Article
Psychiatry
Laura Inhestern, Lene Marie Johannsen, Corinna Bergelt
Summary: Cancer in parents with minor children presents significant challenges, requiring a deeper understanding of the impact on children, family quality of life levels, and parental psychosocial needs to develop appropriate interventions. The study found that parental cancer can have both positive and negative effects on children, while parents express specific family-related psychosocial support needs.
FRONTIERS IN PSYCHIATRY
(2021)
Review
Oncology
Lucy A. P. Boyd, Amy E. Waller, David Hill, Rob W. Sanson-Fisher
Summary: Research on psychosocial care in brain cancer shows that most publications only assessed a single component of care, providing a narrow view of patient and support person experiences. Future studies need to include assessments of multiple care components to optimize psychosocial outcomes.
SUPPORTIVE CARE IN CANCER
(2021)
Article
Oncology
Kathryn Kirkpatrick, Mary Kay Irwin, Tammi Young-Saleme, Najah N. N. Brown, Kathryn Vannatta
Summary: This study investigated the feasibility and acceptability of a tiered intervention model of school intervention services. Children with newly diagnosed malignancy or transitioning to long-term survivorship care received universal school needs assessment and intervention targeted at their identified risk level. The results showed that the model successfully identified students with the highest need for intervention, allowed for more targeted resource utilization, and met the Psychosocial Standard of Care for academic needs.
Review
Public, Environmental & Occupational Health
Lauren J. Breen, Taha Huseini, Anne Same, Carolyn J. Peddle-McIntyre, Y. C. Gary Lee
Summary: Research shows that mesothelioma patients and family caregivers desire better diagnosis delivery and access to palliative care. Patients seek emotional support, patient-centered treatment, and more information about disease progression and death, while caregivers require one-on-one practical and emotional support.
PATIENT EDUCATION AND COUNSELING
(2022)
Article
Oncology
Andrea Cuviello, Catherine Yip, Haven Battles, Lori Wiener, Renee Boss
Summary: The study found that although pediatric cancer patients have multiple high yield triggers for PC referral, the actual rate of PC consultation is very low, indicating the need for a standardized screening tool to improve early PC integration.
Article
Medicine, General & Internal
Solveigh Paola Lingens, Georgia Schilling, Holger Schulz, Christiane Bleich
Summary: This study aimed to evaluate the effectiveness of brief psychosocial support for cancer patients and their relatives regarding their mental health. The results showed that brief psychosocial support is associated with improvement of mental health for cancer patients and their relatives.
Article
Health Care Sciences & Services
Lars Dinkelbach, Marc Koehler, Maren Galushko, Leonie Pieper, Michaela Kuhlen, Mareike Danneberg, Oliver Dechert, Laura Trocan, Gisela Janssen
Summary: This study investigates the psychosocial well-being of siblings of children and adolescents with life-limiting conditions receiving pediatric palliative care. The results show that these siblings have a significant impairment in their health-related quality of life, highlighting the need for attention and intervention.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2023)
Article
Oncology
Crystle-Joie Agbayani, Jo A. Tucker, Edward L. Nelson, Freddy Martinez, Haydee Cortes, Dina Khoury, Zeev N. Kain, Carol Lin, Lilibeth Torno, Michelle A. Fortier
Summary: This study compares the immune profiles and psychosocial outcomes of parents of children with cancer to parents of healthy children. The results show that parents of children with cancer have altered immune profiles, with higher monocyte percentages, and also report poorer psychosocial outcomes. These findings suggest that parents of children with cancer may have long-term psychosocial needs and health issues.
SUPPORTIVE CARE IN CANCER
(2022)
Article
Health Care Sciences & Services
Andrea Cuviello, Jessica C. Raisanen, Pamela K. Donohue, Lori Wiener, Renee D. Boss
Summary: The study found that pediatric oncologists believe PC consultation often occurs too late, with barriers related to communication and system issues. Participants generally agreed that a screening tool would help standardize PC referral practices, and common triggers for PC consultation include poor prognosis, symptom management, comorbidities, and psychosocial needs.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2021)
Article
Oncology
Maryann Calligan, Lauren Chakkalackal, Grace Dadzie, Cassandra Tardif-Theriault, Sadie Cook, Emily Vettese, Dilip Soman, Susan Kuczynski, Tal Schechter, L. Lee Dupuis, Lillian Sung
Summary: The objective of this study was to determine the feasibility of three times weekly symptom reporting by pediatric cancer patients for eight weeks. English-speaking patients aged 8-18 with cancer were included in the study. The results showed that three times weekly symptom reporting was feasible for pediatric cancer patients and mechanisms to enhance symptom reporting were identified.
Article
Psychology, Social
Wasfa Farooq, Yakub Ali Nur, Natasha Baig, Atoofa Najmi, Muhammad Rafie Raza
Summary: Despite the increasing incidence of childhood cancer, low-middle income countries like Pakistan often lack the necessary resources to prioritize and develop psycho-oncology services. This study highlights the importance of establishing mental health counseling and support for pediatric oncology patients in resource-strained countries.
JOURNAL OF PSYCHOSOCIAL ONCOLOGY
(2023)
Article
Oncology
Friederike Hammersen, Telja Pursche, Dorothea Fischer, Alexander Katalinic, Annika Waldmann
Summary: The study evaluated the use and needs of family-centered psychosocial support services among breast cancer patients with dependent children. It found that many patients had unmet needs, particularly related to their children, and that patients with low HRQOL, little social support, and single-mothers may have higher psychosocial needs.
Review
Oncology
Lucy A. P. Boyd, Amy E. Waller, David Hill, Rob W. Sanson-Fisher
Summary: The number of publications exploring psychosocial outcomes of adults with brain cancer has significantly increased between 1999 and 2019, but descriptive research still dominates the output. There is a lack of rigorous intervention trials meeting EPOC design criteria in the published literature.
EUROPEAN JOURNAL OF CANCER CARE
(2021)
Article
Psychology, Multidisciplinary
Antonella Guido, Elisa Marconi, Laura Peruzzi, Nicola Dinapoli, Gianpiero Tamburrini, Giorgio Attina, Mario Balducci, Vincenzo Valentini, Antonio Ruggiero, Daniela Pia Rosaria Chieffo
Summary: This study aimed to investigate the psychological impact of the COVID-19 pandemic on parents of pediatric cancer patients, revealing high levels of anxiety and stress among parents. The study also found positive correlations between psychological trauma and perceived stress, as well as between stress and children's quality of life.
FRONTIERS IN PSYCHOLOGY
(2021)
Review
Allergy
Grace K. Cushman, Kristine Durkin, Rebecca Noga, Frances Cooke, Linda Herbert, Cynthia Esteban, Elizabeth L. McQuaid
Summary: The psychosocial burden of food allergy significantly affects pediatric patients and their families. This review characterizes the current literature on psychosocial functioning in pediatric patients with food allergy and their caregivers, siblings, and families, highlighting the need for more diverse and longitudinal research on this topic.
JOURNAL OF ALLERGY AND CLINICAL IMMUNOLOGY
(2023)