Article
Nutrition & Dietetics
Claudia Chaves, Antonio Raposo, Renata Puppin Zandonadi, Eduardo Yoshio Nakano, Fernando Ramos, Edite Teixeira-Lemos
Summary: The aim of this study was to evaluate the quality of life (QoL) perception of Portuguese celiac patients. A cross-sectional study was conducted using an online self-administered celiac disease quality of life questionnaire (CDQ). The results showed that the Portuguese CDQ was reliable and responsive in assessing the QoL of Portuguese celiac patients. Factors such as age at diagnosis, educational level, compliance with a gluten-free diet, and use of antidepressants had an impact on different domains of QoL. This data is essential for developing strategies to improve the physical, emotional, and social well-being of celiac patients, and for future comparative research among celiac populations from different countries.
Article
Dentistry, Oral Surgery & Medicine
Mina Pakkhesal, Elham Riyahi, AliAkbar Naghavi Alhosseini, Parisa Amdjadi, Nasser Behnampour
Summary: This study evaluated the impact of oral and dental health conditions on the oral health-related quality of life in preschool children and their parents. The results showed a significant relationship between the dmft index and the oral health-related quality of life score, indicating the importance of preventive policies for promoting oral health in young children.
Article
Nutrition & Dietetics
Raphael Enaud, Candice Tetard, Raphael Dupuis, David Laharie, Thierry Lamireau, Frank Zerbib, Pauline Riviere, Sarah Shili-Mismoudi, Florian Poullenot
Summary: This study investigated the factors associated with better quality of life in a large cohort of CD patients, finding that long-term adherence to a gluten-free diet and regular follow-up visits were key factors for improved quality of life.
Article
Nutrition & Dietetics
Ana Luisa Falcomer, Priscila Farage, Claudia B. Pratesi, Riccardo Pratesi, Lenora Gandolfi, Eduardo Yoshio Nakano, Antonio Raposo, Renata Puppin Zandonadi
Summary: The study revealed that during the COVID-19 pandemic, the quality of life (QoL) of Brazilian individuals with celiac disease (CD) was more affected by gastrointestinal aspects, but overall the pandemic did not have a negative impact on their QoL. Individuals not following a gluten-free diet and those using antidepressants experienced a larger burden and diminished QoL. Further research is needed to understand how the duration of the pandemic will affect celiac individuals and compare outcomes to periods before and after COVID-19.
Article
Gastroenterology & Hepatology
Fabiana Zingone, Erica Secchettin, Ilaria Marsilio, Flavio Valiante, Valerio Zorzetto, Giovanni Cataudella, Anna D'Odorico, Cristina Canova
Summary: The study aimed to describe the profiles of adult patients with newly diagnosed celiac disease (CeD) and their association with quality of life and psychological symptoms. Results showed that symptomatic presentation, diagnostic delay, and gender may affect quality of life and psychological disorders in CeD patients.
DIGESTIVE AND LIVER DISEASE
(2021)
Article
Health Care Sciences & Services
Cara Dochat, Niloofar Afari, Danielle Arigo
Summary: Through analyzing data from 453 adults with self-reported Celiac disease, the study found that the English CD-QOL has good internal consistency reliability, convergent validity, and known groups validity. Compared to generic instruments, the CD-QOL appears to better capture specific cognitive and affective aspects of living with Celiac disease, making it a valuable tool for measuring disease-specific quality of life.
QUALITY OF LIFE RESEARCH
(2023)
Article
Medicine, General & Internal
Grazyna Dykowska, Ewa Smigrocka, Urszula Borawska-Kowalczyk, Dorota Sands, Zofia Sienkiewicz, Anna Lenczuk-Gruba, Damian Gorczyca, Mariola Glowacka
Summary: The study aimed to assess parental perspectives on the health, safety, and quality of life in children and adolescents with cystic fibrosis (CF). The results showed that CF was perceived as a chronic disease, but the perception varied based on parental residence and professional status. The well-being of CF patients was influenced by their parents' employment, education level, and age.
JOURNAL OF CLINICAL MEDICINE
(2023)
Article
Nutrition & Dietetics
Anne R. Lee, Benjamin Lebwohl, Jessica Lebovits, Randi L. Wolf, Edward J. Ciaccio, Peter H. R. Green
Summary: The gluten-free diet (GFD) required for celiac disease (CeD) can lead to higher levels of social anxiety, disordered eating, and lower quality of life. It was found that individuals on a GFD for a short duration had significantly worse social anxiety and eating attitudes, while younger single females had higher social anxiety levels. An intervention is needed to improve quality of life and promote healthy eating behaviors while reducing anxiety for some adults with CeD.
Article
Gastroenterology & Hepatology
Jessica Lebovits, Anne R. Lee, Edward J. Ciaccio, Randi L. Wolf, Rebecca H. Davies, Chloe Cerino, Benjamin Lebwohl, Peter H. R. Green
Summary: This study investigated dating-related behaviors in adults with celiac disease (CD). The results showed that CD had a major impact on participants' dating life, leading to hesitation towards dating and kissing, decreased quality of life, increased social anxiety, and less adaptive eating attitudes and behaviors. This highlights the importance of CD and adhering to a gluten-free diet in the context of dating and intimacy.
DIGESTIVE DISEASES AND SCIENCES
(2022)
Article
Gastroenterology & Hepatology
Cemal Kocak, Semih Sandal, Meltem Col, Aydan Kansu Tanca, Zarife Kuloglu, Ceyda Tuna Kirsaclioglu
Summary: This study aimed to provide a Turkish adaptation of the Celiac-Specific Pediatric Quality of Life Scale and verify its reliability and validity in children with celiac disease in Turkey. The results showed that the scale demonstrated good internal consistency and structural validity in the Turkish population.
TURKISH JOURNAL OF GASTROENTEROLOGY
(2022)
Article
Medicine, General & Internal
Berit Maere Skjellerudsveen, Roald Omdal, Anne Kristine Hetta, Jan Terje Kvaloy, Lars Aabakken, Inger Marie Skoie, Tore Grimstad
Summary: This study investigated fatigue prevalence, severity, and associated factors in patients with celiac disease at diagnosis and after one year of a gluten-free diet. The findings showed that fatigue was reduced after the diet, but remained higher than in healthy subjects.
FRONTIERS IN MEDICINE
(2023)
Article
Gastroenterology & Hepatology
Laura Airaksinen, Lauri Myllymaki, Katri Kaukinen, Paivi Saavalainen, Heini Huhtala, Katri Lindfors, Kalle Kurppa
Summary: There are differences in diagnostic reasons, clinical presentations, symptoms, and quality of life between patients with familial and sporadic celiac disease. Familial cases tend to have milder symptoms and better quality of life. However, adherence to a gluten-free diet and gastrointestinal symptom scores are similar between the two groups.
DIGESTIVE DISEASES AND SCIENCES
(2021)
Article
Pediatrics
Gizem Ozcan, Fazilcan Zirek, Merve Nur Tekin, Secahattin Bayav, Batuhan Bakirarar, Berker Duman, Nazan Cobanoglu
Summary: Appropriate social support is crucial for improving the quality of life scores of parents of children with home mechanical ventilation.
PEDIATRIC PULMONOLOGY
(2023)
Article
Genetics & Heredity
Petra J. Mauritz, Marieke Bolling, Jose C. Duipmans, Mariet Hagedoorn
Summary: This study found that children with EB and their parents had lower quality of life compared to healthy individuals. Children who accepted the disease or distanced themselves from it showed better emotional and social functioning, while parents who used avoidance coping strategies had higher levels of positive emotions. Further research is needed to confirm these findings.
ORPHANET JOURNAL OF RARE DISEASES
(2021)
Article
Health Care Sciences & Services
Noor Shuhada Salleh, Li Yoong Tang, Subhashini Jayanath, Khatijah Lim Abdullah, Video Abstract
Summary: This study is the first Southeast Asian study on parent-perceived affiliate stigma, resilience, and QoL in the context of ASD. Four themes were identified, providing information for healthcare personnel and policymakers to improve outcomes for both parents and children.
JOURNAL OF MULTIDISCIPLINARY HEALTHCARE
(2022)