Journal
JOURNAL OF RHEUMATOLOGY
Volume 38, Issue 8, Pages 1711-1715Publisher
J RHEUMATOL PUBL CO
DOI: 10.3899/jrheum.110391
Keywords
PATIENT REPORTED OUTCOMES; CONSENSUS DEVELOPMENT; CLINICAL TRIALS
Categories
Funding
- MRC [G0802695] Funding Source: UKRI
- Medical Research Council [G0802695] Funding Source: researchfish
- Medical Research Council [G0802695] Funding Source: Medline
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The workshop Choosing or Developing Instruments held at the Outcome Measures in Rheumatology (OMERACT) 10 meeting was designed to help participants think about the underlying methods of instrument development. Conference pre-reading material and 3 brief introductory presentations elaborated the issues, and participants broke into discussion groups before reconvening to share insights, engage in a more general discussion of the issues, and vote on recommendations: Tradeoffs between using current imperfect measures and the long and complex process of developing new instruments were considered, together with the need for rigor in patient-reported outcome (PRO) instrument development. The main considerations for PRO instrument development Were listed and a research agenda for action produced. As part of the agenda for action, it is recommended that re:searchers and patient partners work together to tackle these issues, and that OMERACT bring forward proposals for acceptable instrument development protocols that would meet an enhanced Truth statement in the OMERACT Filter. (J Rheumatol 2011;38:1711-15; doi:10.3899/jrheum.110391)
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