Journal
JOURNAL OF PEDIATRIC HEALTH CARE
Volume 27, Issue 4, Pages 284-292Publisher
ELSEVIER SCIENCE INC
DOI: 10.1016/j.pedhc.2012.02.004
Keywords
Sickle cell disease; pain; symptoms; wireless technology; smartphone; text message communication
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Funding
- National Institutes of Health, National Heart Blood & Lung Institute American Recovery & Reinvestment Act grant [1RC1 HL100301-01]
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Introduction: Use of wireless devices has the potential to transform delivery of primary care services for persons with sickle cell disease (SCD). The study examined text message communications between patients and an advanced practice registered nurse (APRN) and the different primary care activities that emerged with use of wireless technology. Methods: Patients (N = 37; mean age 13.9 +/- 1.8 years; 45.9% male and 54.1% female) engaged in intermittent text conversations with the APRN as part of the Wireless Pain Intervention Program. Content analyses were used to analyze the content of text message exchanges between patients and the APRN. Results: The primary care needs that emerged were related to pain and symptom management and sickle cell crisis prevention. Two primary care categories (collaborating and coaching), four primary care subcategories (screening, referring, informing, and supporting), and 16 primary care activities were evident in text conversations. Discussion: The use of wireless technology may facilitate screening, prompt management of pain and symptoms, prevention or reduction of SCD-related complications, more efficient referral for treatments, timely patient education, and psychosocial support in children and adolescents with SCD.
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