Article
Oncology
Francois Chaumier, Jean-Benoit Hardouin, Marianne Bourdon
Summary: This study aimed to develop and validate a brief French tool for assessing supportive and palliative care needs in cancer patients. Through literature review, expert evaluation, and patient interviews, a set of relevant and effective items and questions were identified. This tool can be used in clinical practice.
EUROPEAN JOURNAL OF CANCER CARE
(2023)
Article
Oncology
Bang Wool Eom, Joongyub Lee, In Seob Lee, Young-Gil Son, Keun Won Ryu, Sung Geun Kim, Hyoung-Il Kim, Young-Woo Kim, Seong-Ho Kong, Oh Kyoung Kwon, Ji-Ho Park, Ji Yeong An, Chang Hyun Kim, Byoung-Jo Suh, Hong Man Yoon, Myoung Won Son, Ji Yeon Park, Jong-Min Park, Sang-Ho Jeong, Moon-Won Yoo, Geum Jong Song, Han-Kwang Yang, Yun-Suhk Suh, Ki Bum Park, Sang-Hoon Ahn, Dong Woo Shin, Ye Seob Jee, Hye-Seong Ahn, Sol Lee, Jae Seok Min, Haejin In, Ahyoung Kim, Hoon Hur, Hyuk-Joon Lee
Summary: A symptom-focused quality of life questionnaire (KOQUSS-40) for gastric cancer patients post-gastrectomy was developed and validated, showing good model fit and correlation with clinical factors. The questionnaire includes 40 items across 11 domains and allows for robust comparison of surgical techniques in clinical trials.
CANCER RESEARCH AND TREATMENT
(2021)
Article
Ophthalmology
Anisha Sekaran, Mohith Shamdas, Robert J. Barry, Alastair K. Denniston, Philip Murray
Summary: A health utility value for BCR was created using TTO and SG utilities. The study found that among 28 BCR patients, 11 were willing to trade their remaining life for perfect vision and 6 were willing to take the risk of immediate death for perfect vision.
OCULAR IMMUNOLOGY AND INFLAMMATION
(2022)
Article
Ophthalmology
Hossein Ameri, Maryam Naser, Farzana Choudhury, Narsing A. Rao
Summary: In this study, a strong positive correlation was found between the largest isopter of Glodmann visual field and all standard ERG amplitudes in birdshot choriorctinopathy (BCR) patients. This novel finding highlights the role of ERG as an objective visual function test in monitoring disease activity.
ASIA-PACIFIC JOURNAL OF OPHTHALMOLOGY
(2021)
Article
Medicine, General & Internal
Dino Ferracci, Thibaud Mathis, Antoine Gavoille, Mathieu Gerfaud-Valentin, Arthur Bert, Meriem Hafidi, Philippe Denis, Olivier Loria, Laurent Kodjikian, Pascal Seve
Summary: The purpose of this study was to report the progression of patients initially treated with corticosteroids for birdshot chorioretinopathy (BSCR). A total of 39 BSCR patients were included in the study and followed up for =1 year. The study found that prolonged corticosteroid therapy resulted in inflammation control in 50% of BSCR patients, with low doses of cortisone (<5 mg/day) being sufficient to maintain this control.
JOURNAL OF CLINICAL MEDICINE
(2023)
Article
Multidisciplinary Sciences
Amandine Schmutz, Nathaniel Spofford, Walter Burghardt, Geert De Meyer
Summary: This article reports the development and validation of a canine quality of life instrument that is specifically designed to quantify wellbeing in the general dog population. The instrument includes a 32-question survey and covers multiple domains of canine wellbeing, providing useful insights on the wellbeing of dogs.
SCIENTIFIC REPORTS
(2022)
Article
Pediatrics
Andrea Catherine Quiroz Gamarra, Mary de Assis Carvalho, Nilton Carlos Machado
Summary: The objective of this study was to develop and validate a disease-specific questionnaire in Brazilian Portuguese language for assessing the Health-Related Quality of Life of children with functional constipation, applied to parents/caregivers. The questionnaire, named as Pediatric Functional Constipation Questionnaire-Parent Form (PedFCQuest-PR), was developed through a process of items generation, preliminary questionnaire elaboration, assessment by health professionals, identification of problems or inconsistencies, and improvement of the questions. The validation process involved 87 parents/caregivers and demonstrated strong internal consistency and validity of the PedFCQuest-PR.
JORNAL DE PEDIATRIA
(2022)
Article
Allergy
Bernardo Sousa-Pinto, Luis Filipe Azevedo, Marek Jutel, Ioana Agache, G. Walter Canonica, Wienczyslawa Czarlewski, Nikolaos G. Papadopoulos, Karl-Christian Bergmann, Philippe Devillier, Daniel Laune, Ludger Klimek, Aram Anto, Josep M. Anto, Patrik Eklund, Rute Almeida, Anna Bedbrook, Sinthia Bosnic-Anticevich, Helen A. Brough, Luisa Brussino, Victoria Cardona, Thomas Casale, Lorenzo Cecchi, Denis Charpin, Tomas Chivato, Elisio M. Costa, Alvaro A. Cruz, Stephanie Dramburg, Stephen R. Durham, Giulia De Feo, Roy Gerth van Wijk, Wystke J. Fokkens, Bilun Gemicioglu, Tari Haahtela, Maddalena Illario, Juan Carlos Ivancevich, Violeta Kvedariene, Piotr Kuna, Desiree E. Larenas-Linnemann, Michael Makris, Eve Mathieu-Dupas, Erik Melen, Mario Morais-Almeida, Ralph Moesges, Joaquim Mullol, Kari C. Nadeau, Nhan Pham-Thi, Robyn O'Hehir, Frederico S. Regateiro, Sietze Reitsma, Boleslaw Samolinski, Aziz Sheikh, Cristiana Stellato, Ana Todo-Bom, Peter Valentin Tomazic, Sanna Toppila-Salmi, Antonio Valero, Arunas Valiulis, Maria Teresa Ventura, Dana Wallace, Susan Waserman, Arzu Yorgancioglu, Govert Vries, Michiel Eerd, Petra Zieglmayer, Torsten Zuberbier, Oliver Pfaar, Joao Almeida Fonseca, Jean Bousquet
Summary: This study used real-life data to generate and validate combined symptom-medication scores (CSMSs). The cluster analysis-based CSMS showed the best performance, with medium-high validity, reliability, and accuracy.
Article
Multidisciplinary Sciences
Eujin Choi, Min-Sun Kim, Juhee Cho, Sooyeon Kim, Eun Kyung Kwon, Youngha Kim, Danbee Kang, Sung Yoon Cho
Summary: This study aimed to develop and validate the Distress of Self-Injection (DSI) scale for patients with diabetes aged ≥10 years. The DSI scale with 20 questions in three domains (physical, psychosocial, and process) was found to have good structural validity and strong correlation with the Korean version of the Problem Areas in Diabetes (PAID-K) scale.
SCIENTIFIC REPORTS
(2023)
Article
Allergy
Rebecca C. Knibb, Aarnoud P. Huissoon, Richard Baretto, Anjali Ekbote, Sham Onyango-Odera, Cassandra Screti, Kristina L. Newman, Mamidipudi T. Krishna
Summary: The study developed and validated a Quality of Life scale for adults with anaphylaxis, showing good internal reliability and construct validity. The scale can help healthcare professionals understand the impact of anaphylaxis on adult patients and guide allergy management and psychological intervention.
JOURNAL OF ALLERGY AND CLINICAL IMMUNOLOGY-IN PRACTICE
(2022)
Article
Rehabilitation
Seung Hyeon Yang, Yoonhye Ji, Yong Seung Lee, Eunjeong Bae, Jieun Park, Hyeseon Yun, Konrad M. Szymanski, Chang Gi Park, Sang Woon Kim, Eun Kyoung Choi
Summary: The purpose of this study was to translate and validate the QUALAS-T into Korean to evaluate health-related quality of life in adolescents with spina bifida. The QUALAS-T-K demonstrated excellent internal consistency, stability, and correlations with the KIDSCREEN-27. It is considered a convenient and reliable tool for assessing the HRQOL of adolescents with spina bifida.
DISABILITY AND REHABILITATION
(2023)
Article
Gastroenterology & Hepatology
Qiyuan Qin, Binjie Huang, Aiwen Wu, Jiale Gao, Xinzhi Liu, Wuteng Cao, Tenghui Ma, Yingyi Kuang, Jirui Guo, Qian Wu, Biyan Shao, Qi Guan, Hongwei Yao, Xiaoyan Zhang, Hui Wang
Summary: This study aimed to develop and validate a risk model to improve the prediction of major bowel dysfunction after restorative rectal cancer resection with neoadjuvant radiotherapy. Clinical characteristics and imaging parameters were evaluated using machine learning algorithms, and the prediction model was constructed based on logistic regression. The model demonstrated high accuracy in predicting major bowel dysfunction.
Article
Geriatrics & Gerontology
Koji Amano, Tatsuya Morita, Tomofumi Miura, Naoharu Mori, Ryohei Tatara, Takaomi Kessoku, Yoshinobu Matsuda, Keita Tagami, Hiroyuki Otani, Masanori Mori, Tomohiko Taniyama, Nobuhisa Nakajima, Erika Nakanishi, Jun Kako, Hiroto Ishiki, Hiromichi Matsuoka, Eriko Satomi, Jane B. Hopkinson, Vickie E. Baracos, Mitsunori Miyashita
Summary: This study aimed to validate tools for evaluating eating-related distress (ERD) among advanced cancer patients and family caregivers. The researchers developed and validated questionnaires through exploratory factor analysis, face validity, and content validity. The tools showed good concurrent validity, internal consistency, and test-retest reliability. The developed tools can effectively measure ERD experienced by patients and family caregivers.
JOURNAL OF CACHEXIA SARCOPENIA AND MUSCLE
(2023)
Article
Ophthalmology
Sahar Gelfman, Dominique Monnet, Ann J. Ligocki, Thierry Tabary, Arden Moscati, Xiaodong Bai, Jan Freudenberg, Blerta Cooper, Jack A. Kosmicki, Sarah Wolf, Manuel A. R. Ferreira, John Overton, Jonathan Weyne, Eli A. Stahl, Aris Baras, Carmelo Romano, Jacques H. M. Cohen, Giovanni Coppola, Antoine Brezin
Summary: This study identified that carrying a second allele from the HLA-Aw19 broad antigen family increases the risk for Birdshot chorioretinopathy (BSCR) and that ERAP1 and ERAP2 haplotypes modulate disease risk. A combination of ERAP1/ERAP2 risk genotypes with two copies of HLA-Aw19 alleles further increases the risk of BSCR.
INVESTIGATIVE OPHTHALMOLOGY & VISUAL SCIENCE
(2021)
Article
Health Care Sciences & Services
Uta Guhne, Marie Dorow, Jessica Grothe, Janine Stein, Margrit Loebner, Judith Dams, Joanna Coast, Philip Kinghorn, Hans-Helmut Koenig, Steffi G. Riedel-Heller
Summary: The ICECAP-Supportive Care Measure is a self-complete questionnaire developed in the UK to evaluate palliative and supportive care by measuring patient's wellbeing in terms of 'capability', with high potential for broad international use. The study translated this measure into German and validated its content, showing excellent validity at both item- and scale-level, making it a suitable tool for assessing quality of life at the end of life in various settings.
BMC PALLIATIVE CARE
(2021)
