Article
Oncology
Merel Hermus, Charlene J. van der Zijden, Bas P. L. Wijnhoven, Jan J. Busschbach, Sjoerd M. Lagarde, Leonieke W. Kranenburg
Summary: The study found that patients who underwent decision counseling before neoadjuvant chemoradiotherapy were more satisfied, recommending the early introduction of decision counseling and discussing with patients the optimal timing for more comprehensive treatment options.
ANNALS OF SURGICAL ONCOLOGY
(2023)
Article
Urology & Nephrology
Eimear Ruane-McAteer, Gillian Prue
Summary: This paper discusses the psychological impact of active surveillance for prostate cancer and its implications for treatment decision making and acceptance of AS protocols. It highlights the role of clinicians in treatment decision making and the importance of information provision and trust in AS as a management approach. The paper suggests focusing on identifying factors associated with positive and negative psychological responses to diagnosis and AS for improving psychological and physical outcomes, as conflicting research exists on the psychological impact of AS for PCa.
WORLD JOURNAL OF UROLOGY
(2022)
Article
Public, Environmental & Occupational Health
Simon John Stewart, Lisa Roberts, Lucy Brindle
Summary: This study examines how treatment-related preferences expressed by patients with prostate cancer and their partners are organized during clinical consultations. It found that when clinicians did not align with patients' preferences, it caused discordance in the interaction and led to couples silencing themselves. However, two deviant cases were identified where collaboration was maintained. Therefore, clinicians should acknowledge and create opportunities for discussing treatment preferences by recognizing the contributions of patients and their partners.
SOCIAL SCIENCE & MEDICINE
(2023)
Article
Oncology
Merel Hermus, Berend J. van der Wilk, Rebecca T. H. Chang, Gerlise Collee, Bo J. Noordman, Peter-Paul L. O. Coene, Jan Willem T. Dekker, Henk H. Hartgrink, Joos Heisterkamp, Grard A. P. Nieuwenhuijzen, Camiel Rosman, Liesbeth Timmermans, Bas P. L. Wijnhoven, Charlene J. van der Zijden, Jan J. Busschbach, J. Jan B. van Lanschot, Sjoerd M. Lagarde, Leonieke W. Kranenburg
Summary: Active surveillance may be a safe and effective treatment option for patients with oesophageal cancer after neoadjuvant chemoradiotherapy. Patient preferences and coping styles play a role in treatment decisions, and our study provides insights that can aid healthcare professionals in understanding and addressing patient preferences.
INTERNATIONAL JOURNAL OF CANCER
(2023)
Article
Oncology
Jet W. Ankersmid, Constance H. C. Drossaert, Yvonne E. A. van Riet, Luc J. A. Strobbe, Sabine Siesling
Summary: This study explored the experiences of breast cancer patients with information provision and decision-making about post-treatment surveillance. Although there was a desire for shared decision-making, participants did not experience it. Information provision was suboptimal and unstructured. Participants were hesitant towards less intensive surveillance, but open to the use of personalised risk assessment.
JOURNAL OF CANCER SURVIVORSHIP
(2023)
Article
Oncology
Merel Hermus, Berend J. van Der Wilk, Rebecca Chang, Jan Willem T. Dekker, Peter-Paul L. O. Coene, Grard A. P. Nieuwenhuijzen, Camiel Rosman, Joos Heisterkamp, Henk H. Hartgrink, Liesbeth Timmermans, Bas P. L. Wijnhoven, Charlene J. van Der Zijden, Jan J. B. van Lanschot, Jan Busschbach, Sjoerd M. Lagarde, Leonieke W. Kranenburg
Summary: This study explores patients' need for information and support in deciding on esophageal cancer treatment. Patients prefer to receive information directly from their doctors and rely on this information to make a treatment decision. Patients highly value support from their loved ones and appreciate empathic doctors to actively involve them in the decision-making process.
Article
Nursing
Maja Elisabeth Juul Sondergaard, Kirsten Lode, Sissel Eikeland Husebo, Ingvild Dalen, Svein Reidar Kjosavik
Summary: This study compared the perception of information and distress between a PSA group and a Stockholm3 group during the diagnostic phase of prostate cancer. The results showed that compared to the PSA group, men in the Stockholm3 group reported better information from their general practitioners and felt they received sufficient information about the examinations. However, there were no differences between the groups in terms of waiting time and distress. Qualitative analysis identified three themes: the impact of information on comprehension, entering the healthcare system, and periodic feelings of distress. The study concluded that while the Stockholm3 test may improve information provision, some patients in both groups still experienced distress and would benefit from more information and support from healthcare professionals.
Article
Oncology
Salonee Shah, Kerri Beckmann, Mieke Van Hemelrijck, Ben Challacombe, Rick Popert, Prokar Dasgupta, Jonah Rusere, Grace Zisengwe, Oussama Elhage, Aida Santaolalla
Summary: This study provides a descriptive profile of the Guy's and St Thomas NHS Foundation Trust AS cohort, highlighting the importance of AS pathways. The study found a relatively large proportion of men of African/Afro-Caribbean descent in the cohort, as well as more frequent use of magnetic resonance imaging and trans-perineal biopsies after 2012.
Article
Urology & Nephrology
Madhur Nayan, Filipe L. F. Carvalho, Adam S. Feldman
Summary: While active surveillance (AS) is established for low-risk prostate cancer, its safety for intermediate-risk (IR) disease remains uncertain. Lack of randomized trials and limitations of observational studies call for further research to identify which IR prostate cancer patients can be safely managed with AS.
WORLD JOURNAL OF UROLOGY
(2022)
Article
Oncology
Christopher P. Filson, Fangxin Hong, Niya Xiong, Rachel Pozzar, Barbara Halpenny, Donna L. Berry
Summary: In a trial assessing a decision support tool for prostate cancer treatment, it was found that Black race and restricted treatment options were associated with less use of active surveillance for low-risk patients. Despite reducing decisional conflict, the use of the P3P tool did not lead to more appropriate treatment choices.
Review
Oncology
Maggie Cunningham, Mike Murphy, Paul Sweeney, Helen L. Richards
Summary: Men's decision-making process regarding choosing Active Surveillance (AS) or Active Treatment for localized prostate cancer is influenced by various factors, including cognitive representations, diagnostic experiences, patient decision making, and emotional adjustment to AS. When deciding whether to opt for AS, men balance their desire for quality of life against their fear of cancer progression.
Article
Computer Science, Information Systems
Sergey Motorny, Surendra Sarnikar, Cherie Noteboom
Summary: The emerging trend in healthcare delivery is patient-centered medicine, which focuses on empowering patients and supporting patient-centered care through the use of information technology. Patient decision aids are tools that can help patients become more involved in their care, but current aids do not account for individual variability in information needs and decision-making preferences.
INFORMATION SYSTEMS FRONTIERS
(2022)
Article
Urology & Nephrology
Anirudh Tomer, Daan Nieboer, Monique J. Roobol, Anders Bjartell, Ewout W. Steyerberg, Dimitris Rizopoulos
Summary: The study developed a model and methodology to predict the risk of Gleason upgrading in patients with prostate cancer on active surveillance, providing risk-based personalised biopsy decisions and potentially reducing unnecessary biopsies. The validated model and schedules are available through a web-application for shared decision-making on biopsy schedules.
Article
Management
Weiyu Li, Brian T. Denton, Todd M. Morgan
Summary: This article presents a finite-horizon partially observable Markov decision process (POMDP) approach to optimize biopsy decisions for patients under active surveillance for prostate cancer. The objective is to minimize the number of biopsies and the delay in detecting high-risk cancer. The study considers parameter ambiguity and patients' preference variability, and proposes two fast approximation algorithms for the model.
EUROPEAN JOURNAL OF OPERATIONAL RESEARCH
(2023)
Article
Oncology
Megan McIntosh, Melissa J. Opozda, Camille E. Short, Daniel A. Galvao, Rebecca Tutino, Michael Diefenbach, Behfar Ehdaie, Christian Nelson
Summary: This study explored the perceived influences on treatment decision-making from the patient and partner's perspectives. The findings showed that partner support and influence, vicarious experiences of the patient and partner, patient's life circumstances, disclosure to social networks, and the relationship with physicians all have an impact on treatment choice. Additionally, the information patients and partners received about the treatment options also played a role in the decision-making process.
EUROPEAN JOURNAL OF CANCER CARE
(2022)
Article
Public, Environmental & Occupational Health
Noora Jawad, Faisal F. Hakeem, Wael Sabbah
Summary: This study aims to examine socioeconomic and ethnic variations in the provision of health advice by dental professionals. The findings indicate the prominent roles of education level, ethnicity, and smoking status in the provision of health advice. The study emphasizes the need for targeted interventions to promote equity and cultural competence in delivering health advice in dental settings.
PATIENT EDUCATION AND COUNSELING
(2024)
Review
Public, Environmental & Occupational Health
Katherine Miles, Bernadette O'Neill, Shuangyu Li
Summary: This study conducted a meta-ethnography to identify and synthesize guidance for optimizing feedback interactions in undergraduate clinical communication simulations. The findings led to the development of a new Feedback Kidney Model, which can guide medical education and future research on feedback in promoting learning. Incorporating meta-cognitive training and utilizing the model can help improve students' learning and communication with patients through on-site face-to-face feedback.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Ellen Van de Velde, Ann Van Hecke, Kristof Eeckloo, Simon Malfait
Summary: This study investigates the suitability of experience-based co-design as a method for designing bedside handover in mental health care, and finds that it is a suitable method for enhancing patient involvement in nursing handovers in a general hospital's mental healthcare unit.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Yasmine Probst, Maddison Luscombe, Marta Hilfischer, Vivienne Guan, Lauren Houston
Summary: This study explores the interpretation of MS-targeted nutrition messages using semi-structured interviews. The findings reveal that dietary changes made by patients with MS after diagnosis are a coping mechanism to address uncertainty, fear of disease progression, and the risk of relapse. The admiration and skepticism towards extremist MS diets depend on individual vulnerability and support from healthcare professionals. The unique MS journey influences the interpretation of the messages, driven by engagement, practicality, and credibility.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Aisha T. Langford, Kerli Orellana, Nancy Buderer, Katerina Andreadis, Stephen K. Williams
Summary: This study examined the associations between digital health, sociodemographic factors, and medical conditions on patient-centered communication (PCC). The results suggested that age, education level, household income, and history of hypertension were related to the quality of PCC.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Danielle Huisman, Taylor Burrows, Louise Sweeney, Kirsty Bannister, Rona Moss-Morris
Summary: This study found limited information on symptoms during remission of inflammatory bowel disease (IBD) on readily searchable patient websites, which fails to adequately explain the persistence of symptoms during remission for patients.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Bethan Benwell, Maria Erofeeva, Catrin S. Rhys
Summary: This study examined how language choices made by call handlers affect the progress of complaint calls and the stance of the callers. The findings showed that displaying affiliation at relevant moments in the conversation helps advance the call and de-escalate the complaint, while the absence or misplacement of affiliation may lead to escalation. Early intervention in establishing affiliation with the caller's concerns and reasoning is crucial for de-escalation.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Sarah V. Hantzmon, Clemontina A. Davenport, Maya N. Das Gupta, Temi A. Adekunle, Sarah E. Gaither, Maren K. Olsen, Sandro O. Pinheiro, Kimberly S. Johnson, Hannah Mahoney, Allison Falls, Lauren Lloyd, Kathryn I. Pollak
Summary: This study examined the impact of racial differences on patient trust and distrust in physician-patient interactions through audio-recorded cardiologist-patient encounters. The results showed that Black patients had lower expressions of trust and a higher level of guardedness compared to White patients. It suggests that White clinicians can improve communication with Black patients to increase expressions of trust.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Caitlin S. Sayegh, Ellen Iverson, Karen K. Macdonell, Shinyi Wu, Marvin Belzer
Summary: This study applied a Supportive Accountability Model to examine youth's perception of remote human coaching and automated reminders for medication adherence. The findings indicated that both coaching and automated reminders were effective in improving adherence, with coaching being viewed as more potent and engaging. Phone calls enhanced the sense of supportive accountability, but texts were more convenient and flexible. Individual preferences varied.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Jennifer Necci Dineen, Mitchell Doucette, Mekaila Carey, Kerri M. Raissian
Summary: This paper aims to understand the facilitators and barriers perceived by general practice physicians in initiating anticipatory guidance around firearm safety. Qualitative interviews were conducted with 18 GPs to explore their perspectives. Barriers to providing secure firearm storage counseling include inadequate screening mechanisms, limited understanding of who is at risk for firearm injury, time pressures, concerns about patient receptivity, and a need for training. Structural issues need to be addressed before focusing on how to have conversations about firearm safety.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Henrike J. Westerink, Cato C. Bresser, Mirjam M. Garvelink, Cornelia F. van Udenkraan, Ouisam Zouitni, Hans A. J. Bart, Philip J. van der Wees, Paul B. van der Nat
Summary: This study aims to explore the perspectives and needs of healthcare professionals (HCPs) and patients regarding the use of outcome data in consultations. The findings indicate that HCPs do not routinely use aggregated outcome data in consultations due to various barriers. Patients, however, consider aggregated outcome data important but have different preferences based on their health conditions.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Bronwyn Newman, Mashreka Sarwar, Ashfaq Chauhan, Reema Harrison
Summary: Co-facilitation presents an opportunity to address inequity in codesign, and through our experiences in the CanEngage project, we have identified three mechanisms to promote equity.
PATIENT EDUCATION AND COUNSELING
(2024)
Review
Public, Environmental & Occupational Health
Andre Vaagan, Mette Haaland-Overby, Alison Axisa Eriksen, Kari Fredriksen, Vibeke Stenov, Cecilie Varsi, Brynja Ingadottir, Bryan Richard Cleal, Anita Royneberg Alvheim, Karl Fredrik Westermann, Hilde Stromme, Olof Birna Kristjansdottir
Summary: This study summarizes the recent evidence on the feasibility, acceptability, and effectiveness of videoconference group-based patient and caregiver education. The results suggest that this education approach is highly feasible and acceptable, and may improve health outcomes for participants. However, the evidence of effectiveness is limited and the quality of studies varies. Further research is needed to establish the effectiveness of this education approach for different patient and caregiver groups.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Momoka Igarashi, Takayuki Kawaguchi, Takuma Shiozawa, Sosei Yamaguchi
Summary: The study aims to identify conversation topics, who initiated the topics, and differences in topics with and without the use of a shared decision-making (SDM) tool in psychiatric outpatient consultations. The findings show that daily life issues, especially related to work, were the main topics discussed, and the SDM tool seems to facilitate discussion of patients' concerns.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Qiwei Luna Wu, Grace Ellen Brannon
Summary: This study explores how patient-centered communication, media, and organizational factors influence patients' intentions to use telehealth. The findings suggest that positive healthcare experiences, organizational support, and quality media designs are associated with telehealth adoption.
PATIENT EDUCATION AND COUNSELING
(2024)