4.6 Article

Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management

Journal

PSYCHO-ONCOLOGY
Volume 24, Issue 8, Pages 940-949

Publisher

WILEY
DOI: 10.1002/pon.3747

Keywords

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Funding

  1. ESRC [ES/F029624/1] Funding Source: UKRI
  2. Economic and Social Research Council [ES/F029624/1] Funding Source: researchfish
  3. Macmillan Cancer Support [3546834] Funding Source: researchfish

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ObjectiveThe aim of this study is to co-create an evidence-based and theoretically informed web-based intervention (RESTORE) designed to enhance self-efficacy to live with cancer-related fatigue (CRF) following primary cancer treatment. MethodsA nine-step process informed the development of the intervention: (1) review of empirical literature; (2) review of existing patient resources; (3) establish theoretical framework; (4) establish design team with expertise in web-based interventions, CRF and people affected by cancer; (5) develop prototype intervention; (6) user testing phase 1; (7) refinement of prototype; (8) user testing phase 2; and (9) develop final intervention. ResultsKey stakeholders made a critical contribution at every step of intervention development, and user testing, which involved an iterative process and resulted in the final intervention. The RESTORE intervention has five sessions; sessions 1 and 2 include an introduction to CRF and goal setting. Sessions 3-5 can be tailored to user preference and are designed to cover areas of life where CRF may have an impact: home and work life, personal relationships and emotional adjustment. ConclusionsIt is feasible to systematically co-create' an evidence-based and theory-driven web-based self-management intervention to support cancer survivors living with the consequences of cancer and its treatment. This is the first account of the development of a web-based intervention to support self-efficacy to manage CRF. An exploratory trial to test the feasibility and acceptability of RESTORE is now warranted. Copyright (c) 2015 John Wiley & Sons, Ltd.

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