Article
Oncology
Takaaki Hasegawa, Toru Okuyama, Takehiro Uemura, Yoshinobu Matsuda, Hiroyuki Otani, Junichi Shimizu, Yoshitsugu Horio, Naohiro Watanabe, Teppei Yamaguchi, Satoshi Fukuda, Tetsuya Oguri, Ken Maeno, Yoshihiko Taniguchi, Kaname Nosaki, Kensuke Fukumitsu, Tatsuo Akechi
Summary: This study examined the elements of end-of-life discussions associated with end-of-life care in patients with advanced cancer. The results showed that the end-of-life discussions between patients and their oncologists were not significantly associated with patient-reported outcomes or actual end-of-life care. However, oncologists' compassion and caregivers' preferences for hospice care were found to be influential in achieving optimal end-of-life care decisions.
Article
Oncology
Nicole Heerde, Wolf-Karsten Hofmann, Ralf-Dieter Hofheinz, Sylvia Buettner, Deniz Gencer
Summary: In providing end-of-life care, physicians often have uncertainties, use sedatives more frequently, and administer fewer infusions for dying patients. Medical specialization is identified as an independent factor for good palliative practice, with doctors working with cancer patients more likely to provide quality end-of-life care. Guideline-based palliative care is implemented more consistently in oncology departments compared to non-oncological departments, highlighting potential training gaps.
JOURNAL OF CANCER RESEARCH AND CLINICAL ONCOLOGY
(2022)
Review
Health Care Sciences & Services
M. Pilar Ingle, Cristina Valdovinos, Kelsey L. Ford, Shou Zhou, Sheana Bull, Starlynne Gornail, Xuhong Zhang, Susan Moore, Jennifer Portz
Summary: This study aimed to identify and assess user perspectives of palliative care and end-of-life (PCEOL) portal tools available for patients and caregivers. A scoping review of academic literature identified 12 tools addressing PCEOL domains such as ethical or legal, physical, and psychological or psychiatric. While high user acceptability was reported, little attention was given to usability among older adults.
JOURNAL OF MEDICAL INTERNET RESEARCH
(2021)
Review
Geriatrics & Gerontology
Jung A. Kang, Aluem Tark, Leah V. Estrada, Lara Dhingra, Patricia W. Stone
Summary: Discussions about the goals of health care in nursing homes can have an impact on end-of-life outcomes. This systematic review examined the timing of these discussions and their influence on outcomes, finding that earlier discussions were associated with better outcomes.
JOURNAL OF THE AMERICAN MEDICAL DIRECTORS ASSOCIATION
(2023)
Article
Public, Environmental & Occupational Health
Rebecca J. Anderson, Patrick C. Stone, Joseph T. S. Low, Steven Bloch
Summary: The study shows that in end-of-life conversations, clinicians and families transition from the uncertainty of prognosis to focusing on patient comfort through changing the topic of discussion, emphasizing the importance of ongoing care and action.
PATIENT EDUCATION AND COUNSELING
(2021)
Review
Health Care Sciences & Services
Bria Browne, Nuriye Kupeli, Kirsten J. Moore, Elizabeth L. Sampson, Nathan Davies
Summary: Dementia affects 50 million people globally and existing definitions of end of life do not take its uncertain trajectory into account. Healthcare professionals and family carers have difficulty recognising when people with dementia are approaching the end of life.
PALLIATIVE MEDICINE
(2021)
Article
Health Policy & Services
Christina Melin-Johansson, Josefin Sveen, Malin Lovgren, Camilla Udo
Summary: The study aimed to explore the proportion of adult patients and next-of-kin who had end-of-life discussions and associated factors. Results showed that not all patients with palliative care needs have equal access to EOL discussions, despite efforts at a national level and the recognized benefits of timely communication about the EOL care. Further efforts must be made to achieve EOL discussions for all patients.
PALLIATIVE & SUPPORTIVE CARE
(2022)
Review
Nursing
Si Qi Yoong, Wenru Wang, Alvin Chuen Wei Seah, Nivetha Kumar, Joanne Oon Nee Gan, Laura Tham Schmidt, Yanjuan Lin, Hui Zhang
Summary: The aim of this study was to summarize the experiences of nursing students in clinical settings when encountering patient death and providing palliative care. The findings suggest that nursing students often feel unprepared in caring for dying patients and handling patient death. Understanding their experiences would provide valuable insights for improving palliative care education and supporting students in clinical settings.
NURSE EDUCATION IN PRACTICE
(2023)
Review
Geriatrics & Gerontology
Leah V. Estrada, Mansi Agarwal, Patricia W. Stone
Summary: This systematic review identified disparities in end-of-life care for racial/ethnic minority residents in nursing homes, with minority residents less likely to complete advance care planning, more likely to experience end-of-life hospitalizations, and experiencing worse pain and symptom management. Further research using recent data is needed to address these disparities and improve care for minority residents.
JOURNAL OF THE AMERICAN MEDICAL DIRECTORS ASSOCIATION
(2021)
Review
Psychology, Clinical
Joshua M. Baruth, Jacqueline B. Ho, Sohail Mohammad, Maria Lapid
Summary: Schizophrenia is a severe mental illness with significant impacts on individuals, families, and communities. Despite the high healthcare costs associated with it, individuals with schizophrenia often face inequitable care at the end of life. Enhancing awareness of healthcare disparities, implementing multidisciplinary care, and providing adequate palliative services can improve end-of-life care for individuals with schizophrenia.
INTERNATIONAL PSYCHOGERIATRICS
(2021)
Article
Medicine, General & Internal
Kristin E. Knutzen, Olivia A. Sacks, Olivia C. Brody-Bizar, Genevra F. Murray, Raina H. Jain, Lindsay A. Holdcroft, Shama S. Alam, Matthew A. Liu, Kathryn I. Pollak, James A. Tulsky, Amber E. Barnato
Summary: This study examined the success and missed opportunities for end-of-life discussions between oncologists and patients with advanced cancer. It found that opportunities for these discussions were rarely realized, while missed opportunities were more common, reflecting the treatment style of oncologists.
Article
Geriatrics & Gerontology
Roosmarijne M. K. Kox, H. Roeline W. Pasman, Annicka G. M. van der Plas, Martijn Huisman, Emiel O. Hoogendijk, Bregje D. Onwuteaka-Philipsen
Summary: This study investigates the percentage of Dutch older people who discussed Advance Care Planning (ACP) topics with a physician during the COVID-19 pandemic. The results showed that most older adults had thought about ACP topics (76.4%), but only a minority had discussed them with a physician (20.3%). It is suggested that general practitioners should take the initiative to discuss ACP topics with older patients.
Review
Geriatrics & Gerontology
Lesley E. Williamson, Catherine J. Evans, Rachel L. Cripps, Javiera Leniz, Emel Yorganci, Katherine E. Sleeman
Summary: The study found that factors associated with emergency department attendance among people with dementia near the end of life include ethnic minority groups, an increasing number of comorbidities, neuropsychiatric symptoms, previous hospital transfers, and rural living. Higher socioeconomic position, being unmarried, and living in a care home were negatively associated with emergency department attendance. Additionally, being a woman and receiving palliative care were negatively associated with emergency department attendance.
JOURNAL OF THE AMERICAN MEDICAL DIRECTORS ASSOCIATION
(2021)
Review
Health Care Sciences & Services
Cathy J. Beresford, Leslie Gelling, Sue Baron, Linda Thompson
Summary: Liver disease is a growing health concern and major cause of death. This systematic review aimed to explore the palliative and end-of-life care experiences of people with liver disease in the United Kingdom. The review found variations in care experiences of people with advanced liver disease towards the end of life and an overall lack of access to specialist palliative care services. Person-centered care was identified as an important feature and more empowering experiences were associated with such services. Further research is needed to clarify when care for people with liver disease is palliative or end-of-life.
HEALTH EXPECTATIONS
(2023)
Article
Medicine, General & Internal
Kathryn A. Martinez, Heather McKee Hurwitz, Michael B. Rothberg
Summary: This study analyzed the discussions between physicians and atrial fibrillation (AF) patients regarding the choice of anticoagulation. It found that physicians used persuasive communication to convince patients to accept direct oral anticoagulants (DOACs), but were unable to address concerns about medication costs. This may lead to financial burden or increased risk of stroke for patients who cannot afford DOACs.
JAMA INTERNAL MEDICINE
(2022)
Review
Public, Environmental & Occupational Health
Catherine Riffin, Karl Pillemer, Emily K. Chen, Marcus Warmington, Ronald D. Adelman, M. C. Reid
AMERICAN JOURNAL OF PUBLIC HEALTH
(2015)
Article
Anesthesiology
Jamie Guillory, Pamara Chang, Charles R. Henderson, Rouzi Shengelia, Sonam Lama, Marcus Warmington, Maryam Jowza, Seth Waldman, Geri Gay, M. Carrington Reid
CLINICAL JOURNAL OF PAIN
(2015)
Article
Health Care Sciences & Services
Mashfiqui Rabbi, Min S. H. Aung, Geri Gay, M. Cary Reid, Tanzeem Choudhury
JOURNAL OF MEDICAL INTERNET RESEARCH
(2018)
Article
Health Care Sciences & Services
Richard J. Lin, M. Carrington Reid, Amy E. Chused, Arthur T. Evans
AMERICAN JOURNAL OF HOSPICE & PALLIATIVE MEDICINE
(2016)
Article
Geriatrics & Gerontology
S. Samuels, R. Abrams, R. Shengelia, M. C. Reid, R. Goralewicz, R. Breckman, M. A. Anderson, C. E. Snow, E. C. Woods, A. Stern, J. P. Eimicke, R. D. Adelman
INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY
(2015)
Article
Health Care Sciences & Services
Anurag Ratan Goel, Charles R. Henderson, Manney Carrington Reid
Summary: This is a nationwide survey that investigates the recommendation behaviors of complementary and integrative medicine (CIM) by healthcare providers in palliative care. The results show that healthcare providers recommend a wide range of CIM therapies, but at a lower frequency than what patients report.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2022)
Article
Anesthesiology
Clara Scher, Charles R. Henderson, Karl Pillemer, Patricia Kim, M. Carrington Reid
Summary: In this study, the importance of seven pain treatment goals among older adults was examined. The results showed that minimizing harmful side effects of pain medications was ranked as the least important goal, while finding a cure and reducing pain were ranked as the most important goals. There were no gender or race/ethnicity differences in the importance of these goals. Age was negatively associated with the goals of minimizing side effects and decreasing pain's effects on everyday activities. Pain reduction was rated as more important than all other goals except finding a cure.
Article
Health Care Sciences & Services
Daniel Shalev, Melissa Patterson, Yasemin Aytaman, Manuel A. Moya-Tapia, Craig D. Blinderman, Milagros D. Silva, M. Carrington Reid
Summary: This study aimed to implement operationalized depression screening using the Patient Health Questionnaire-2 (PHQ-2) in non-surgical palliative care. The results showed an increase in the execution rate of depression screening from 2% to 38%. All clinicians perceived the incorporation of depression screening as useful and feasible, suggesting completion of screening prior to clinician visit to improve uptake.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2023)
Review
Health Care Sciences & Services
Karolina Sadowska, Tina Fong, Daniel R. Horning, Sandra McAteer, Maureen I. Ekwebelem, Michelle Demetres, M. Carrington Reid, Daniel Shalev
Summary: This literature review examined the association between psychiatric comorbidities and outcomes in palliative and end-of-life care. Psychiatric comorbidity was found to be associated with poor quality of life, increased physical symptom burden, and low function. Additionally, it was found to increase utilization of palliative care services. The integration of mental health and palliative care services may enhance quality-of-life among patients at end of life.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2023)
Article
Health Care Sciences & Services
Daniel Shalev, Maureen I. Ekwebelem, Lilla A. Brody, Mary E. Callahan, Navendra Singh, M. Carrington Reid
Summary: There is variability in clinical and didactic exposure to mental health training among Hospice and Palliative Medicine (HPM) fellowships, resulting in uncertainty and different levels of preparedness for dealing with psychological and psychiatric aspects of palliative care.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2023)
Article
Rheumatology
Sarah B. Lieber, Musarrat Nahid, Alexandra Legge, Mangala Rajan, Robyn A. Lipschultz, Myriam Lin, M. Carrington Reid, Lisa A. Mandl
Summary: This study compared the application of two different methods of measuring frailty in women with SLE and found that 17.9-26.9% of patients were frail. Frail patients had worse disease damage and disability compared to non-frail patients. After adjusting for age, frailty was associated with a greater odds of disability.
Article
Gerontology
Shelbie G. Turner, Jamaica R. M. Robinson, Karl A. Pillemer, M. Carrington Reid
Summary: This study analyzed national survey data to assess the prevalence of physical pain among family caregivers to older adults. The results showed that arthritis and activity-limiting bothersome pain are highly prevalent among caregivers. Older age and higher education levels were associated with a higher prevalence of arthritis. Black caregivers had a lower prevalence of arthritis and activity-limiting bothersome pain compared to White caregivers. Caregivers with physical difficulty providing care had a higher prevalence of arthritis and activity-limiting bothersome pain.
Article
Geriatrics & Gerontology
Anthony D. Ong, Kenneth Tyler Wilcox, Judith T. Moskowitz, Elaine Wethington, Elizabeth L. Addington, Mubarak O. Sanni, Patricia Kim, M. Cary Reid
Summary: This study examined the feasibility, acceptability, and preliminary efficacy of a positive affect skills intervention for middle-aged and older adults with fibromyalgia syndrome (FMS). The results showed high completion rates and satisfaction ratings among participants. Those who received the intervention had significantly greater improvements in positive affect, negative affect, and pain catastrophizing compared to the control group. These improvements were maintained at 1-month follow-up. The level of intervention engagement predicted reductions in pain catastrophizing.
INNOVATION IN AGING
(2023)
Article
Geriatrics & Gerontology
Catherine Riffin, Lilla Brody, Priya Mukhi, Keela Herr, Karl Pillemer, Madeline Rogers, Charles R. Henderson Jr, M. Cary Reid
Summary: Despite the prevalence of pain in persons with dementia, it is often underdetected and undermanaged. This study evaluates a multicomponent intervention called the Pain Identification and Communication Toolkit (PICT) which provides training in observational pain assessment and coaching in pain communication techniques for family caregivers. The results show that PICT is feasible to implement, acceptable to caregivers, and has the potential to improve confidence in recognizing and communicating about pain.
INNOVATION IN AGING
(2023)
Article
Health Care Sciences & Services
Amber K. Brooks, David P. Miller, Jason T. Fanning, Erin L. Suftin, M. Carrington Reid, Brian J. Wells, Xiaoyan Leng, Robert W. Hurley
JMIR RESEARCH PROTOCOLS
(2020)