Review
Health Care Sciences & Services
Danielle M. Muscat, Jenna Smith, Olivia Mac, Tamara Cadet, Anik Giguere, Ashley J. Housten, Aisha T. Langford, Sian Smith, Marie-Anne Durand, Kirsten McCaffery
Summary: The study found that only 12% of Patient Decision Aids (PtDAs) addressed the needs of people with low health literacy or other socially-disadvantaged groups, indicating some level of inequality. While most PtDAs were understandable, they lacked actionability. A post hoc subgroup analysis revealed that using strategies to reduce cognitive demand in PtDA development led to greater knowledge improvements.
MEDICAL DECISION MAKING
(2021)
Article
Oncology
Marie-Anne Durand, Renata W. Yen, A. James O'Malley, Danielle Schubbe, Mary C. Politi, Catherine H. Saunders, Shubhada Dhage, Kari Rosenkranz, Julie Margenthaler, Anna N. A. Tosteson, Eloise Crayton, Sherrill Jackson, Ann Bradley, Linda Walling, Christine M. Marx, Robert J. Volk, Karen Sepucha, Elissa Ozanne, Sanja Percac-Lima, Emily Bergin, Courtney Goodwin, Caity Miller, Camille Harris, Richard J. Barth, Rebecca Aft, Sheldon Feldman, Amy E. Cyr, Christina V. Angeles, Shuai Jiang, Glyn Elwyn
Summary: Women of lower socioeconomic status with early-stage breast cancer may face communication challenges and lower satisfaction with surgery compared to those with higher SES. This study aimed to support women in making breast cancer surgery choices across different socioeconomic strata. Using conversation aids with pictures and text improved knowledge, decision process, shared decision making, and decision regret, especially among disadvantaged patients. Text-only conversation aids also led to improvements in decision process, coordinated care, and shared decision making compared to usual care.
Review
Health Care Sciences & Services
Renata W. Yen, Jenna Smith, Jaclyn Engel, Danielle Marie Muscat, Sian K. Smith, Julien Mancini, Lilisbeth Perestelo-Perez, Glyn Elwyn, A. James O'Malley, JoAnna K. Leyenaar, Olivia Mac, Tamara Cadet, Anik Giguere, Ashley J. Housten, Aisha Langford, Kirsten McCaffery, Marie-Anne Durand
Summary: The study found that patient decision aids and other shared decision-making interventions can improve knowledge and patient-clinician communication among socially disadvantaged populations, reduce decisional conflict, but do not decrease health inequalities. It is still unclear which intervention characteristics are most effective.
MEDICAL DECISION MAKING
(2021)
Article
Orthopedics
Bastiaan T. van Hoorn, Luke X. van Rossenberg, Xander Jacobs, George S. Sulkers, Mark van Heijl, David Ring
Summary: This study aimed to assess whether effective clinician communication and effort are related to patient health literacy, as well as identify other factors associated with effective clinician communication and effort.
CLINICAL ORTHOPAEDICS AND RELATED RESEARCH
(2021)
Article
Medicine, General & Internal
Kai Wehkamp, Felicia Beatrice Kiefer, Friedemann Geiger, Fueloep Scheibler, Jens Ulrich Rueffer, Norbert Donner-Banzhoff, Cornelia Betsch
Summary: Health literacy is essential for informed decision-making, and digital EbPDAs can effectively improve specific health literacy for populations, especially concerning important personal decisions. These tools may also be beneficial for targeting vulnerable populations, showing consistent effects across different levels of education. Future studies may explore the potential broader impact of EbPDAs on general health literacy beyond specific diseases.
PATIENT PREFERENCE AND ADHERENCE
(2021)
Article
Surgery
Adam Timothy Lucy, Stephanie L. L. Rakestraw, Courtney Stringer, Daniel Chu, Jayleen Grams, Richard Stahl, Margaux N. N. Mustian
Summary: This study assessed and compared the readability of online webpages and electronic medical record (EMR) patient education materials (PEM) for bariatric surgery. The results showed that webpages had lower readability levels compared to the recommended reading level, while EMR materials met the recommended reading level. This readability gap may impact barriers to surgery and postoperative outcomes.
SURGICAL ENDOSCOPY AND OTHER INTERVENTIONAL TECHNIQUES
(2023)
Article
Radiology, Nuclear Medicine & Medical Imaging
Shanmukha Srinivas, Isabel G. Newton, Maciej Waradzyn, Nishita Kothary, Eric J. Keller
Summary: The purpose of this study was to evaluate the impact of patient decision aids (PDAs) on understanding and satisfaction among patients undergoing informed consent conversations before outpatient image-guided procedures. The study found that patients who received PDAs had greater understanding and satisfaction regarding the procedure's benefits, risks, and alternatives. The implementation of PDAs did not require additional clinician time or effort.
AMERICAN JOURNAL OF ROENTGENOLOGY
(2023)
Article
Oncology
Anna Rauzi, Lauren E. Powell, McKenzie White, Saranya Prathibha, Jane Yuet Ching Hui
Summary: This study evaluates the readability of patient education materials on breast cancer surgery from National Cancer Institute-designated cancer centers and top Internet search results. The findings show that these materials are generally written at a higher reading level than the recommended level by the National Institutes of Health.
ANNALS OF SURGICAL ONCOLOGY
(2023)
Article
Public, Environmental & Occupational Health
Alia Almoajel, Samar Alshamrani, Mesnad Alyabsi
Summary: This study aims to investigate the impact of e-health literacy on breast cancer literacy among Saudi women. The findings reveal that the participants have a high level of e-health literacy, which is correlated to their increased level of breast cancer literacy. The study emphasizes the importance of e-health literacy about breast cancer.
FRONTIERS IN PUBLIC HEALTH
(2022)
Article
Medicine, General & Internal
Stacy Loeb, Joseph E. Ravenell, Scarlett Lin Gomez, Hala T. Borno, Katherine Siu, Tatiana Sanchez Nolasco, Nataliya Byrne, Godfrey Wilson, Derek M. Griffith, Rob Crocker, Robert Sherman, Samuel L. Washington, Aisha T. Langford
Summary: Black men have a higher risk of prostate cancer compared with White men, but they are underrepresented in online content about prostate cancer. Trust in the content is influenced by racial representation and patients have more medical mistrust than physicians.
Article
Oncology
Zhi Ven Fong, Pei-Wen Lim, Ryan Hendrix, Carlos Fernandez-del Castillo, Ryan D. Nipp, James M. Lindberg, Giles F. Whalen, William Kastrinakis, Motaz Qadan, Cristina R. Ferrone, Andrew L. Warshaw, Keith D. Lillemoe, David C. Chang, Lara N. Traeger
Summary: This study explored how patients and caregivers select hospitals for complex cancer care and identified six broad domains that characterized hospital selection considerations, including hospital factors, team characteristics, travel distance, referral or recommendation, continuity of care, and insurance considerations. The study found that participants at different types of medical centers had similar considerations but with some differences, such as access to clinical trials for participants at metropolitan centers and insurance considerations for participants at urban/suburban centers.
ANNALS OF SURGICAL ONCOLOGY
(2021)
Article
Health Care Sciences & Services
Danielle M. Muscat, Heather L. Shepherd, Don Nutbeam, Lyndal Trevena, Kirsten J. McCaffery
Summary: This paper presents an integrated model that aims to enhance patient engagement in healthcare by drawing on the strengths of health literacy and shared decision-making concepts. The model includes addressing patients' skills and capacities, as well as modifying written and verbal information. It proposes an expanded model of shared decision-making that incorporates health literacy concepts and promotes two-tiered intervention methods to improve communication targeting and personalization and support the development of transferable health literacy skills among patients.
JOURNAL OF GENERAL INTERNAL MEDICINE
(2021)
Article
Medicine, General & Internal
George Boundouki, Rebecca Wilson, Paula Duxbury, Julia Henderson, Laura Ballance, Julie Wray, Vivienne Appanah, Ibrahim Ibrahim, James Harvey, Cliona Clare Kirwan
Summary: Through "listening events", the study found that female participants consistently focused on improving methods of information dissemination and education on breast cancer symptoms, which differed from the research priorities identified by scientists and healthcare professionals. There was also a strong emphasis on quality of life-related issues such as treatment side effects.
Article
Public, Environmental & Occupational Health
Julia C. M. van Weert, Monique C. Alblas, Liset van Dijk, Jesse Jansen
Summary: This study investigated the preference for and understanding of graph formats presenting risk information among younger and older adults. Older adults were found to have better understanding of tables, while preferring clock, pie, or bar charts. Age, numeracy, and graph literacy were shown to have an impact on information understanding.
PATIENT EDUCATION AND COUNSELING
(2021)
Article
Oncology
Paul K. M. Poon, King Wa Tam, Thomas Lam, Arthur K. C. Luk, Winnie C. W. Chu, Polly Cheung, Samuel Y. S. Wong, Joseph J. Y. Sung
Summary: Low HL is associated with low mammography screening participation. This study surveyed participants of a cancer screening program and used validated tools and health belief model to assess the relationship between HL and screening-related beliefs and risk perception.
FRONTIERS IN ONCOLOGY
(2023)
Article
Surgery
Linda E. Sousse, David N. Herndon, Clark R. Andersen, Arham Ali, Nicole C. Benjamin, Thomas Granchi, Oscar E. Suman, Ronald P. Mlcak
JOURNAL OF THE AMERICAN COLLEGE OF SURGEONS
(2015)
Review
Public, Environmental & Occupational Health
Robert J. Volk, Suzanne K. Linder, Maria A. Lopez-Olivo, Geetanjali R. Kamath, Daniel S. Reuland, Smita S. Saraykar, Viola B. Leal, Michael P. Pignone
AMERICAN JOURNAL OF PREVENTIVE MEDICINE
(2016)
Review
Medical Informatics
Kimberly R. Enard, Patricia Dolan Mullen, Geetanjali R. Kamath, Nickell M. Dixon, Robert J. Volk
BMC MEDICAL INFORMATICS AND DECISION MAKING
(2016)
Article
Oncology
Mehmet I. Gokce, Xuemei Wang, Jacqueline Frost, Pamela Roberson, Robert J. Volk, Durado Brooks, Steven E. Canfield, Curtis A. Pettaway
Article
Oncology
Ashley J. Housten, Lisa M. Lowenstein, Viola B. Leal, Robert J. Volk
JOURNAL OF CANCER EDUCATION
(2018)
Article
Cardiac & Cardiovascular Systems
Kristin M. Kostick, Charles G. Minard, L. A. Wilhelms, Estevan Delgado, Mackenzie Abraham, Courtenay R. Bruce, Jerry D. Estep, Matthias Loebe, Robert J. Volk, J. S. Blumenthal-Barby
JOURNAL OF HEART AND LUNG TRANSPLANTATION
(2016)
Article
Urology & Nephrology
Sarathi Kalra, Spyridon Basourakos, Angela Abouassi, Mary Achim, Robert J. Volk, Karen E. Hoffman, John W. Davis, Jeri Kim
NATURE REVIEWS UROLOGY
(2016)
Review
Oncology
Pierre Blanchard, Robert J. Volk, Jolie Ringash, Susan K. Peterson, Katherine A. Hutcheson, Steven J. Frank
Article
Critical Care Medicine
Kathleen S. Romanowski, Alice Fagin, Bridget Werling, Gretchen Kass, Junlin Liao, Thomas Granchi, Gerald P. Kealey, Lucy Wibbenmeyer
JOURNAL OF BURN CARE & RESEARCH
(2017)
Article
Critical Care Medicine
Hala Bedri, Kathleen S. Romanowski, Junlin Liao, Ghassan Al-Ramahi, Jason Heard, Thomas Granchi, Lucy Wibbenmeyer
JOURNAL OF BURN CARE & RESEARCH
(2017)
Editorial Material
Public, Environmental & Occupational Health
Richard L. Street, Robert J. Volk, Lisa Lowenstein, C. Michael Fordis
PATIENT EDUCATION AND COUNSELING
(2017)
Article
Health Care Sciences & Services
Scott B. Cantor, Ashish A. Deshmukh, Murray D. Krahn, Robert J. Volk
HEALTH EXPECTATIONS
(2015)
Article
Clinical Neurology
K. Rao, J. M. Engelbart, J. Yanik, J. Hall, S. Swenson, B. Policeni, J. Maley, C. Galet, T. Granchi, D. A. Skeete
Summary: This study evaluated the discrepancies between primary and secondary radiology interpretations of cervical spine CT scans in patients with blunt trauma transferred to a higher level of care. The findings showed that secondary interpretation improved the sensitivity and specificity in detecting cervical spine fractures. Moreover, the study assessed the clinical implications of missed cervical spine fractures on patient outcomes.
AMERICAN JOURNAL OF NEURORADIOLOGY
(2021)
Article
Public, Environmental & Occupational Health
Omotola S. Ashorobi, Jacqueline Frost, Xuemei Wang, Pamela Roberson, E. Lin, Robert J. Volk, David S. Lopez, Lovell A. Jones, Curtis A. Pettaway
AMERICAN JOURNAL OF MENS HEALTH
(2017)
Article
Oncology
Kalatu R. Davies, Abenaa M. Brewster, Isabelle Bedrosian, Patricia A. Parker, Melissa A. Crosby, Susan K. Peterson, Yu Shen, Robert J. Volk, Scott B. Cantor
BREAST CANCER RESEARCH
(2016)
Article
Public, Environmental & Occupational Health
Noora Jawad, Faisal F. Hakeem, Wael Sabbah
Summary: This study aims to examine socioeconomic and ethnic variations in the provision of health advice by dental professionals. The findings indicate the prominent roles of education level, ethnicity, and smoking status in the provision of health advice. The study emphasizes the need for targeted interventions to promote equity and cultural competence in delivering health advice in dental settings.
PATIENT EDUCATION AND COUNSELING
(2024)
Review
Public, Environmental & Occupational Health
Katherine Miles, Bernadette O'Neill, Shuangyu Li
Summary: This study conducted a meta-ethnography to identify and synthesize guidance for optimizing feedback interactions in undergraduate clinical communication simulations. The findings led to the development of a new Feedback Kidney Model, which can guide medical education and future research on feedback in promoting learning. Incorporating meta-cognitive training and utilizing the model can help improve students' learning and communication with patients through on-site face-to-face feedback.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Ellen Van de Velde, Ann Van Hecke, Kristof Eeckloo, Simon Malfait
Summary: This study investigates the suitability of experience-based co-design as a method for designing bedside handover in mental health care, and finds that it is a suitable method for enhancing patient involvement in nursing handovers in a general hospital's mental healthcare unit.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Yasmine Probst, Maddison Luscombe, Marta Hilfischer, Vivienne Guan, Lauren Houston
Summary: This study explores the interpretation of MS-targeted nutrition messages using semi-structured interviews. The findings reveal that dietary changes made by patients with MS after diagnosis are a coping mechanism to address uncertainty, fear of disease progression, and the risk of relapse. The admiration and skepticism towards extremist MS diets depend on individual vulnerability and support from healthcare professionals. The unique MS journey influences the interpretation of the messages, driven by engagement, practicality, and credibility.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Aisha T. Langford, Kerli Orellana, Nancy Buderer, Katerina Andreadis, Stephen K. Williams
Summary: This study examined the associations between digital health, sociodemographic factors, and medical conditions on patient-centered communication (PCC). The results suggested that age, education level, household income, and history of hypertension were related to the quality of PCC.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Danielle Huisman, Taylor Burrows, Louise Sweeney, Kirsty Bannister, Rona Moss-Morris
Summary: This study found limited information on symptoms during remission of inflammatory bowel disease (IBD) on readily searchable patient websites, which fails to adequately explain the persistence of symptoms during remission for patients.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Bethan Benwell, Maria Erofeeva, Catrin S. Rhys
Summary: This study examined how language choices made by call handlers affect the progress of complaint calls and the stance of the callers. The findings showed that displaying affiliation at relevant moments in the conversation helps advance the call and de-escalate the complaint, while the absence or misplacement of affiliation may lead to escalation. Early intervention in establishing affiliation with the caller's concerns and reasoning is crucial for de-escalation.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Sarah V. Hantzmon, Clemontina A. Davenport, Maya N. Das Gupta, Temi A. Adekunle, Sarah E. Gaither, Maren K. Olsen, Sandro O. Pinheiro, Kimberly S. Johnson, Hannah Mahoney, Allison Falls, Lauren Lloyd, Kathryn I. Pollak
Summary: This study examined the impact of racial differences on patient trust and distrust in physician-patient interactions through audio-recorded cardiologist-patient encounters. The results showed that Black patients had lower expressions of trust and a higher level of guardedness compared to White patients. It suggests that White clinicians can improve communication with Black patients to increase expressions of trust.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Caitlin S. Sayegh, Ellen Iverson, Karen K. Macdonell, Shinyi Wu, Marvin Belzer
Summary: This study applied a Supportive Accountability Model to examine youth's perception of remote human coaching and automated reminders for medication adherence. The findings indicated that both coaching and automated reminders were effective in improving adherence, with coaching being viewed as more potent and engaging. Phone calls enhanced the sense of supportive accountability, but texts were more convenient and flexible. Individual preferences varied.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Jennifer Necci Dineen, Mitchell Doucette, Mekaila Carey, Kerri M. Raissian
Summary: This paper aims to understand the facilitators and barriers perceived by general practice physicians in initiating anticipatory guidance around firearm safety. Qualitative interviews were conducted with 18 GPs to explore their perspectives. Barriers to providing secure firearm storage counseling include inadequate screening mechanisms, limited understanding of who is at risk for firearm injury, time pressures, concerns about patient receptivity, and a need for training. Structural issues need to be addressed before focusing on how to have conversations about firearm safety.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Henrike J. Westerink, Cato C. Bresser, Mirjam M. Garvelink, Cornelia F. van Udenkraan, Ouisam Zouitni, Hans A. J. Bart, Philip J. van der Wees, Paul B. van der Nat
Summary: This study aims to explore the perspectives and needs of healthcare professionals (HCPs) and patients regarding the use of outcome data in consultations. The findings indicate that HCPs do not routinely use aggregated outcome data in consultations due to various barriers. Patients, however, consider aggregated outcome data important but have different preferences based on their health conditions.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Bronwyn Newman, Mashreka Sarwar, Ashfaq Chauhan, Reema Harrison
Summary: Co-facilitation presents an opportunity to address inequity in codesign, and through our experiences in the CanEngage project, we have identified three mechanisms to promote equity.
PATIENT EDUCATION AND COUNSELING
(2024)
Review
Public, Environmental & Occupational Health
Andre Vaagan, Mette Haaland-Overby, Alison Axisa Eriksen, Kari Fredriksen, Vibeke Stenov, Cecilie Varsi, Brynja Ingadottir, Bryan Richard Cleal, Anita Royneberg Alvheim, Karl Fredrik Westermann, Hilde Stromme, Olof Birna Kristjansdottir
Summary: This study summarizes the recent evidence on the feasibility, acceptability, and effectiveness of videoconference group-based patient and caregiver education. The results suggest that this education approach is highly feasible and acceptable, and may improve health outcomes for participants. However, the evidence of effectiveness is limited and the quality of studies varies. Further research is needed to establish the effectiveness of this education approach for different patient and caregiver groups.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Momoka Igarashi, Takayuki Kawaguchi, Takuma Shiozawa, Sosei Yamaguchi
Summary: The study aims to identify conversation topics, who initiated the topics, and differences in topics with and without the use of a shared decision-making (SDM) tool in psychiatric outpatient consultations. The findings show that daily life issues, especially related to work, were the main topics discussed, and the SDM tool seems to facilitate discussion of patients' concerns.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Qiwei Luna Wu, Grace Ellen Brannon
Summary: This study explores how patient-centered communication, media, and organizational factors influence patients' intentions to use telehealth. The findings suggest that positive healthcare experiences, organizational support, and quality media designs are associated with telehealth adoption.
PATIENT EDUCATION AND COUNSELING
(2024)