Article
Obstetrics & Gynecology
Laura Linehan, Marita Hennessy, Keelin O'Donoghue
Summary: This study aimed to evaluate the care of women/couples with infertility attending a recurrent miscarriage (RM) clinic in Ireland. The findings showed that although most patients received care in line with guideline-based key performance indicators (KPIs), there were areas for improvement in information provision and certain investigations.
EUROPEAN JOURNAL OF OBSTETRICS & GYNECOLOGY AND REPRODUCTIVE BIOLOGY
(2023)
Article
Obstetrics & Gynecology
N. A. du Fosse, E. E. L. O. Lashley, T. T. Treurniet, J. M. M. van Lith, S. le Cessie, H. Boosman, M. L. P. van Der Hoorn
Summary: While both men and women affected by recurrent pregnancy loss are in need of supportive care, their preferences may differ. Current supportive care services may not completely address the needs of men. Health care professionals should pay attention to the preferences of both partners and consider developing specific supportive care programs for men.
BMC PREGNANCY AND CHILDBIRTH
(2021)
Article
Obstetrics & Gynecology
M. M. J. van den Berg, E. van den Boogaard, R. P. M. G. Hermens, F. van der Veen, M. Goddijn, P. J. Hajenius
Summary: The adherence to guideline-based quality indicators for early pregnancy assessment units (EPAUs) was similar for hospitals with and without an EPAU in the Netherlands. Non-adherence rates were relatively low, with hospitals with an EPAU showing better performance in certain areas such as the use of a standard digital system for ultrasound findings and clear explanation of treatment options. Hospitals without an EPAU had more significant deficiencies in some aspects.
REPRODUCTIVE BIOMEDICINE ONLINE
(2022)
Article
Obstetrics & Gynecology
Haley G. Genovese, Dana B. Mcqueen
Summary: This manuscript reports on the prevalence of early pregnancy loss and discusses the impact of improved pregnancy diagnosis, as well as the influence of increased age and body mass index at first birth.
FERTILITY AND STERILITY
(2023)
Article
Chemistry, Medicinal
Daniela Strosova, Jan Tuzil, Barbora Velackova Turkova, Barbora Filkova Pilnackova, Lada Lzicarova de Souza, Helena Dolezalova, Michaela Raskova, Michal Dufek, Tomas Dolezal
Summary: This study aimed to investigate patient adherence to oral disease-modifying therapy for multiple sclerosis, teriflunomide, and found that low adherence was associated with previous treatment experiences and confidence in one's ability to take medication correctly.
Article
Health Care Sciences & Services
Linan Zeng, Lise M. Helsingen, Michael Bretthauer, Thomas Agoritsas, Per O. Vandvik, Reem A. Mustafa, Jason Busse, Reed A. C. Siemieniuk, Lyubov Lytvyn, Shelly-Anne Li, Mengting Yang, Lijiao Yan, Lingli Zhang, Romina Brignardello-Petersen, Gordon H. Guyatt
Summary: The objective of this study was to develop and evaluate a framework for incorporating patient values and preferences into guideline recommendations. The study design involved creating panel surveys to gather panelists' views and inform discussions on recommendations.
JOURNAL OF CLINICAL EPIDEMIOLOGY
(2023)
Article
Health Care Sciences & Services
Caragh Flannery, Marita Hennessy, Rebecca Dennehy, Karen Matvienko-Sikar, Con Lucey, Jennifer Ui Dhubhgain, Keelin O'Donoghue
Summary: This study explored the experiences of individuals who have received care for recurrent miscarriage and identified patient-centered care items associated with their overall care experience. The findings suggest that improving information provision, supportive care, communication between healthcare professionals and patients, and care coordination between different healthcare settings may enhance patients' experiences of miscarriage care.
BMC HEALTH SERVICES RESEARCH
(2023)
Article
Health Care Sciences & Services
Nikhil R. Yedulla, Majd T. Faraj, Alaa A. Hazime, Jung Ho Gong, Amy Tang, Charles S. Day
Summary: The objective of this study is to develop a decision aid for orthopedic patients to choose between virtual or in-person care and assess patient preferences for these modalities in hand clinic. The results show that the decision aid significantly improves patients' knowledge and decision-making ability, and most patients understand their options and are ready to make a care modality decision.
TELEMEDICINE AND E-HEALTH
(2023)
Article
Pediatrics
Kyra L. Rosen, Olivia Cobb, Deann Gavney, Stephanie M. Morris, David H. Gutmann
Summary: This study aimed to evaluate sociodemographic and medical predictors of patient return to a neurofibromatosis subspecialty clinic. The findings showed that patients who identified as Black and/or African American, had a diagnosis of caf similar to e-au-lait macules at their initial visit, were from a rural area, were older, or lived farther from the clinic were less likely to return. These findings support the need for tailored communication and monitoring interventions to improve care for children with neurofibromatosis type 1.
JOURNAL OF PEDIATRICS
(2022)
Article
Geriatrics & Gerontology
Sonia Lech, Julie L. O'Sullivan, Johanna Drewelies, Wolfram Herrmann, Robert P. Spang, Jan-Niklas Voigt-Antons, Johanna Nordheim, Paul Gellert
Summary: The study found that adherence to the German Dementia Guideline in primary care was generally high, but there were significant differences in specific recommendations. The findings highlight the importance of guidelines for care provision and the need for better tailoring and development of dementia guidelines for GPs in primary care setting.
Article
Obstetrics & Gynecology
Ruth Bender Atik, Ole Bjarne Christiansen, Janine Elson, Astrid Marie Kolte, Sheena Lewis, Saskia Middeldorp, Saria Mcheik, Braulio Peramo, Siobhan Quenby, Henriette Svarre Nielsen, Marie-Louise van der Hoorn, Nathalie Vermeulen, Mariette Goddijn
Summary: The guideline on the management of women with recurrent pregnancy loss (RPL) has been updated based on the best available evidence from 2017 to 2022. The updated guideline includes 11 updated recommendations and one new recommendation on adenomyosis investigation.
HUMAN REPRODUCTION OPEN
(2022)
Article
Oncology
Friederike Braulke, Kathrin Kober, Stefan Rieken, Tonia Brand, Tobias Hartz, Stefanie Seipke, Thomas Asendorf, Jorg Haier
Summary: Interdisciplinary tumor boards (ITBs) are crucial in standard cancer care as they provide guidelines-guided treatment plans tailored to the patient's needs in a multi-professional team. However, there is a lack of (inter)national definitions on how to measure the level of implementation. This study presents the results of 4 years of ITB adherence analyses in a bicentric German Comprehensive Cancer Center (CCC).
JOURNAL OF CANCER RESEARCH AND CLINICAL ONCOLOGY
(2023)
Article
Oncology
Bethany A. Rhoten, Jessie Sellers, Breanna Baraff, Kelly H. Holler, Sheila H. Ridner
Summary: Patients with recurrent head and neck cancer prioritize healthcare provider recommendations and treatment success in treatment decision-making, future research should focus on rapidly identifying patient priorities at the time of recurrence diagnosis.
SUPPORTIVE CARE IN CANCER
(2021)
Article
Medicine, General & Internal
Mitchell Tang, Carter H. Nakamoto, Ariel D. Stern, Jose R. Zubizarreta, Felippe O. Marcondes, Lori Uscher-Pines, Lee H. Schwamm, Ateev Mehrotra
Summary: Remote patient monitoring (RPM) has shown positive impacts on hypertension care outcomes, but it also leads to increased spending.
ANNALS OF INTERNAL MEDICINE
(2023)
Review
Endocrinology & Metabolism
Yanpeng Dai, Junjie Liu, Enwu Yuan, Yushan Li, Ying Shi, Linlin Zhang
Summary: This meta-analysis explores the relationship among traditional semen parameters, SDF, and unexplained RM. The results show that couples with unexplained RM have significantly increased levels of SDF and significantly decreased levels of total motility and progressive motility. Therefore, SDF assay may be important in the evaluation of couples with unexplained RM.
FRONTIERS IN ENDOCRINOLOGY
(2022)
Article
Biochemistry & Molecular Biology
Ivy van Dijke, Phillis Lakeman, Inge B. Mathijssen, Mariette Goddijn, Martina C. Cornel, Lidewij Henneman
Summary: For couples at risk of a specific genetic disorder, the availability of new genetic technologies such as NIPD, GGE, and SGE may impact their reproductive decision-making process. Safety, burden, and moral considerations play crucial roles in their preferences for different options. Understanding these perspectives can aid counselors in guiding couples through increasingly complex reproductive choices.
EUROPEAN JOURNAL OF HUMAN GENETICS
(2021)
Article
Obstetrics & Gynecology
Nienke van Welie, Clarabelle T. Pham, Joukje van Rijswijk, Kim Dreyer, Harold R. Verhoeve, Annemieke Hoek, Jan Peter de Bruin, Annemiek W. Nap, Machiel H. A. van Hooff, Mariette Goddijn, Angelo B. Hooker, Anna P. Gijsen, Maaike A. F. Traas, Jesper M. J. Smeenk, Alexander Sluijmer, Marieke J. Lambers, Gijsbertus A. van Unnik, Cornelia H. de Koning, Alexander Mozes, Catharina C. M. Timmerman, Cornelis B. Lambalk, Jonathan D. Karnon, Velja Mijatovic, Ben Willem J. Mol
Summary: Research comparing oil-based contrast versus water-based contrast in hysterosalpingography for infertile women found that the oil-based contrast resulted in a 5% increase in ongoing pregnancy rate and a 7.5% increase in live birth rate over a 5-year period, with similar costs to water-based contrast.
REPRODUCTIVE BIOMEDICINE ONLINE
(2021)
Article
Hematology
Eva N. Hamulyak, Luuk J. J. Scheres, Mariette Goddijn, Saskia Middeldorp
Summary: Aspirin and heparin are commonly used to reduce the risk of recurrent pregnancy loss in women with antiphospholipid syndrome. Evidence suggests that heparin plus aspirin may improve live birth rates in these women, but the certainty of this evidence is low.
JOURNAL OF THROMBOSIS AND HAEMOSTASIS
(2021)
Article
Obstetrics & Gynecology
J. F. W. Rikken, C. R. Kowalik, M. H. Emanuel, M. Y. Bongers, T. Spinder, F. W. Jansen, A. G. M. G. J. Mulders, R. Padmehr, T. J. Clark, H. A. van Vliet, M. D. Stephenson, F. van der Veen, B. W. J. Mol, M. van Wely, M. Goddijn
Summary: According to an international study, hysteroscopic septum resection does not improve the chance of live birth in women with a septate uterus. Despite limitations, the study provides high-level evidence on this issue.
HUMAN REPRODUCTION
(2021)
Review
Medicine, General & Internal
Arri Coomarasamy, Rima K. Dhillon-Smith, Argyro Papadopoulou, Maya Al-Memar, Jane Brewin, Vikki M. Abrahams, Abha Maheshwari, Ole B. Christiansen, Mary D. Stephenson, Mariette Goddijn, Olufemi T. Oladapo, Chandrika N. Wijeyaratne, Debra Bick, Hassan Shehata, Rachel Small, Phillip R. Bennett, Lesley Regan, Raj Rai, Tom Bourne, Rajinder Kaur, Oonagh Pickering, Jan J. Brosens, Adam J. Devall, Ioannis D. Gallos, Siobhan Quenby
Summary: Women who have experienced recurrent miscarriages often have uncertainties about the causes, risks, necessary investigations, and treatments. This paper suggests individualized care and a minimum set of investigations and treatments for couples with a history of recurrent miscarriage, while emphasizing screening and care for mental health issues and future obstetric risks. Health care services may consider a graded care model to provide appropriate care for these couples.
Review
Medicine, General & Internal
Arri Coomarasamy, Ioannis D. Gallos, Argyro Papadopoulou, Rima K. Dhillon-Smith, Maya Al-Memar, Jane Brewin, Ole B. Christiansen, Mary D. Stephenson, Olufemi T. Oladapo, Chandrika N. Wijeyaratne, Rachel Small, Phillip R. Bennett, Lesley Regan, Mariette Goddijn, Adam J. Devall, Tom Bourne, Jan J. Brosens, Siobhan Quenby
Summary: The physical and psychological effects of miscarriage are often underestimated, with diagnostic challenges leading to delays in care and increased anxiety. Recommendations for comprehensive miscarriage care include reporting annual aggregate data, providing effective ultrasound services, and investing in training for healthcare providers.
Letter
Obstetrics & Gynecology
Luuk J. J. Scheres, Saskia Middeldorp, Mariette Goddijn
HUMAN REPRODUCTION
(2022)
Article
Obstetrics & Gynecology
Ruth Bender Atik, Ole Bjarne Christiansen, Janine Elson, Astrid Marie Kolte, Sheena Lewis, Saskia Middeldorp, Saria Mcheik, Braulio Peramo, Siobhan Quenby, Henriette Svarre Nielsen, Marie-Louise van der Hoorn, Nathalie Vermeulen, Mariette Goddijn
Summary: The guideline on the management of women with recurrent pregnancy loss (RPL) has been updated based on the best available evidence from 2017 to 2022. The updated guideline includes 11 updated recommendations and one new recommendation on adenomyosis investigation.
HUMAN REPRODUCTION OPEN
(2022)
Article
Obstetrics & Gynecology
Felicia Dreischor, Ellen T. M. Laan, Fleur Peeters, Karen Peeraer, Cornelis B. Lambalk, Mariette Goddijn, Inge M. Custers, Eline A. F. Dancet
Summary: Couples hope for fertility clinic staff to incorporate expectant management into the clinic trajectory, interact with both partners, and provide advice on common peer experiences, lifestyle management, distress, and sexual challenges.
HUMAN REPRODUCTION OPEN
(2022)
Article
Obstetrics & Gynecology
Guido de Wert, Sanne van der Hout, Mariette Goddijn, Rita Vassena, Lucy Frith, Nathalie Vermeulen, Ursula Eichenlaub-Ritter
Summary: Expanded carrier screening is being increasingly offered to patients seeking assisted reproduction, raising ethical concerns regarding the professional responsibilities and potential benefits and harms of such screenings. Some European fertility clinics already provide preconception ECS, prompting a need for ethical guidance in this area. Patients undergoing assisted reproduction may have a particular interest in preconception ECS due to the burdens they already face, leading to unique ethical questions that require consideration.
HUMAN REPRODUCTION OPEN
(2021)
Article
Obstetrics & Gynecology
T. Dahhan, F. van der Veen, A. M. E. Bos, M. Goddijn, E. A. F. Dancet
Summary: Through in-depth interviews, the study revealed that women newly diagnosed with breast cancer experienced the burden of fertility preservation, adopting a new identity as fertility patients, and coping with breast cancer through fertility preservation.
HUMAN REPRODUCTION OPEN
(2021)
Correction
Obstetrics & Gynecology
Guido de Wert, Sanne van der Hout, Mariette Goddijn, Rita Vassena, Lucy Frith, Nathalie Vermeulen, Ursula Eichenlaub-Ritter
HUMAN REPRODUCTION OPEN
(2021)
Article
Oncology
Mandy Spaan, Alexandra W. Van den Belt-Dusebout, Cornelis B. Lambalk, Hester H. van Boven, Roel Schats, Marian Kortman, Frank J. M. Broekmans, Joop S. E. Laven, Evert J. P. van Santbrink, Didi D. M. Braat, Lucette A. J. van der Westerlaken, Ben J. Cohlen, Astrid E. P. Cantineau, Jesper M. J. Smeenk, Minouche M. van Rumste, Mariette Goddijn, Ron J. T. van Golde, Paul A. M. Meeuwissen, Carl J. C. M. Hamilton, Gabriele M. Ouwens, Miranda A. Gerritsma, Michael Schaapveld, Curt W. Burger, Flora E. van Leeuwen
Summary: The use of assisted reproductive technology may be associated with an increased risk of ovarian cancer, although this may be more related to nulliparity rather than the treatment itself. On the other hand, there is a significantly increased risk of borderline ovarian tumors following assisted reproductive technology, but no dose-response relationship was observed.
JNCI-JOURNAL OF THE NATIONAL CANCER INSTITUTE
(2021)
Article
Obstetrics & Gynecology
Tjitske R. Zaat, Anna J. Brinks, Jan-Peter De Bruin, Mariette Goddijn, Frank J. M. Broekmans, Ben J. Cohlen, Nick S. Macklon, Madelon van Wely, Eva R. Groenewoud, Femke Mol
Summary: The study compared obstetric and neonatal risks for women undergoing frozen-thawed embryo transfer during a modified natural cycle versus an artificial cycle. Results showed that women who conceived via modified natural cycle had a decreased risk of hypertensive disorders of pregnancy compared to those using artificial cycle. Other outcomes did not show significant differences between the two methods.
REPRODUCTIVE BIOMEDICINE ONLINE
(2021)
Review
Medicine, General & Internal
Tjitske Zaat, Miriam Zagers, Femke Mol, Mariette Goddijn, Madelon van Wely, Sebastiaan Mastenbroek
Summary: Based on the study, the 'freeze all' strategy may not have a significant difference compared to the conventional IVF/ICSI strategy in terms of cumulative live birth rate and ongoing pregnancy rate, but may have a lower risk of ovarian hyperstimulation syndrome. However, other risks such as maternal hypertensive disorders of pregnancy and having a large-for-gestational-age baby may increase with the 'freeze all' strategy.
COCHRANE DATABASE OF SYSTEMATIC REVIEWS
(2021)
