Article
Urology & Nephrology
Elizabeth C. Lorenz, Tanya M. Petterson, Isabella Zaniletti, Kandace A. Lackore, Bradley K. Johnson, Martin L. Mai, Sumi S. Nair, Andrew J. Bentall, Kathleen J. Yost, David T. Eton
Summary: This study aimed to develop a kidney transplant-specific supplement to the Patient Experience with Treatment and Self-Management (PETS) measure for assessing treatment burden. The survey results showed significant correlations between kidney transplant-specific scales, treatment burden, physical and mental health, and self-efficacy. This supplement may help healthcare providers identify kidney transplant recipients at risk for nonadherence.
Article
Nursing
Carole Deletroz, Claudio Del Grande, Samira Amil, Patrick Bodenmann, Marie-Pierre Gagnon, Maxime Sasseville
Summary: This study aimed to evaluate the content validity of a digital health literacy PROM for chronic patients using an e-Delphi technique. The results showed that consensus was reached on the relevance, improvability, and self-ratability of 5 constructs and 11 items for a digital health literacy PROM. The study also identified two important themes related to personal coping strategies in healthcare, which involve the use of information and communications technologies.
Article
Health Care Sciences & Services
Stacy Cooper Bailey, James W. Griffith, Chandana Vuyyuru, Stephanie Batio, Evelyn Velazquez, Delesha M. Carpenter, Terry C. Davis, Ruth M. Parker, Michelle Taddeo, Michael S. Wolf
Summary: This study aimed to develop and test a brief, objective health literacy measure that could be administered via text messaging or online survey. The results showed that the new measure had acceptable internal consistency and language consistency, and it was significantly associated with factors such as educational attainment, physical functioning, emotional symptoms, and medication adherence. In feasibility testing, the completion rate was slightly higher in the text messaging group compared to the online survey group.
JOURNAL OF GENERAL INTERNAL MEDICINE
(2023)
Article
Multidisciplinary Sciences
Jung-Won Ahn, Sun Mi Lee, Yon Hee Seo
Summary: This study aimed to evaluate the characteristics, physiological indices, and health literacy affecting self-care behavior in patients with chronic kidney disease in South Korea. The results showed significant differences in self-care behavior based on age, cohabitation status, employment, smoking status, dialysis, comorbidities, and certain physiological indices. Factors such as not currently working, being a non-smoker, having end-stage kidney disease, and a positive response to health literacy significantly affected self-care behavior.
Article
Psychology, Clinical
In Ju Yoon, Su Jung Lee
Summary: The aim of this study was to investigate anxiety levels among hemodialysis patients during the COVID-19 pandemic and explore the relationship between health literacy and anxiety. The results showed that health literacy increased with decreasing age and increasing educational level. Patients with comorbidities had higher levels of general anxiety. Patients who spent more time searching for health information had higher levels of coronavirus disease-related anxiety. This study highlights the need for further research on the effectiveness of health literacy programs in reducing anxiety levels and the importance of social support for patients with comorbidities.
PSYCHOLOGY RESEARCH AND BEHAVIOR MANAGEMENT
(2023)
Review
Transplantation
Marco D. Boonstra, Sijmen A. Reijneveld, Elisabeth M. Foitzik, Ralf Westerhuis, Gerjan Navis, Andrea F. de Winter
Summary: This systematic review identified potential targets and strategies for improving limited health literacy in chronic kidney disease patients. Strong evidence was found for the association of limited health literacy with smoking and suboptimal transplantation process, while weak evidence was found for other factors related to self-care management, care utilization, patient-provider interaction, and social context. Interventions aimed at improving knowledge, decision-making, and health behaviors showed weak effectiveness, emphasizing the need for more and higher quality studies in earlier CKD stages. Healthcare organizations should focus on supporting limited health literacy patients.
NEPHROLOGY DIALYSIS TRANSPLANTATION
(2021)
Article
Oncology
J. A. M. van der Giessen, M. G. E. M. Ausems, E. van Riel, A. de Jong, M. P. Fransen, S. van Dulmen
Summary: This study aimed to develop a plain-language guide to facilitate communication about genetic counseling and testing with breast cancer patients with limited health literacy. The guide, including 33 frequently used jargon words reformulated in plain language, was well-received by healthcare professionals and could enhance opportunities for patients to make informed decisions regarding genetic testing. The high intention from healthcare professionals to use the guide suggests promising implementation in real-life settings.
SUPPORTIVE CARE IN CANCER
(2021)
Article
Urology & Nephrology
M. S. Gurgel do Amaral, S. A. Reijneveld, L. M. G. Meems, J. Almansa, G. J. Navis, A. F. de Winter
Summary: This study found that low health literacy is associated with more multimorbidity in CKD patients. Health literacy is not associated with patterns of multimorbidity in younger patients, but it is slightly in older ones.
JOURNAL OF NEPHROLOGY
(2022)
Article
Critical Care Medicine
Emily Kroshus, Mary Kathleen Steiner, Sarah J. Lowry, K. Casey Lion, Eileen J. Klein, Bonnie Strelitz, Sara P. D. Chrisman, Frederick P. Rivara
Summary: The study aimed to develop and test reliable measures of parent concussion management knowledge and self-efficacy. A multi-stage mixed-methods approach was used, including expert review, cognitive interviews, and quantitative item reduction. The results showed a positive correlation between parental self-efficacy scores and engagement in recommended support behaviors, while concussion management knowledge was not associated with parenting behaviors. These measures can be useful in identifying parent needs and evaluating interventions for post-concussion parenting.
JOURNAL OF NEUROTRAUMA
(2023)
Article
Genetics & Heredity
Kushani Jayasinghe, Zornitza Stark, Peter G. Kerr, Clara Gaff, Melissa Martyn, John Whitlam, Belinda Creighton, Elizabeth Donaldson, Matthew Hunter, Anna Jarmolowicz, Lilian Johnstone, Emma Krzesinski, Sebastian Lunke, Elly Lynch, Kathleen Nicholls, Chirag Patel, Yael Prawer, Jessica Ryan, Emily J. See, Andrew Talbot, Alison Trainer, Rigan Tytherleigh, Giulia Valente, Mathew Wallis, Louise Wardrop, Kirsty H. West, Susan M. White, Ella Wilkins, Andrew J. Mallett, Catherine Quinlan
Summary: In a cohort of patients with suspected monogenic kidney disease in Australia, exome sequencing (ES) had a high diagnostic yield and clinical impact. The study identified predictors of positive diagnosis and highlighted the potential benefits of using ES in guiding clinical practice and health service design.
GENETICS IN MEDICINE
(2021)
Article
Nursing
Ira Suarilah, Chiu-Chu Lin
Summary: The study aimed to explore self-management of early-stage CKD patients and its influencing factors in Indonesia. Results showed that Indonesian patients had low health literacy but positive illness perception and self-efficacy, which significantly affected CKD self-management. Health literacy was found to influence all dimensions of self-management and improving it may help enhance self-management.
JOURNAL OF CLINICAL NURSING
(2022)
Article
Health Care Sciences & Services
Lukas Lange-Drenth, Holger Schulz, Gero Endsin, Christiane Bleich
Summary: The study found that cancer patients encountered challenges in operating, navigating, evaluating, and using information when searching for cancer-related information online, leading to a substantial percentage of unsuccessful task completion. Many participants used incorrect search terms, did not control for information reliability, and failed to verify information from different websites.
JOURNAL OF MEDICAL INTERNET RESEARCH
(2021)
Article
Health Care Sciences & Services
Eunhee Park, Misol Kwon
Summary: This study aimed to explore the usability and content validity of the digital health literacy instrument among adolescents. Through cognitive interviews, issues related to comprehension and communication were identified and suggestions for improvement were made. Dual rounds of interviews provided substantial insights into survey interpretation when introduced to US adolescents.
JOURNAL OF MEDICAL INTERNET RESEARCH
(2021)
Article
Nursing
Eun-Hyun Lee, Young Whee Lee, Kwan-Woo Lee, Hae Jin Kim, Seongbin Hong, So Hun Kim, Eun Hee Kang
Summary: This study developed a condition-specific eHealth literacy scale for people with type 2 diabetes and evaluated its psychometric properties. The scale showed good psychometric properties and can be used in clinical practice with less burden on respondents.
Article
Health Care Sciences & Services
Ping-Shaou Yu, Yi-Chun Tsai, Yi-Wen Chiu, Pei-Ni Hsiao, Ming-Yen Lin, Tzu-Hui Chen, Shu-Li Wang, Lan-Fang Kung, Shih-Ming Hsiao, Shang-Jyh Hwang, Mei-Chuan Kuo
Summary: This study showed that health literacy was significantly and positively correlated with self-care behavior in patients with CKD. Patients with sufficient or excellent health literacy demonstrated better diet, exercise, and home blood pressure monitoring scores compared to those with inadequate or limited/problematic health literacy.
JOURNAL OF PERSONALIZED MEDICINE
(2021)
