not be capturing many of the factors associated with caregiver burden, hindering the development and implementation of effective caregiver education and interventions. A mixed-methods approach to caregiver burden assessment may provide a more comprehensive understanding of the burden.
DISABILITY AND REHABILITATION
(2023)
Review
Health Care Sciences & Services
Choy Qing Cham, Norhayati Ibrahim, Ching Sin Siau, Clarisse Roswini Kalaman, Meng Chuan Ho, Amira Najiha Yahya, Uma Visvalingam, Samsilah Roslan, Fairuz Nazri Abd Rahman, Kai Wei Lee
Summary: This study systematically reviewed and meta-analyzed studies on caregiver burden among individuals with mental illness. The overall pooled prevalence of caregiver burden was found to be 31.67%, with higher rates observed among caregivers of patients receiving hospital treatment and using the Zarit Burden Interview. These findings emphasize the need for targeted interventions for caregivers of patients in hospital settings and with psychotic symptoms.
Editorial Material
Oncology
Rebecca L. Utz, Echo L. Warner
Summary: Research should focus on understanding the similarities and differences among diverse caregivers to develop supportive policies and programs.
Article
Geriatrics & Gerontology
Isuzu Nakamoto, Hiroshi Murayama, Mai Takase, Yoko Muto, Tami Saito, Takahiro Tabuchi
Summary: This study found that informal caregivers experienced worse mental health during the COVID-19 pandemic compared to non-caregivers, and increased caregiver burden was associated with severe psychological distress. The association between increased caregiver burden and distress was stronger among married caregivers, those undergoing disease treatment, and those caring for individuals with higher care needs.
ARCHIVES OF GERONTOLOGY AND GERIATRICS
(2022)
Article
Cardiac & Cardiovascular Systems
Nadia Hipolito, Sara Martins, Adriana Ruivo, Sofia Flora, Candida G. Silva, Alda Marques, Dina Brooks, Joana Cruz
Summary: This study assessed the construct validity and reliability of the Informal Caregiver Burden Assessment Questionnaire (QASCI) in informal caregivers of patients with COPD. The results showed that QASCI had good correlations with other related questionnaires, as well as good internal consistency and test-retest reliability. This suggests that QASCI may be a promising measure to assess burden levels associated with informal caregiving in COPD.
RESPIRATORY MEDICINE
(2022)
Article
Oncology
Morris Murithi Muriuki, Sherry Oluchina, Bernard Wambua Mbithi
Summary: Globally, family caregivers of cancer patients are facing increasing burden and complex caregiving roles. This study found that 25.9% had mild role strain, 44.3% had moderate role strain, and 29.8% had severe role strain among family caregivers of cancer patients.
Article
Geriatrics & Gerontology
Vittavat Termglinchan, Samira Daswani, Paricha Duangtaweesub, Taweevat Assavapokee, Arnold Milstein, Kevin Schulman
Summary: This study examines the challenges faced by family caregivers in Asian societies, particularly in Thailand. It identifies six caregiver personas and proposes multiple solutions to address their specific needs, with the aim of supporting family caregivers in coping with caregiving burden.
Article
Public, Environmental & Occupational Health
Leonoor Graler, Leonarda Bremmers, Pieter Bakx, Job van Exel, Marianne van Bochove
Summary: In the Netherlands, about one-third of the adult population provides unpaid care. This study found that the subjective burden of caregivers slightly increased during the COVID-19 pandemic, and certain groups of caregivers, such as women, those with low income, and those with childcare responsibilities, were more affected. Reducing objective burden may not necessarily lead to a reduction in subjective burden for all caregivers.
HEALTH & SOCIAL CARE IN THE COMMUNITY
(2022)
Article
Gerontology
Scott R. Beach, Richard Schulz, Heidi Donovan, Ann-Marie Rosland
Summary: The COVID-19 pandemic has exacerbated challenges faced by family caregivers, resulting in increased physical, psychosocial, and financial burdens. Research findings suggest that female, younger, lower income caregivers providing care for cognitive/behavioral/emotional issues are particularly at risk for adverse outcomes.
Article
Geriatrics & Gerontology
Yangyujin Liu, Haoxue Li, Bei Wu, Xiaoting Liu, Honglin Chen, Hai-Yu Jin, Chenkai Wu
Summary: The type of primary caregiver for disabled older adults in China may affect their mortality, especially based on marital status and gender. Furthermore, urban and rural older adults may experience different impacts based on the type of primary caregiver.
Article
Gerontology
Patrick Pui Kin Kor, Justina Y. W. Liu, Wai Tong Chien
Summary: This study investigated the effects of a modified MBCT on family caregivers of people with dementia. The results showed that the intervention group had significant improvements in caregiving stress, depression, anxiety, and BPSD-related distress, with caregivers' level of mindfulness significantly correlating with the improvement of various psychological outcomes.
Article
Oncology
Anny T. H. R. Fenton, Nancy L. Keating, Katherine A. Ornstein, Erin E. Kent, Kristin Litzelman, Julia H. Rowland, Alexi A. Wright
Summary: Adult-child caregivers experience higher burden than spousal caregivers, despite spending less time caregiving, due to employment, caregiver-patient gender concordance, and communication quality. Female caregivers experience the most burden. Improving caregiver-patient communication can help reduce burden for both adult-child and spousal caregivers.
Article
Public, Environmental & Occupational Health
Chalotte H. Poulsen, Lene F. Eplov, Carsten Hjorthoj, Lene H. Hastrup, Marie Eliasen, Thomas M. Dantoft, Andreas Schroder, Torben Jorgensen
SCANDINAVIAN JOURNAL OF PUBLIC HEALTH
(2019)
Article
Psychiatry
Lene H. Hastrup, Merete Nordentoft, Dorte Gyrd-Hansen
EARLY INTERVENTION IN PSYCHIATRY
(2019)
Letter
Psychiatry
Julie Nordgaard, Marlene Buch Pedersen, Lene Halling Hastrup, Ulrik Helt Haahr, Erik Simonsen
SCHIZOPHRENIA RESEARCH
(2019)
Article
Medicine, General & Internal
Aake Packness, Anders Halling, Erik Simonsen, Frans Boch Waldorff, Lene Halling Hastrup
Article
Psychiatry
Lene Halling Hastrup, Erik Simonsen, Rikke Ibsen, Jacob Kjellberg, Poul Jennum
SCHIZOPHRENIA BULLETIN
(2020)
Article
Psychiatry
Julie Nordgaard, Marlene Buch-Pedersen, Lene Halling Hastrup, Ulrik Helt Haahr, Erik Simonsen
Article
Clinical Neurology
Poul Jennum, Lene Halling Hastrup, Rikke Ibsen, Jakob Kjellberg, Erik Simonsen
EUROPEAN NEUROPSYCHOPHARMACOLOGY
(2020)
Article
Psychiatry
Aake Packness, Sonja Wehberg, Lene Halling Hastrup, Erik Simonsen, Jens Sondergaard, Frans Boch Waldorff
Summary: The study aimed to investigate inequalities in access to care among people with possible depression. It found that individuals in higher socioeconomic positions were more proactive in seeking mental health care and had faster access to psychologists, especially when measured by education level.
SOCIAL PSYCHIATRY AND PSYCHIATRIC EPIDEMIOLOGY
(2021)
Article
Psychology, Developmental
Lene Halling Hastrup, Poul Jennum, Rikke Ibsen, Jakob Kjellberg, Erik Simonsen
Summary: The welfare consequences of early onset of Borderline Personality Disorder (BPD) are limited. A nationwide study in Denmark found that patients with early-onset BPD had lower educational and employment outcomes compared to matched controls, as well as higher healthcare costs. Even after controlling for parents' socioeconomic status, the patients still had poorer outcomes than the control group. This highlights the need for initiatives to support these patients in completing their education and for future prevention and early intervention programs to target patients with early-onset BPD and their families.
EUROPEAN CHILD & ADOLESCENT PSYCHIATRY
(2022)
Article
Psychiatry
Lene Halling Hastrup, Poul Jennum, Rikke Ibsen, Jakob Kjellberg, Erik Simonsen
Summary: This study investigated the societal costs of patients with schizotypal disorder before and after initial diagnosis, finding that the total costs for patients were significantly higher than matched controls, with healthcare and lost productivity costs being the major contributors. Spouses of patients with schizotypal disorder had significantly higher costs compared to spouses of controls, with a large portion of these costs related to lost productivity.
ACTA PSYCHIATRICA SCANDINAVICA
(2021)
Article
Psychiatry
Susanne Mahmood Dyvesether, Lene Halling Hastrup, Keith Hawton, Merete Nordentoft, Annette Erlangsen
Summary: This study estimated national hospital costs associated with self-harm treatment, finding that high-risk self-harm methods, age above 75, and admission to intensive care were predictors of increased somatic inpatient costs. A small group of patients accounted for a considerable share of total hospital costs, emphasizing the need to consider these costs in prevention and treatment initiatives for self-harm.
ACTA PSYCHIATRICA SCANDINAVICA
(2022)
Article
Psychiatry
Louise Schubert Paaske, Liza Sopina, Kim Rose Olsen, Christoffer Torgaard Thomsen, Michael Eriksen Benros, Merete Nordentoft, Lene Halling Hastrup
Summary: This study assessed the impact of patient-controlled admissions (PCA) to psychiatric hospital wards on total health care costs, and found that implementing PCA increased total health care costs in the short term, particularly psychiatric costs. Further research on the long-term and broader perspective impact on health care costs is needed.
JOURNAL OF PSYCHIATRIC RESEARCH
(2021)
Article
Psychiatry
Line Lindhardt, Morten Lindhardt, Ulrik Helt Haahr, Lene Halling Hastrup, Erik Simonsen, Julie Nordgaard
Summary: The study aimed to examine the clinical diagnostic and socioeconomic pathways of non-cases and cases accessing an early detection of psychosis service. Results showed that non-cases were referred to other mental health services for evaluation and a percentage of them were subsequently diagnosed with a non-affective psychotic disorder during follow-up.
FRONTIERS IN PSYCHIATRY
(2021)
Meeting Abstract
Psychiatry
Line Lindhardt, Morten Lindhardt, Ulrik Haahr, Lene Halling Hastrup, Erik Simonsen, Julie Nordgaard
SCHIZOPHRENIA BULLETIN
(2020)
Article
Psychiatry
Lene Halling Hastrup, Mickey T. Kongerslev, Erik Simonsen
JOURNAL OF PERSONALITY DISORDERS
(2019)