Article
Rehabilitation
Sehim Kutlay, Birkan Sonel Tur, Melek Sezgin, Atilla Halil Elhan, Derya Gokmen, Alan Tennant, Ayse Adile Kucukdeveci
Summary: The reliability and validity of the Turkish version of the PedsQL 3.0 CP module (parent form) in children with CP were tested. The results showed that the module was reliable and had good construct and external validity.
TURKISH JOURNAL OF PHYSICAL MEDICINE AND REHABILITATION
(2022)
Article
Urology & Nephrology
Rufaida Mazahir, Kanav Anand, P. K. Pruthi
Summary: This study compared the quality of life (QOL) of children with idiopathic nephrotic syndrome (INS) to healthy controls and assessed the impact of sub-types on domain scores. The findings showed that children with NS had lower scores in physical, social, and school domains, with school functioning being the most affected. Other factors influencing QOL included steroid-resistant disease and use of immunosuppressants.
CLINICAL AND EXPERIMENTAL NEPHROLOGY
(2022)
Review
Multidisciplinary Sciences
Matthew Smyth, Kevan Jacobson
Summary: The study utilized PedsQL(TM) to assess the quality of life of children and adolescents with different disease cohorts, revealing lower QoL scores in IBD patients, especially those with active disease.
Article
Pediatrics
Jerome Lichtle, Emmanuel Devouche, Naomi Downes, Laurent Mottron, Emilie Cappe
Summary: This study validates the acceptability and reliability of the PedsQL 4.0 questionnaire in French children aged 2 to 4 years. The results show good acceptability and internal consistency of the questionnaire. Factor analysis reveals an alternative 2-factor structure. The total score and emotional scale score are recommended for use in French children aged 2 to 4 years.
EUROPEAN JOURNAL OF PEDIATRICS
(2023)
Article
Pediatrics
Desalegn Girma, Zinie Abita, Alemnew Wale, Semahagn Tilahun
Summary: The study assessed the validity and reliability of the Amharic version of the PedsQL (TM) 4.0 GCS and the PedsQL (TM) 3.0 DM in children and adolescents with diabetes. The results showed that these questionnaires had good reliability and validity at the individual patient level analysis.
ADOLESCENT HEALTH MEDICINE AND THERAPEUTICS
(2021)
Article
Economics
Erik Landfeldt, Joel Iff, Erik Henricson
Summary: This study aimed to investigate the psychometric properties of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales in patients with Duchenne muscular dystrophy (DMD), and found that emotional well-being items showed the greatest loss in health-related quality of life. While the PedsQL questionnaire recorded clinically relevant information for DMD patients, the total score may not be suitable for measuring health-related quality of life in this population.
Article
Chemistry, Analytical
Seung Ki Kim, Dongho Park, Beomki Yoo, Dain Shim, Joong-On Choi, Tae Young Choi, Eun Sook Park
Summary: The study evaluated the effects of overground robot-assisted gait training using an untethered torque-assisted exoskeletal wearable robot in children with CP. Results showed improvements in gross motor function, walking speed, gait endurance, and gait efficiency after the training. The training was safe and feasible even for children with severe motor impairment.
Article
Economics
Asrul Akmal Shafie, Irwinder Kaur Chhabra, Jacqueline Hui Yi Wong, Noor Syahireen Mohammed
Summary: A mapping algorithm was developed to generate EQ-5D-3L utility scores from PedsQL GCS in patients with TDT, with GLM identified as the best performing estimation method. The algorithm could provide economic evaluation information for TDT patients when EQ-5D data is lacking, but caution should be taken when using it in patients with poor quality of life.
EUROPEAN JOURNAL OF HEALTH ECONOMICS
(2021)
Article
Medicine, General & Internal
Can Zhang, Guangyi Xiong, Jian Wang, Xinan Shi, Taipin Guo, Yaju Jin, Yan Zhao, Xiantao Tai
Summary: This study aims to evaluate the efficacy of pediatric massage on children with spastic cerebral palsy, providing a reference for further promotion and application.
Article
Biotechnology & Applied Microbiology
Yue Cheng, Rodolphe Bailly, Claire Scavinner-Dorval, Benjamin Fouquet, Bhushan Borotikar, Douraied Ben Salem, Sylvain Brochard, Francois Rousseau
Summary: This article proposes a comprehensive bone shape analysis approach to better understand the abnormal movement and posture issues in patients with cerebral palsy. By performing group analysis and individual analysis on a clinical MRI dataset, as well as analyzing three bones of the ankle, the authors aim to provide personalized understanding of bone deformities.
FRONTIERS IN BIOENGINEERING AND BIOTECHNOLOGY
(2022)
Article
Physiology
Yushin Kim, Thomas C. Bulea, Diane L. Damiano
Summary: The study identified specific muscle coordination patterns in children with cerebral palsy during walking and analyzed their relationships to gait performance. It found that the CP-specific synergies were related to poorer performance in terms of step length asymmetry, cadence asymmetry, self-selected treadmill speed, and AP-COM displacement of the pelvis.
FRONTIERS IN PHYSIOLOGY
(2021)
Article
Cardiac & Cardiovascular Systems
Teresa Grimaldi Capitello, Francesca Bevilacqua, Roberta Vallone, Anna Maria Dall'Oglio, Francesca Santato, Salvatore Giannico, Giulio Calcagni, Simone Piga, Marta Ciofi degli Atti, Simonetta Gentile, Angela Rossi
Summary: This study assessed the validity and reliability of the Italian version of the Pediatric Quality of Life Cardiac Module, finding it to be valid and reliable for pediatric patients with congenital and acquired Heart Disease. There were differences observed between patient self-reports and parent-proxy reports.
BMC CARDIOVASCULAR DISORDERS
(2021)
Article
Pediatrics
Nicholas J. Skertich, Martha-Conley E. Ingram, Gwyneth A. Sullivan, Miles Grunvald, Ethan Ritz, Ami N. Shah, Mehul Raval
Summary: This study aims to assess surgical outcomes of patients with cerebral palsy (CP) and compare them with patients without CP. The study found that patients with CP had more postoperative complications, a higher proportion of open procedures, and longer length of hospital stays. The patient characteristics and complexity associated with CP may account for these differences.
JOURNAL OF PEDIATRIC SURGERY
(2022)
Article
Clinical Neurology
Anne A. Koy, Andrea Kuehn, Petra Schiller, Julius Huebl, Gerd-Helge Schneider, Matthias Eckenweiler, Cornelia Rensing-Zimmermann, Volker Arnd K. Coenen, Joachim Krauss, Assel Saryyeva, Hans Hartmann, Delia Lorenz, Jens Volkmann, Cordula Matthies, Alfons Schnitzler, Jan Vesper, Alireza Gharabaghi, Daniel Weiss, Andrea Bevot, Warren Marks, Angela Howser, Elegast Monbaliu, Joerg Mueller, Reinhild Prinz-Langenohl, Veerle Visser-Vandewalle, Lars Timmermann
Summary: This study assessed the efficacy and safety of deep brain stimulation (DBS) in pediatric patients with dyskinetic cerebral palsy (DCP). The results showed that DBS significantly improved dyskinesia, but other outcome parameters did not change significantly. Investigations of larger homogeneous cohorts are needed to further ascertain the impact of DBS and guide treatment decisions in DCP.
MOVEMENT DISORDERS
(2023)
Article
Clinical Neurology
M. Wade Shrader, Chris Church, Nancy Lennon, Thomas Shields, Jose J. Salazar-Torres, Jason J. Howard, Freeman Miller
Summary: The study found that adults with CP had similar levels of education as the general population but had higher rates of unemployment and need for caregivers. Although chronic pain was common, it did not have a greater impact on work and independent living compared to typically developing individuals.
FRONTIERS IN NEUROLOGY
(2021)
