Sharing Medical Data for Health Research: The Early Personal Health Record Experience

Consent for use of personal information for health research: Do people with potentially stigmatizing health conditions and the general public differ in their opinions?

(2009) Donald J Willison et al.   BMC Medical Ethics

Holding personal information in a disease-specific register: the perspectives of people with multiple sclerosis and professionals on consent and access

(2009) W Baird et al.   JOURNAL OF MEDICAL ETHICS

Acceptability of a Personally Controlled Health Record in a Community-Based Setting: Implications for Policy and Design

(2009) Elissa R Weitzman et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Alternatives to project-specific consent for access to personal information for health research: Insights from a public dialogue

(2008) Donald J Willison et al.   BMC Medical Ethics

Integrated Personal Health Records: Transformative Tools for Consumer-Centric Care

(2008) Don Detmer et al.   BMC Medical Informatics and Decision Making

Clinical governance and research ethics as barriers to UK low-risk population-based health research?

(2008) Edwin R van Teijlingen et al.   BMC PUBLIC HEALTH

Research on Medical Records without Informed Consent

(2008) Franklin G. Miller   JOURNAL OF LAW MEDICINE & ETHICS

Access to medical records for research purposes: varying perceptions across research ethics boards

(2008) D J Willison et al.   JOURNAL OF MEDICAL ETHICS

Patient Accessible Electronic Health Records: Exploring Recommendations for Successful Implementation Strategies

(2008) David Wiljer et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Social Uses of Personal Health Information Within PatientsLikeMe, an Online Patient Community: What Can Happen When Patients Have Access to One Another’s Data

(2008) Jeana H Frost et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Tectonic Shifts in the Health Information Economy

(2008) Kenneth D. Mandl et al.   NEW ENGLAND JOURNAL OF MEDICINE

The Genetic Liability to Disability Retirement: A 30-Year Follow-Up Study of 24,000 Finnish Twins

(2008) Karoliina Harkonmäki et al.   PLoS One

Assessing the heritability of anorexia nervosa symptoms using a marginal maximal likelihood approach

(2008) S. E. Mazzeo et al.   PSYCHOLOGICAL MEDICINE