Article
Medicine, General & Internal
Jessica G. Shantha, Dominick Canady, Caleb Hartley, Amy Cassedy, Chris Miller, Sheila T. Angeles-Han, Lloyd C. M. Harrison-Williams, Matthew J. Vandy, Natalie Weil, Gilberte Bastien, Steven Yeh
Summary: This cross-sectional study investigated the prevalence of eye disease, health-related quality-of-life, vision-related quality-of-life, and the burden of mental illness among pediatric Ebola virus disease (EVD) survivors in Sierra Leone. The study found a higher prevalence of uveitis in EVD survivor eyes and individuals diagnosed with an ocular complication had poorer vision-related quality-of-life.
Article
Multidisciplinary Sciences
Grace Yao, Jin-Shei Lai, Sofia F. Garcia, Susan Yount, David Cella
Summary: This study used the PROMIS Psychosocial Illness Impact banks to explore the psychosocial impacts on cancer survivors. The results showed that survivors reported stronger positive impacts than negative impacts, and age, gender, education, and family income influenced the psychosocial impacts reported by survivors.
SCIENTIFIC REPORTS
(2023)
Article
Health Care Sciences & Services
Elizabeth J. Adams, David Tallman, Marcy L. Haynam, Larissa Nekhlyudov, Maryam B. Lustberg
Summary: This study presents a unique methodology to analyze the psychosocial experiences of survivors of gynecological cancer using large amounts of data from internet-based platforms. The study found that survivors frequently discussed the role of friends and family in care, fatigue, the effect of cancer on interpersonal relationships, and health insurance status. The findings contribute valuable insights into the experiences of patients and can be applied to other patient populations.
JOURNAL OF MEDICAL INTERNET RESEARCH
(2022)
Article
Clinical Neurology
Lisa Victoria Burrell, Lars Mehlum, Ping Qin
Summary: This study found a significantly higher co-occurrence of psychiatric disorders and high school non-completion in individuals who lost a parent to external causes of death during childhood and adolescence, suggesting that targeted postvention measures should be implemented for this relatively small group suffering from extensive sequelae.
JOURNAL OF AFFECTIVE DISORDERS
(2021)
Review
Andrology
Yasushi Yumura, Teppei Takeshima, Mitsuru Komeya, Jurii Karibe, Shinnosuke Kuroda, Tomoki Saito
Summary: With advances in cancer treatment, male infertility has become a significant concern for young cancer survivors, with 15% to 30% experiencing loss of fertility potential. The impairment of spermatogenesis caused by cytotoxic therapy can be temporary or permanent, depending on the drugs used and the radiation dose. Fertility preservation (FP) programs, including cryopreservation of semen or testicular biopsy, are being promoted to prevent spermatogenesis failure. Collaboration between reproductive medicine specialists and oncologists is crucial for the development of FP.
WORLD JOURNAL OF MENS HEALTH
(2023)
Article
Oncology
Heleen Maurice-Stam, Loes M. E. van Erp, Anne Maas, Hedy A. van Oers, Leontien C. M. Kremer, Eline Van Dulmen-den Broeder, Wim J. E. Tissing, Jacqueline J. Loonen, Helena J. H. van der Pal, Laura R. Beek, Andrica C. H. de Vries, Marry M. Van den Heuvel-Eibrink, Cecile M. Ronckers, Dorine Bresters, Marloes Louwerens, Margriet Van der Heiden-van der Loo, Gea A. Huizinga, Martha A. Grootenhuis
Summary: This study aimed to compare the psychosocial development of young adult survivors of childhood cancer with a norm group of young adults from the general population. The results showed that the overall psychosocial development of the young adult survivors of childhood cancer was as favorable as the norm group, but survivors of central nervous system cancer were at risk of an unfavorable psychosocial development in all domains.
SUPPORTIVE CARE IN CANCER
(2022)
Article
Psychology, Clinical
Allison J. Applebaum, Allison Marziliano, Elizabeth Schofield, William Breitbart, Barry Rosenfeld
Summary: Research findings suggest that there is a high degree of overlap between posttraumatic growth and benefit finding in patients with advanced cancer, making the concurrent administration of both measures unnecessary. Additionally, analysis indicates that combining items from both scales to create abbreviated versions with 7, 11, or 16 items provides a good balance of content and validity, while reducing the burden on patients.
PSYCHOLOGICAL TRAUMA-THEORY RESEARCH PRACTICE AND POLICY
(2021)
Article
Health Care Sciences & Services
Estefany Saez-Clarke, Amy K. Otto, Sarah Prinsloo, Akina Natori, Richard W. Wagner, Telma I. Gomez, Jewel M. Ochoa, Shelley S. Tworoger, Cornelia M. Ulrich, Cassandra A. Hathaway, Anita R. Peoples, Michael H. Antoni, Julienne E. Bower, Lorenzo Cohen, Frank J. Penedo
Summary: This study describes the development of a comprehensive self-report measure (COVID-19 Practical and Psychosocial Experiences questionnaire [COVID-PPE]) to assess the impact of COVID-19 on cancer survivors in the United States. The questionnaire consists of two sets of subscales, measuring risk factors and protective factors. The internal consistency of the measure is generally good, although some subscales need improvement.
QUALITY OF LIFE RESEARCH
(2023)
Article
Obstetrics & Gynecology
Jayeon Kim, Brian W. Whitcomb, Brian Kwan, David Zava, Patrick M. Sluss, Andrew Dietz, Ksenya Shliakhtsitsava, Sally A. D. Romero, Loki Natarajan, H. Irene Su
Summary: There was no association found between psychosocial stress and ovarian function in adolescent and young adult cancer survivors.
HUMAN REPRODUCTION
(2021)
Article
Psychiatry
Sidi Hatta, Luke Sy-Cherng Woon, Nik Mohd Nor Nik Sumayyah, Shafiee Mohamad Nasir
Summary: This study revealed that sexual dysfunction and low education levels may affect marital satisfaction among gynecologic cancer survivors. Targeted efforts focusing on sex education for patients could help improve marital satisfaction in this population.
FRONTIERS IN PSYCHIATRY
(2021)
Review
Oncology
Louise Mullen, Christina Signorelli, Larissa Nekhlyudov, Paul B. Jacobsen, Isaiah Gitonga, Tania Estape, Beverly Lim-Hoeg, Anne Miles, Cristina Sade, Carolyn Mazariego, Csaba L. Degi, Fuchsia Howard, Sharon Manne, Luzia Travado, Michael Jefford
Summary: This study found that most National Cancer Control Plans did not mention psycho-oncology, and only one-quarter of the plans had clear objectives specifically in the post-treatment survivorship phase.
Article
Oncology
Lucy Finkelstein-Fox, Autumn W. Rasmussen, Daniel L. Hall, Giselle K. Perez, Amy H. Comander, Jeffrey Peppercorn, Reid Anctil, Cathy Wang, Elyse R. Park
Summary: The study found that cancer survivors participating in the SMART-3RP program showed increased resiliency, which was associated with improvements in mindfulness, positive affect, and the ability to assertively seek social support. Enhancing mindfulness and positive affect were identified as critical components for enhancing resiliency.
SUPPORTIVE CARE IN CANCER
(2022)
Article
Multidisciplinary Sciences
Lukas Mayer-Suess, Moritz Geiger, Benjamin Dejakum, Christian Boehme, Lena M. Domig, Silvia Komarek, Thomas Toell, Stefan Kiechl, Michael Knoflach
Summary: Short- to mid-term functional outcome in spontaneous cervical artery dissection is favorable, but the concomitant psychosocial impact is underreported, especially with regards to sex differences. Women are less likely to return to work and have a higher divorce rate compared to men.
SCIENTIFIC REPORTS
(2022)
Article
Oncology
Xu Zhang, Di Sun, Nan Qin, Meishuo Liu, Nan Jiang, Xiaohan Li
Summary: This study identified 16 factors correlated with fear of cancer recurrence, 9 of which were positively correlated and 7 were negatively correlated. These factors include anxiety, depression, and social support, providing direction for interventions for FCR in cancer survivors.
Review
Oncology
R. King, L. Stafford, P. Butow, S. Giunta, R. Laidsaar-Powell
Summary: This meta-review examines the qualitative evidence-base on breast cancer survivorship experiences and identifies the main themes and areas for further investigation.
JOURNAL OF CANCER SURVIVORSHIP
(2023)
Article
Oncology
Derek Falk, Catherine Cubbin, John M. Salsman, Karen M. Winkfield, Kristie L. Foley, Lailea Noel, Barbara Jones
Summary: Costs and barriers pose significant challenges for young women in rural and border areas of Texas in accessing screening and diagnostic services for cervical and breast cancer. Implementing patient navigation programs to address financial barriers and coordinate services may improve detection rates and reduce mortality in this population.
JOURNAL OF ADOLESCENT AND YOUNG ADULT ONCOLOGY
(2023)
Article
Health Care Sciences & Services
Karly M. Murphy, Edith Chen, Edward H. Ip, Abby R. Rosenberg, Mallory A. Snyder, John M. Salsman
Summary: The present study examined the psychometric properties of the Shift and Persist Questionnaire (SPQ) in adolescent and young adult cancer patients and survivors, and provided guidelines for interpretation. The results showed that the SPQ had good structural validity, internal consistency, and construct validity, and recommended minimal important differences (MIDs) to enhance its interpretability.
QUALITY OF LIFE RESEARCH
(2023)
Editorial Material
Oncology
Michael E. Roth, Susan K. Parsons, Patricia A. Ganz, Lynne Wagner, Pamela S. Hinds, Sarah Alexander, Kristin Bingen, Sharon L. Bober, Julienne Brackett, David Cella, N. Lynn Henry, Daniel J. Indelicato, Rebecca H. Johnson, Tamara P. Miller, Shoshana M. Rosenberg, Kathryn H. Schmitz, Gita Thanarajasingam, Bryce B. Reeve, John M. Salsman
Summary: Disparities in care, treatment-related toxicity, and health-related quality of life for adolescents and young adults with cancer are often disregarded due to limited collection of patient-reported outcomes in cancer clinical trials. Standardizing the assessment of HRQoL and treatment toxicity in AYA CCTs is crucial for improving patient outcomes. The National Cancer Institute's Clinical Trials Network AYA PRO Task Force has identified key considerations and selected appropriate measures to address this issue.
JNCI-JOURNAL OF THE NATIONAL CANCER INSTITUTE
(2023)
Article
Public, Environmental & Occupational Health
Thomas V. Merluzzi, Natalia Salamanca-Balen, Errol J. Philip, John M. Salsman
Summary: This study examined the relationship between relinquishing control to God, coping, and quality of life in cancer patients. It found that this relationship is mediated by a sense of peace and coherence with a spiritually-based meaning system. The study suggests that interventions based on these mediating constructs can enhance the quality of life in cancer patients.
SOCIAL SCIENCE & MEDICINE
(2023)
Article
Health Care Sciences & Services
Stephanie J. Sohl, Pamela W. Duncan, Elyse Thakur, Nicole Puccinelli-Ortega, John M. Salsman, Greg Russell, Boris C. Pasche, Stacy Wentworth, David P. Miller Jr, Lynne Wagner, Umit Topaloglu
Summary: We developed an electronic tool for colorectal cancer follow-up care planning by incorporating inputs from health care professionals and patients. The study consisted of three phases: design elements, generation of care plans, and optimization of usability. The results showed that the tool has the potential to simplify the implementation of personalized care planning and provide resources to support self-management.
JMIR FORMATIVE RESEARCH
(2023)
Review
Oncology
Kelsey L. Corrigan, Bryce B. Reeve, John M. Salsman, Elizabeth J. Siembida, Lauren M. Andring, Yimin Geng, Ramez Kouzy, J. Andrew Livingston, Susan K. Peterson, Andrew J. Bishop, Grace L. Smith, Jillian R. Gunther, Susan K. Parsons, Michael Roth
Summary: This study reviewed the literature on health-related quality of life (HRQOL) in adolescents and young adults with cancer who received radiation therapy (RT). The findings suggest that there is limited data on HRQOL in this population, and further research is needed to better understand their unique needs.
SUPPORTIVE CARE IN CANCER
(2023)
Article
Oncology
Amy M. Berkman, Eunju Choi, John M. Salsman, Susan K. Peterson, Christabel K. Cheung, Clark R. Andersen, Qian Lu, J. A. Livingston, Michelle A. T. Hildebrandt, Susan K. Parsons, Michael E. Roth
Summary: There is a growing population of survivors of adolescent and young adult (AYA) cancers (age 15-39 years at diagnosis). Studies have identified racial and ethnic disparities in long-term outcomes for AYA cancer survivors. To understand the impact of a cancer diagnosis on pre-existent health disparities, comparisons should be made to individuals of the same race or ethnicity without cancer history.
JOURNAL OF CANCER SURVIVORSHIP
(2023)
Article
Oncology
Kelsey L. Corrigan, Bryce B. Reeve, John M. Salsman, Elizabeth J. Siembida, Grace L. Smith, Maria C. Swartz, Kamaria L. Lee, Faraz Afridi, Lauren M. Andring, Andrew J. Bishop, Jillian R. Gunther, J. Andrew Livingston, Susan K. Peterson, Michael Roth
Summary: Radiation therapy (RT) may negatively affect the health-related quality of life (HRQOL) of adolescents and young adults (AYAs) with cancer. The impact of RT on HRQOL varies depending on the cancer stage and developmental stage.
Article
Oncology
Kelsey L. Corrigan, Bryce B. Reeve, John M. Salsman, Elizabeth J. Siembida, Grace L. Smith, Maria C. Swartz, Kamaria L. L. Lee, Faraz Afridi, Lauren M. Andring, Andrew J. Bishop, Jillian R. Gunther, J. Andrew Livingston, Susan K. Peterson, Susan K. Parsons, Michael Roth
Summary: This study investigated the toxicities caused by radiation therapy in adolescents and young adults with cancer and found that both acute and late toxicities have a negative impact on health-related quality of life. The results suggest that early interventions can improve patients' quality of life.
JCO ONCOLOGY PRACTICE
(2023)
Article
Psychology, Clinical
John M. Salsman, Laurie E. McLouth, Janet A. Tooze, Denisha Little-Greene, Michael Cohn, Mia Sorkin Kehoe, Judith T. Moskowitz
Summary: This study developed an eHealth intervention called EMPOWER for young adult cancer survivors, aiming to reduce distress and enhance well-being. The results showed positive effects of the intervention on mental health, positive affect, life satisfaction, and general self-efficacy, as well as a decrease in anger. Thus, self-guided eHealth interventions hold promise for meeting the needs of young adult cancer survivors.
INTERNATIONAL JOURNAL OF BEHAVIORAL MEDICINE
(2023)
Article
Psychology, Social
Emily R. Haines, Lauren Lux, Catherine Swift, Melissa Matson, Daniel Kleissler, Jacob Stein, Julie Childers, John M. Salsman, Andrew B. Smitherman
Summary: In this pilot study, the feasibility of implementing the Needs Assessment & Service Bridge (NA-SB) intervention for addressing the unmet needs of adolescents and young adults (AYAs) during cancer treatment was evaluated. A mixed methods single-arm feasibility pilot study was conducted at the North Carolina Basnight Cancer Hospital. The study provided preliminary evidence of the feasibility and proof of concept for NA-SB as a viable approach to identify and address AYAs' unmet needs.
JOURNAL OF PSYCHOSOCIAL ONCOLOGY
(2023)
Review
Oncology
Rina S. S. Fox, Grace E. E. Armstrong, Julia S. S. Gaumond, Taylor F. D. Vigoureux, Corinne H. H. Miller, Stacy D. D. Sanford, John M. M. Salsman, Emmanuel Katsanis, Terry A. A. Badger, Damon R. R. Reed, Brian D. D. Gonzalez, Heather S. L. Jim, Echo L. L. Warner, David E. E. Victorson, Laura B. B. Oswald
Summary: This review evaluated the prevalence, correlates, and psychosocial implications of social isolation and connectedness among young adult cancer survivors aged 18-39 years. The results showed that social isolation was similarly prevalent among young adults, older cancer survivors, and noncancer populations. Social isolation was related to worse psychological well-being, whereas social connectedness was often, but not always, related to better psychological well-being.
Article
Oncology
Kaitlyn M. Fladeboe, Elizabeth J. Siembida, Edward Ip, Abby R. Rosenberg, Mallory A. Snyder, John M. Salsman
Summary: This study describes perceived adult status as a novel developmental indicator and examines its associations with social milestones achievements and health-related quality of life (HRQoL). The findings highlight the unique developmental needs of emerging adults (EAs) and the utility of patient perspectives for understanding developmental outcomes.
Article
Oncology
Amy M. Berkman, Eunju Choi, Christabel K. Cheung, John M. Salsman, Susan K. Peterson, Clark R. Andersen, Qian Lu, J. Andrew Livingston, Michelle A. T. Hildebrandt, Susan K. Parsons, Michael E. Roth
Summary: Adolescent and young adult cancer survivors with minority sexual orientation and gender identity are more likely to have chronic health conditions compared to heterosexual survivors. Factors such as marital status, income level, and prevalence of chronic conditions differ significantly among LGB survivors.
Article
Oncology
Eunju Choi, Amy M. Berkman, Christabel K. Cheung, Andrea C. Betts, John M. Salsman, Clark R. Andersen, Carol Yesenia Ochoa-Dominguez, Kimberly Miller, Joel Milam, Ashna Shah, Susan K. Peterson, Qian Lu, J. Andrew Livingston, Michelle A. T. Hildebrandt, Susan K. Parsons, David Freyer, Michael E. Roth
Summary: This study looked at the disparities in psychological health outcomes between Hispanic/Latino survivors of AYA cancer and controls. They found that survivors were more likely to report moderate/severe distress, use mental health care, and be unable to afford mental health care compared to controls.
