Journal
MOVEMENT DISORDERS
Volume 23, Issue 5, Pages 721-726Publisher
WILEY-LISS
DOI: 10.1002/mds.21920
Keywords
Huntington's disease; quality of life; caregiver; neuropsychiatric symptoms; self-report
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Funding
- NINDS NIH HHS [R01 NS040068] Funding Source: Medline
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Little is known about subjective perceptions of quality of life (QOL) in Huntington's disease (HD). The current study determined correlates of patient and caregiver QOL and assessed change over time. Participants were 22 patient-caregiver dyads, who rated QOL at baseline and 6 months later. Overall, patients' functional and cognitive impairment were significantly correlated with patient and caregiver QOL. Neuropsychiatric symptoms had differential impact on patient and caregiver QOL. Furthermore, when patients recalled their QOL about a previous time, their recall may have been negatively biased. Clinical implications of results are discussed. Future work is needed because subjective QOL is an important outcome measure in therapeutic trials. (c) 2008 Movement Disorder Society.
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