Identifying the unmet health needs of patients with congenital hypogonadotropic hypogonadism using a web-based needs assessment: implications for online interventions and peer-to-peer support

Utilization and Perceived Problems of Online Medical Resources and Search Tools Among Different Groups of European Physicians

(2013) Marlene Kritz et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Using Information Technology and Social Networking for Recruitment of Research Participants: Experience From an Exploratory Study of Pediatric Klinefelter Syndrome

(2013) Sharron Close et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

The internet user profile of Italian families of patients with rare diseases: a web survey

(2013) Alberto E Tozzi et al.   Orphanet Journal of Rare Diseases

Effectiveness of peer-led self-management coaching for patients recently diagnosed with Type 2 diabetes mellitus in primary care: a randomized controlled trial

(2012) I. van der Wulp et al.   DIABETIC MEDICINE

Increased frequency of anxiety, depression, quality of life and sexual life in young hypogonadotropic hypogonadal males and impacts of testosterone replacement therapy on these conditions

(2012) Umit Aydogan et al.   ENDOCRINE JOURNAL

Bone mineral density, body composition and bone turnover in patients with congenital hypogonadotropic hypogonadism

(2012) E.-M. Laitinen et al.   INTERNATIONAL JOURNAL OF ANDROLOGY

Effects of adjunctive peer support on perceptions of illness control and understanding in an online psychoeducation program for bipolar disorder: A randomised controlled trial

(2012) Judith Proudfoot et al.   JOURNAL OF AFFECTIVE DISORDERS

Approach to the Male Patient with Congenital Hypogonadotropic Hypogonadism

(2012) Jacques Young   JOURNAL OF CLINICAL ENDOCRINOLOGY & METABOLISM

Broad Reach and Targeted Recruitment Using Facebook for an Online Survey of Young Adult Substance Use

(2012) Danielle E Ramo et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Crowdsourced Health Research Studies: An Important Emerging Complement to Clinical Trials in the Public Health Research Ecosystem

(2012) Melanie Swan   JOURNAL OF MEDICAL INTERNET RESEARCH

Kallmann syndrome

(2012) N. Smith et al.   BMJ-British Medical Journal

WikiBuild: A New Online Collaboration Process For Multistakeholder Tool Development and Consensus Building

(2011) Samir Gupta et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

WikiBuild: A New Application to Support Patient and Health Care Professional Involvement in the Development of Patient Support Tools

(2011) Patrick Michel Archambault   JOURNAL OF MEDICAL INTERNET RESEARCH

Managing the Personal Side of Health: How Patient Expertise Differs from the Expertise of Clinicians

(2011) Andrea Hartzler et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Quality of life in rare genetic conditions: A systematic review of the literature

(2010) Julie S. Cohen et al.   AMERICAN JOURNAL OF MEDICAL GENETICS PART A

Non-syndromic congenital hypogonadotropic hypogonadism: clinical presentation and genotype–phenotype relationships

(2010) Frédéric Brioude et al.   EUROPEAN JOURNAL OF ENDOCRINOLOGY

Type 2 diabetes mellitus and testosterone: a meta-analysis study

(2010) G. Corona et al.   INTERNATIONAL JOURNAL OF ANDROLOGY

Testosterone, sex hormone-binding globulin and the metabolic syndrome: a systematic review and meta-analysis of observational studies

(2010) J. S. Brand et al.   INTERNATIONAL JOURNAL OF EPIDEMIOLOGY

Diabetes empowerment related to Pender's Health Promotion Model: A meta-synthesis

(2010) Agnes Yin Kwan Ho et al.   Nursing & Health Sciences

The role of evidence-based medicine and clinical trials in rare genetic disorders

(2009) MC Kruer et al.   CLINICAL GENETICS

What, if anything, is specific about having a rare disorder? Patients’ judgements on being ill and being rare

(2009) Caroline Huyard   HEALTH EXPECTATIONS

Patients’ perceptions of discrimination during hospitalization

(2009) Patricia Hudelson et al.   HEALTH EXPECTATIONS

Bone Mineral Density in Estrogen-Deficient Young Women

(2009) Vaishali B. Popat et al.   JOURNAL OF CLINICAL ENDOCRINOLOGY & METABOLISM

A combined analysis of data to identify predictive factors for spermatogenesis in men with hypogonadotropic hypogonadism treated with recombinant human follicle-stimulating hormone and human chorionic gonadotropin

(2008) David W. Warne et al.   FERTILITY AND STERILITY

Developing a national collaborative study system for rare genetic diseases

(2008) Michael S Watson et al.   GENETICS IN MEDICINE

Androgen Deprivation Therapy in Prostate Cancer and Metabolic Risk for Atherosclerosis

(2008) Sadeka Shahani et al.   JOURNAL OF CLINICAL ENDOCRINOLOGY & METABOLISM

Induction of Spermatogenesis and Fertility during Gonadotropin Treatment of Gonadotropin-Deficient Infertile Men: Predictors of Fertility Outcome

(2008) Peter Y. Liu et al.   JOURNAL OF CLINICAL ENDOCRINOLOGY & METABOLISM

Validation of Screening Questions for Limited Health Literacy in a Large VA Outpatient Population

(2008) Lisa D. Chew et al.   JOURNAL OF GENERAL INTERNAL MEDICINE

Empowerment of patients: lessons from the rare diseases community

(2008) Ségolène Aymé et al.   LANCET