Article
Oncology
Renee Eggins, Helen Fowler, Jessica Cameron, Joanne F. Aitken, Philippa Youl, Gavin Turrell, Suzanne K. Chambers, Jeff Dunn, Chris Pyke, Peter D. Baade, Belinda Goodwin
Summary: The objective of this study was to investigate whether supportive care needs vary based on remoteness and area-level socio-economic status, and to identify the factors associated with lower quality of life, higher psychological distress, and severity of unmet supportive care needs. The results showed that women living in outer regional areas reported the highest severity of unmet need, and those in moderately and most disadvantaged areas also had greater unmet need. Three clusters of women were identified based on their characteristics and differences in unmet needs and psychosocial outcomes. This information can be used to identify women with higher supportive care needs and target interventions accordingly.
Article
Oncology
Yolanda Andreu, Paula Martinez, Ana Soto-Rubio, Silvia Fernandez, Carles Bosch, Andres Cervantes
Summary: This study aimed to determine the prevalence of distress and unmet supportive care needs in post-treatment colorectal cancer (CRC) survivors. Findings showed that one in five CRC survivors had clinical distress and 86% expressed at least one unmet need. The risk factors associated with this included lower socioeconomic status, younger age, and a primary treatment that includes more than surgery.
SUPPORTIVE CARE IN CANCER
(2022)
Article
Health Care Sciences & Services
Jake R. Thompson, Hong Fu, Robyn P. M. Saw, Kerry A. Sherman, Victoria Beedle, Victoria Atkinson, Frances Boyle, Niamh A. O'Sullivan, Linda K. Martin, Iris Bartula
Summary: This study investigated the supportive care needs of Australian melanoma patients and their caregivers, with a focus on psychological and emotional well-being. The findings revealed significant unmet needs in this area, suggesting the integration of psychological and emotional well-being services into routine melanoma care to address these needs and improve overall well-being.
QUALITY OF LIFE RESEARCH
(2023)
Article
Oncology
Natascha Fahmer, Hermann Faller, Achim Woeckel, Jessica Salmen, Peter U. Heuschmann, Karin Meng
Summary: This study aimed to examine the challenges, competencies, and supportive care needs of women with breast or gynecological cancer during acute cancer treatment. The study found that patients felt challenged by psychological distress and physical complaints, and only a small proportion reported supportive care needs, mainly related to psychological concerns. The extent of challenging coping tasks, patients' perceived abilities to overcome challenges, and supportive care needs were associated with patient competencies and health literacy.
Review
Oncology
Yvonne N. Becque, Maaike van der Wel, Muzeyyen Aktan-Arslan, Anne Geert van Driel, Judith A. C. Rietjens, Agnes van der Heide, Erica Witkamp
Summary: This study systematically examines the characteristics and effectiveness of interventions to support family caregivers of patients with advanced cancer. The results show that most interventions have positive effects on the psycho-emotional, daily functioning, and social dimensions of family caregivers. Overall, these interventions are beneficial for the well-being of family caregivers, and different target populations are associated with different outcome dimensions.
Review
Oncology
Nicolas H. Hart, Fiona Crawford-Williams, Megan Crichton, Jasmine Yee, Thomas J. Smith, Bogda Koczwara, Margaret I. Fitch, Gregory B. Crawford, Sandip Mukhopadhyay, Jane Mahony, Chan Cheah, James Townsend, Olivia Cook, Meera R. Agar, Raymond J. Chan
Summary: This review examined the prevalence of unmet supportive care needs in adults with advanced cancers and their caregivers. It found that financial, health system and information, psychological, and physical and daily living domains were the most prominent areas of unmet needs for patients, while psychological, patient care and support domains were the highest for caregivers. Distress, depression, and anxiety were associated with higher unmet needs in all domains.
CRITICAL REVIEWS IN ONCOLOGY HEMATOLOGY
(2022)
Article
Oncology
Thomas Schulte, Dirk Hofmeister, Anja Mehnert-Theuerkauf, Tim Hartung, Andreas Hinz
Summary: The study aimed to investigate sleep problems in cancer patients, test the psychometric properties of the Insomnia Sleep Index (ISI) in comparison with the sleep item of the Patient Health Questionnaire-9 (PHQ-9), and analyze factors that could disrupt sleep. Results showed that ISI was effective in detecting sleep problems, with females reporting worse sleep quality than males, and psychological factors were more relevant than symptom factors in disrupting sleep among patients.
SUPPORTIVE CARE IN CANCER
(2021)
Review
Oncology
Tamara Ownsworth, Raymond J. Chan, Stephanie Jones, Julia Robertson, Mark B. Pinkham
Summary: This study evaluated the feasibility and acceptability of delivering supportive care via telehealth platforms to individuals with primary brain tumor and their caregivers. Key findings included moderate accrual and adherence rates, high satisfaction levels, and better outcomes for interventions involving real-time interactions.
Article
Oncology
Marieke D. C. Damen, Peter E. Westerweel, Mark David Levin, Aline J. Pelle
Summary: The study found that one third of patients with indolent haematological malignancy during watch-and-wait reported unmet supportive care needs. The prevalence of anxiety and depressive symptomatology were both 7.3%. Factors such as higher distress levels, depression, poorer coping, and younger age were independently associated with more supportive care needs.
Article
Oncology
Nienke Zomerdijk, Michelle Jongenelis, Camille E. Short, Andrew Smith, Jane Turner, Kathryn Huntley
Summary: The COVID-19 pandemic has significantly impacted the psychological wellbeing of patients with haematological cancers, leading to high levels of distress and unmet supportive care needs. Innovative solutions are needed to rapidly identify and address distress and unmet needs among this population during and beyond the pandemic.
SUPPORTIVE CARE IN CANCER
(2021)
Article
Oncology
Man Chung Li, Hui Lin Cheng
Summary: The study found that a significant proportion of cancer survivors experience Fear of Cancer Recurrence (FCR) and have high supportive care needs in psychological and health system information domains. Although informational/educational healthcare services are frequently utilized, services like mental health/psychological well-being support have lower utilization rates.
Article
Oncology
Elke Rammant, Ann Van Hecke, Karel Decaestecker, Maarten Albersen, Steven Joniau, Wouter Everaerts, Femke Jansen, Nihal E. Mohamed, Roos Colman, Mieke Van Hemelrijck, Valerie Fonteyne
Summary: The majority of bladder cancer patients undergoing radical cystectomy have moderate to high supportive care needs, but few utilize or are willing to use supportive care services, with many patients preferring to talk to their physician.
Article
Oncology
Kelly M. Shaffer, Philip Chow, Jillian Glazer, Tri Le, Matthew J. Reilley, Mark J. Jameson, Lee M. Ritterband
Summary: This study demonstrated the feasibility of using EMA among cancer caregivers and found that higher caregiver depressive symptoms were related to overall higher reported negative affect and lower positive affect. The results suggest the importance of strategies to reduce negative affect and increase opportunities for positive affect in caregiving interventions.
Article
Oncology
Svetlana V. Doubova, Ricardo Perez-Cuevas
Summary: In Mexico, women with cervical and breast cancer face unmet supportive care needs, probable depression, and substandard patient-centered cancer care quality, pointing to priority areas for improvements in cancer care.
Review
Oncology
Victoria M. White, Natalie Pejoski, Elizabeth Vella, Gemma Skaczkowski, Anna Ugalde, Eva Y. N. Yuen, Patricia Livingston, Carlene Wilson
Summary: This review aimed to identify the mechanisms used to link people with cancer to support services and assess their impact. Three linkage mechanisms were identified: outreach from the support service, clinician recommendation/referral, and mailed invitation. Outreach was the most successful in connecting people with cancer to services, but further research is needed on the effectiveness of different mechanisms for underserved, high-needs patient groups.
Article
Ethnic Studies
Patsy S. Soon, Neda Karimi, Verena S. Wu, Afaf Girgis
Summary: This study explored the factors influencing Vietnamese- and English-speaking women's decisions about breast reconstruction after mastectomy for breast cancer treatment. The results revealed that lack of information was a persistent barrier, with Vietnamese women identifying this issue more significantly. The importance of doctors' recommendations in helping Vietnamese women make informed decisions about reconstruction was emphasized.
ETHNICITY & HEALTH
(2022)
Article
Psychology, Social
Janelle Levesque, Adeola Bamgboje-Ayodele, Jessica Paradiso, Joseph Descallar, Afaf Girgis
Summary: The study found that self-efficacy is significantly negatively related to emotional distress, challenges experienced, and unmet needs among male caregivers of women with breast cancer. The mediation model accounted for a significant 18% of emotional distress variability, but self-efficacy did not mediate the relationship between challenges and emotional distress or between unmet needs and emotional distress.
JOURNAL OF PSYCHOSOCIAL ONCOLOGY
(2022)
Article
Oncology
Verena Shuwen Wu, Allan 'Ben' Smith, Afaf Girgis
Summary: This study developed a self-management intervention, WeCope, to support Chinese immigrant patients affected by cancer and their caregivers through a community participatory approach. Participants expressed overall satisfaction with the resource and provided suggestions for improvement, particularly in providing more information on treatment-related issues and support services.
EUROPEAN JOURNAL OF CANCER CARE
(2022)
Article
Public, Environmental & Occupational Health
Sylvie D. Lambert, Steven Grover, Andrea Maria Laizner, Jane McCusker, Eric Belzile, Erica E. M. Moodie, John William Kayser, Ilka Lowensteyn, Michael Vallis, Mathieu Walker, Deborah Da Costa, Louise Pilote, Cindy Ibberson, Judith Sabetti, Manon de Raad
Summary: The study aimed to assess the feasibility and acceptability of using a Sequential Multiple Assignment Randomized Trial (SMART) to optimize a web-based stress management intervention for patients with cardiovascular disease (CVD). The results showed that SMART procedures were feasible, but attrition rates and satisfaction were issues in the web-only group. Further research and improvement in interventions for non-responders are necessary.
PATIENT EDUCATION AND COUNSELING
(2022)
Review
Oncology
Allan 'Ben' Smith, Verena Shuwen Wu, Sylvie Lambert, Jani Lamarche, Sophie Lebel, Stuart Leske, Afaf Girgis
Summary: Fear of cancer recurrence (FCR) is prevalent and persistent among cancer caregivers. Younger caregivers and those caring for survivors with worse FCR or overall health are at higher risk. Caregivers' FCR levels may be equal to or greater than survivors', and are associated with poorer quality of life.
JOURNAL OF CANCER SURVIVORSHIP
(2022)
Article
Medicine, General & Internal
Patricia M. Livingston, Lahiru Russell, Liliana Orellana, Natalie Winter, Michael Jefford, Afaf Girgis, David Austin, O. Eric, Cathrine Mihalopoulos, Anna Ugalde, Richard Chambers, Jo Phipps-Nelson, Dishan Herath, Mari Botti, Bodil Rasmussen, Kathryn Whitfield, Maria Ftanou, Allan Ben Smith, Kirsten Pilatti, Sally Sara, Addie Wootten, Kate Gillan, Madhu Singh, David Campbell, Brindha Pillay, Victoria White
Summary: Fear of cancer recurrence (FCR) is a common psychological issue among cancer survivors, causing distress and anxiety. Online mindfulness programmes, such as MindOnLine, may help cancer survivors manage FCR and improve their well-being. This study aims to determine the potential efficacy of MindOnLine for survivors of breast, prostate, and colorectal cancer through a single-blind randomized controlled trial. The findings of this study will be disseminated in peer-reviewed journals and among key stakeholders.
Article
Health Care Sciences & Services
Mira Bining, Sydney Wasserman, Lydia Ould Brahim, Eric Belzile, Mona Magalhaes, Sylvie D. Lambert
Summary: This study evaluated the quality, usefulness, therapeutic potential, and security of publicly available apps for supporting unpaid cancer caregivers. The results showed that the apps scored well in terms of quality and privacy, but had lower scores in security and usefulness.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2022)
Article
Oncology
Ashley Wei-Ting Wang, Youngmee Kim, Amanda Ting, Wendy Wing Tak Lam, Sylvie D. Lambert
Summary: The purpose of this international study was to compare the perspectives of healthcare professionals and family caregivers on the unmet needs of cancer patients, and to examine the moderating effect of patients' age group. The results showed that patients had greater unmet needs in medical care compared to caregivers across all age groups. However, pediatric patients had greater unmet needs in spiritual concerns, sexuality/intimacy, and insomnia/fatigue compared to caregivers, while adolescent and young adult patients had greater unmet needs in symptom management. The other unmet needs of patients were similar to those of caregivers regardless of age groups.
SUPPORTIVE CARE IN CANCER
(2023)
Review
Oncology
Lydia Rosa Bourdache, Lydia Ould Brahim, Sydney Wasserman, Marrah Nicolas-Joseph, Francesca Y. E. Frati, Eric Belzile, Sylvie D. Lambert
Summary: The study evaluated the quality, readability, suitability, and usefulness of publicly available resources for adult cancer survivors who completed primary treatment. The resources were assessed for quality, readability, suitability, and usefulness, and the highest-scoring resources were identified. The findings showed fair quality and suitability, but readability exceeded recommended levels. Only one resource had a superior score in both quality and suitability. The study highlights the need for accessible resources that address the unmet needs of cancer survivors.
JOURNAL OF CANCER SURVIVORSHIP
(2023)
Review
Health Care Sciences & Services
Maxime Sasseville, Wilfried Supper, Jean -Baptiste Gartner, Geraldine Layani, Samira Amil, Peter Sheffield, Marie -Pierre Gagnon, Catherine Hudon, Sylvie Lambert, Eugene Attisso, Victoria Bureau Lagarde, Mylaine Breton, Marie-Eve Poitras, Pierre Pluye, Pierre-Henri Roux-Levy, James Plaisimond, Frederic Bergeron, Rachelle Ashcroft, Sabrina Wong, Antoine Groulx, Nicolas Beaudet, Jean-Sebastien Paquette, Natasha D'Anjou, Sylviane Langlois, Annie Leblanc
Summary: This study aims to conduct a systematic review of the impact of electronic patient-reported outcome measures (ePROMs) implementation in primary health care for chronic disease management. The research methods include literature review and data extraction, using a mixed methods synthesis design. The preliminary search strategy has been completed in September 2022, and the main search strategy and data collection will be completed between October and December 2022.
JMIR RESEARCH PROTOCOLS
(2023)
Article
Oncology
Sydney Wasserman, Lydia Ould Brahim, Ameer Attiya, Eric Belzile, Sylvie D. Lambert
Summary: This study evaluated the quality and usefulness of interactive mobile health applications (apps) for adults with cancer. The findings revealed that the apps had an average quality score of 3.62/5 and an average usefulness score of 50%.
Article
Health Care Sciences & Services
Kerrie Clover, Sylvie D. Lambert, Christopher Oldmeadow, Benjamin Britton, Alex J. Mitchell, Gregory Carter, Madeleine T. King
Summary: The study confirmed the validity of PROMIS anxiety measures in cancer patients, showing them to be equivalent to traditional measures but not demonstrating any clear advantages.
JOURNAL OF PATIENT-REPORTED OUTCOMES
(2022)
Article
Health Care Sciences & Services
Afaf Girgis, Adeola Bamgboje-Ayodele, Orlando Rincones, Shalini K. Vinod, Sandra Avery, Joseph Descallar, Allan 'Ben' Smith, Belinda Arnold, Anthony Arnold, Victoria Bray, Ivana Durcinoska, Nicole M. Rankin, PROMPT-Care Implementation Authorship Group, Geoff P. Delaney
Summary: This study implemented an effective ePROM system (PRM system) for lung cancer patients in routine care, using the RE-AIM framework. The study showed that the implementation of the PRM system successfully improved the routine care of lung cancer patients by identifying patient concerns early and providing timely responses, resulting in fewer visits to the cancer assessment unit and increased confidence and engagement of healthcare providers.
JOURNAL OF PATIENT-REPORTED OUTCOMES
(2022)
Article
Oncology
Sylvie D. Lambert, Lindsay R. Duncan, S. Nicole Culos-Reed, Laura Hallward, Celestia S. Higano, Ekaterina Loban, Anne Katz, Manon De Raad, Janet Ellis, Melissa B. Korman, Carly Sears, Cindy Ibberson, Lauren Walker, Eric Belzile, Paramita Saha-Chaudhuri, Helen McTaggart-Cowan, Stuart Peacock
Summary: This pilot study evaluated a tailored web-based self-management program for men with prostate cancer and their caregivers. The program showed feasibility and acceptability and demonstrated clinical significance for caregivers' anxiety and quality of life.
Article
Psychology, Multidisciplinary
Kerrie Clover, Sylvie D. Lambert, Christopher Oldmeadow, Benjamin Britton, Madeleine T. King, Alex J. Mitchell, Gregory L. Carter
Summary: This study compared three commonly used anxiety measurement tools and found differences in how they measure anxiety. The categorical classifications of anxiety severity (mild/moderate/severe) were not equivalent across instruments, resulting in varying prevalence estimates of anxiety symptoms depending on the instrument used.
CURRENT PSYCHOLOGY
(2022)
