Article
Oncology
Anne F. Klassen, Elena Tsangaris, Manraj N. Kaur, Lotte Poulsen, Louise M. Beelen, Amalie Lind Jacobsen, Mads Gustaf Jorgensen, Jens Ahm Sorensen, Dalibor Vasilic, Joseph Dayan, Babak Mehrara, Andrea L. Pusic
Summary: A comprehensive patient-reported outcome measure (LYMPH-Q Upper Extremity Module) for arm lymphedema in women with breast cancer was developed and validated through a multiphased mixed-methods study. Six independently functioning scales were created to measure various aspects of arm lymphedema. Analysis using Rasch measurement theory showed good reliability and validity, with lower scores on the scales associated with more severe arm swelling, arm problems caused by cancer and/or its treatment, and arm sleeve usage.
ANNALS OF SURGICAL ONCOLOGY
(2021)
Article
Rehabilitation
Turhan Kahraman, Asiye Tuba Ozdogar, Zuhal Abasiyanik, Ozge Sagici, Cavid Baba, Ozge Ertekin, Serkan Ozakbas
Summary: The PBMSI was translated into Turkish and its psychometric properties were evaluated. The study found that the Turkish version of PBMSI has good psychometric properties, and the PBMSI-SG is preferred over the PBMSI-RS.
DISABILITY AND REHABILITATION
(2023)
Article
Clinical Neurology
Anna Berardi, Antonella Conte, Lucilla Cimmino, Carlotta Cimmino, Viola Baione, Sebastiano Giuseppe Crisafulli, Marco Tofani, Matteo Tartaglia, Giovanni Fabbrini, Giovanni Galeoto
Summary: This study evaluated the psychometric properties of the Health Assessment Questionnaire (HAQ) in a population of individuals with multiple sclerosis (MS), finding that HAQ is a valid and reliable tool for assessing the limitations of the activities of daily living in MS patients.
FRONTIERS IN NEUROLOGY
(2022)
Article
Psychology, Multidisciplinary
Callie E. Tyner, Jerry Slotkin, Pamela A. Kisala, L. Scott Levin, Scott M. Tintle, David S. Tulsky
Summary: Upper extremity transplantation offers hope for individuals with hand or arm amputations, but there is a lack of standardized measures to assess quality of life (QOL). Our group has identified unique QOL domains specific to upper extremity transplants, such as emotional and social aspects, expectations and outcomes, integration, fitting in, and post-surgical challenges. This manuscript describes the initial steps taken to develop standardized PRO measures for evaluating these important outcomes.
FRONTIERS IN PSYCHOLOGY
(2023)
Article
Clinical Neurology
Hong Pan, Shamay S. M. Ng, Tai Wa Liu, Joshua Tsoh, Thomson W. L. Wong
Summary: This study aimed to culturally adapt and examine the psychometric properties of the Chinese (Cantonese) version of the Upper Extremity Functional Index (C-UEFI) in people with chronic stroke. The results showed that the C-UEFI demonstrated good test-retest reliability and excellent internal consistency. It is reliable and valid for assessing functional recovery of upper extremity activity in Chinese people with chronic stroke.
FRONTIERS IN NEUROLOGY
(2023)
Article
Engineering, Biomedical
Ana C. De Oliveira, James S. Sulzer, Ashish D. Deshpande
Summary: This study evaluated the joint angle tracking accuracy of the Harmony exoskeleton, finding good agreement with optical motion capture markers and suggesting that discrepancies were primarily due to soft tissue deformation. The results indicate that the Harmony exoskeleton is capable of providing accurate measurements of arm and shoulder joint kinematics, potentially enabling robot-assisted assessment and intervention for complex joint structures in the human body.
IEEE TRANSACTIONS ON NEURAL SYSTEMS AND REHABILITATION ENGINEERING
(2021)
Article
Clinical Neurology
Jennifer S. S. Graves, Marco Ganzetti, Frank Dondelinger, Florian Lipsmeier, Shibeshih Belachew, Corrado Bernasconi, Xavier Montalban, Johan van Beek, Michael Baker, Christian Gossens, Michael Lindemann
Summary: The smartphone sensor-based Draw a Shape Test, a part of the Floodlight Proof-of-Concept app, was validated for remotely assessing upper extremity impairment in individuals with multiple sclerosis. The test showed correlation with disease burden measures and ability to differentiate between multiple sclerosis patients and healthy controls.
ANNALS OF CLINICAL AND TRANSLATIONAL NEUROLOGY
(2023)
Article
Psychology, Multidisciplinary
Ana Jerkovic, Ana Prorokovic, Meri Matijaca, Jelena Vuko, Ana Poljicanin, Angela Mastelic, Ana Curkovic Katic, Vana Kosta, Lea Kustura, Kresimir Dolic, Zoran Dogas, Maja Rogic Vidakovic
Summary: The study examined the factor structure and correlates of the Hospital Anxiety and Depression Scale (HADS) in multiple sclerosis patients, finding it to be a reliable and valid self-assessment scale for monitoring the psychiatric and psychological status of patients with MS. The HADS subscales showed good internal consistencies and convergent validity, suggesting its use in clinical monitoring.
FRONTIERS IN PSYCHOLOGY
(2021)
Review
Medicine, General & Internal
Marina Gonzalez-del-Rio, Carme Bertran-Noguer, Lluis Ramio-Torrenta, Edurne Zabaleta-del-Olmo
Summary: This review aims to systematically assess the quality of disease-related knowledge measurement instruments for people affected by multiple sclerosis using international guidelines, synthesizing and grading available evidence. The results will be shared with patient support groups and funders, submitted to a peer-reviewed journal, and presented at conferences.
Review
Clinical Neurology
Jie Hao, Yanfei Li, Andreas Remis, Zhengting He, Zixuan Yao, Yuqi Pu
Summary: This systematic review aimed to identify and synthesize evidence on the measurement properties of upper extremity performance-based outcome measures performed in virtual reality or in telerehabilitation, and to provide guidance for clinical applications and research endeavors.
NEUROLOGICAL SCIENCES
(2023)
Article
Psychology, Multidisciplinary
Dorota Weziak-Bialowolska, Piotr Bialowolski, Matthew T. Lee, Ying Chen, Tyler J. VanderWeele, Eileen McNeely
Summary: The article introduces a framework for measuring complete well-being, including assessments in six domains, and suggests that this approach could help shift the focus towards promoting health and well-being.
FRONTIERS IN PSYCHOLOGY
(2021)
Article
Rehabilitation
Ana Jerkovic, Matilda Nikolic Ivanisevic, Natasa Simic, Ana Poljicanin, Zoran Dogas, Maja Rogic Vidakovic
Summary: The study aimed to determine the psychometric properties of the Croatian version of the MSWS-12 and its association with other factors. The results showed that the MSWS-12 is a reliable and valid tool for assessing walking impairments in pwMS.
DISABILITY AND REHABILITATION
(2023)
Article
Rehabilitation
Maciej Tomczak, Pawel Kleka, Maciej Wilski
Summary: This study analysed the psychometric properties of the Polish version of the Multiple Sclerosis Self-Management-Revised Scale. The scale showed good reliability and significant correlations with general self-efficacy and neurological assessment. However, the original factor structure of the scale was not confirmed and requires further study.
DISABILITY AND REHABILITATION
(2022)
Article
Health Care Sciences & Services
Anna Berardi, Giulia Graziosi, Gina Ferrazzano, Laura Casagrande Conti, Maria Grazia Grasso, Marco Tramontano, Antonella Conte, Giovanni Galeoto
Summary: This study evaluated the reliability and validity of the Revised Piper Fatigue Scale (PFS-R) in patients with multiple sclerosis (MS). The results showed that the PFS-R had strong internal consistency and significant correlations with other assessment tools.
Review
Rehabilitation
Goris Nazari, Pavlos Bobos, Ze Lu, Stephanie Reischl, Joy C. MacDermid
Summary: The purpose of this study was to systematically evaluate the measurement properties of the Patient-Specific Functional Scale (PSFS) in patients with upper extremity musculoskeletal disorders. The results showed that the PSFS is a reliable, valid, and responsive tool for assessing functional change in patients with shoulder disorders/pain.
DISABILITY AND REHABILITATION
(2022)
Review
Clinical Neurology
Cigdem Yilmazer, Ilse Lamers, Claudio Solaro, Peter Feys
Summary: This article provides an overview of the current knowledge on pain in multiple sclerosis, including its definitions, assessments, treatments, and rehabilitation. It also highlights the lack of experimental studies focusing on pain reduction.
MULTIPLE SCLEROSIS JOURNAL
(2022)
Article
Computer Science, Artificial Intelligence
Lousin Moumdjian, Thomas Vervust, Joren Six, Ivan Schepers, Micheline Lesaffre, Peter Feys, Marc Leman
Summary: This study focuses on balance and gait impairments in the neurological population, developing a new Augmented Movement Platform for Embodied Learning (AMPEL) device that creates enriched sensory environments through interactive feedback. The device shows high reliability for outcome measures and flexible application of augmented feedback.
JOURNAL ON MULTIMODAL USER INTERFACES
(2021)
Article
Clinical Neurology
Kathleen M. Zackowski, Jennifer Freeman, Giampaolo Brichetto, Diego Centonze, Ulrik Dalgas, John DeLuca, Dawn Ehde, Sara Elgott, Vanessa Fanning, Peter Feys, Marcia Finlayson, Stefan M. Gold, Matilde Inglese, Ruth Ann Marrie, Michelle Ploughman, Christine N. Sang, Jaume Sastre-Garriga, Caroline Sincock, Jonathan Strum, Johan van Beek, Anthony Feinstein
Summary: This research emphasizes key symptoms for people with progressive MS and calls for high-quality studies focused on symptom management and rehabilitation. Through collaboration of an international expert group, four main symptoms and factors affecting treatment efficacy are highlighted. This coordinated call to action aims to address gaps in rehabilitation research for those affected by progressive MS.
MULTIPLE SCLEROSIS JOURNAL
(2021)
Article
Environmental Sciences
Els Knippenberg, Ilse Lamers, Annick Timmermans, Annemie Spooren
Summary: The i-ACT system was developed as a low-cost client-centred task-oriented system for neurorehabilitation, showing high usability and credibility. The study found that training with i-ACT improved upper limb functional ability significantly, indicating its potential to enhance upper limb training in persons with neurological diseases.
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH
(2021)
Review
Neurosciences
Bruno Bonnechere, Aki Rintala, Annemie Spooren, Ilse Lamers, Peter Feys
Summary: The development of mobile technology and mobile Internet presents new possibilities for rehabilitation and clinical assessment in managing multiple sclerosis. Studies have shown promising effects of mHealth in cognitive function and fatigue rehabilitation for patients with multiple sclerosis, though further research is needed to validate these solutions in other areas.
Article
Rehabilitation
Nastasia Marinus, Dominique Hansen, Peter Feys, Raf Meesen, Annick Timmermans, Joke Spildooren
Summary: This study analyzed the impact of television images on the motivation and exercise intensity of older adults in residential care during cycling exercises. The results indicated that the addition of television images may increase the exercise intensity and motivation of older adults.
DISABILITY AND REHABILITATION-ASSISTIVE TECHNOLOGY
(2023)
Article
Multidisciplinary Sciences
Renee Veldkamp, Lousin Moumdjian, Kim van Dun, Joren Six, Antoine Vanbeylen, Daphne Kos, Peter Feys
Summary: Motor sequence learning in individuals with multiple sclerosis in a stepping task showed similar levels to healthy controls, regardless of learning conditions or group differences.
ANNALS OF THE NEW YORK ACADEMY OF SCIENCES
(2022)
Article
Multidisciplinary Sciences
Lousin Moumdjian, Joren Six, Renee Veldkamp, Jenke Geys, Channa Van der Linden, Mieke Goetschalckx, Johan Van Nieuwenhoven, Ilse Bosmans, Marc Leman, Peter Feys
Summary: This study investigated the effects of embodied learning on motor and cognitive functions in persons with multiple sclerosis (PwMS). The results showed that balance impairment and information processing speed predicted the speed of executing cognitive sequences. Furthermore, participants who learned performed the sequence faster in the melody condition and overall improved their speed over time.
ANNALS OF THE NEW YORK ACADEMY OF SCIENCES
(2022)
Review
Rehabilitation
A. Rintala, O. Kossi, B. Bonnechere, L. Evers, E. Printemps, P. Feys
Summary: This study evaluated the effectiveness of mobile health applications (mHealth apps) with a physical training component on physical function and physical activity in stroke rehabilitation. The results showed that these apps have potential in improving physical function and physical activity in stroke survivors, but the impact on quality of life was limited.
DISABILITY AND REHABILITATION
(2022)
Review
Environmental Sciences
Elisabetta Brigo, Aki Rintala, Oyene Kossi, Fabian Verwaest, Olivier Vanhoof, Peter Feys, Bruno Bonnechere
Summary: This review analyzes the feasibility and effectiveness of telehealth solutions proposed during the COVID-19 pandemic to ensure the continuity of rehabilitation. The findings suggest that telerehabilitation is a feasible and effective solution for providing continuous rehabilitation while reducing the risk of infection and burden of travel. However, further research is needed to strengthen and confirm these findings.
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH
(2022)
Review
Environmental Sciences
Zuhal Abasiyanik, Renee Veldkamp, Amber Fostier, Carolien Van Goubergen, Alon Kalron, Peter Feys
Summary: This review examines the patient perspective and assessment methods for dual-task (DT) impairment. Five patient-reported outcome measures (PROMs) were identified, and the Dual-Task-Impact on Daily-life Activities Questionnaire (DIDA-Q) showed the highest measurement quality in individuals with multiple sclerosis.
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH
(2022)
Review
Rehabilitation
Elogni R. Amanzonwe, Lisa Tedesco Triccas, Leopold Codjo, Dominique Hansen, Peter Feys, Oyene Kossi
Summary: This study analyzed the optimal dosage and effectiveness of aerobic training (AT) and resistance training (RT) on balance, walking capacity, and quality of life (QoL) in stroke survivors. The results showed that AT was the most effective in improving walking capacity, while combining AT and RT was beneficial for improving QoL. High-dose aerobic exercise conducted in rehabilitation facilities was more effective in improving walking capacity in chronic stroke patients.
SOUTH AFRICAN JOURNAL OF PHYSIOTHERAPY
(2023)
Article
Medicine, General & Internal
Peter Feys, Marijke Duportail, Daphne Kos, Stephan Ilsbroukx, Ilse Lamers, Paul Van Asch, Werner Helsen, Lousin Moumdjian
Summary: This study investigated the effect of peripheral upper limb cooling on tremor severity and functional performance in multiple sclerosis patients with intention tremor. The results showed that cooling the forearm significantly reduced tremor severity and improved functional performance, and cooling the whole upper limb had a noticeable effect on tremor severity during the first half-hour after cooling.
JOURNAL OF CLINICAL MEDICINE
(2023)
Review
Clinical Neurology
Kyra Theunissen, Guy Plasqui, Annelies Boonen, Bente Brauwers, Annick Timmermans, Pieter Meyns, Kenneth Meijer, Peter Feys
Summary: The review found that pwMS and healthy subjects share similarities in energetically most optimal walking speed, but pwMS have higher Cw. Treadmill walking provides a similar optimum Cw compared to overground walking, but at a higher speed.
NEUROREHABILITATION AND NEURAL REPAIR
(2021)
