Article
Psychology, Educational
A. Turhan, J. J. Roest, M. J. Delforterie, G. H. P. Van der Helm, E. G. Neimeijer, R. Didden
Summary: The Group Climate Inventory-Revised (GCI-R) has been shown to be psychometrically adequate when applied to adult clients with mild intellectual disability or borderline intellectual functioning in secure residential facilities. Confirmatory factor analysis confirmed the five-factor structure of the GCI-R and demonstrated good internal consistency reliability of its scales.
JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES
(2023)
Article
Education, Special
Tomoyuki Takano
Summary: The correlation between challenging behavior (CB) and epilepsy in people with intellectual disability (ID) is still controversial. This study investigated the clinical characteristics of CB in individuals with and without epilepsy among people with ID hospitalized in a residential facility. The results showed that almost all individuals with CB had profound ID. There was no significant difference in the rate of CB between people with and without epilepsy. The study also found that self-injurious behavior was more frequently observed in epilepsy cases.
RESEARCH IN DEVELOPMENTAL DISABILITIES
(2022)
Article
Health Care Sciences & Services
Iva Obrusnikova, Albert R. Cavalier, Ashleigh E. Blair-McKinsey
Summary: This study used the Reasoned Action Approach to explore personal trainers' beliefs about providing personal training for adults with intellectual disabilities in community fitness facilities. Results showed that trainers generally believed the experience would help provide more individualized training, but they were also aware of inhibiting factors.
DISABILITY AND HEALTH JOURNAL
(2021)
Article
Public, Environmental & Occupational Health
Briana C. C. Prager, Sherri M. M. Broder, Marvin R. R. Natowicz
Summary: Adults with intellectual or developmental disability (IDD) make up a small percentage of the global population, but they are at a significant risk of premature morbidity or mortality. This is mainly due to preventable health conditions that can be improved through the intervention of caregivers. They are also more likely to experience neglect or mistreatment, which is a problem documented in various countries and care settings. Practical and cost-effective interventions can address the existing disparities and challenges.
FRONTIERS IN PUBLIC HEALTH
(2022)
Article
Psychology, Educational
Marie-Josee Leclerc, Diane Morin
Summary: The study identified the key factors affecting support staff's perception of their role in supporting the sexuality of adults with intellectual disabilities, including the support staff's role, facilitators and barriers, sexuality of residents with intellectual disabilities, and policies and regulations. The results highlight the importance of expanding support staff's knowledge, clarifying procedures for implementing their role, and establishing a clear practice framework.
JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES
(2022)
Review
Gerontology
Flavia H. Santos, Johanna Zurek, Matthew P. Janicki
Summary: The lack of information on health promotion and disease prevention interventions for older adults with IDDs was highlighted in the study. Although most intervention outcomes were positive, there was a general lack of sustained attention and long-term follow-up for such interventions.
Article
Clinical Neurology
Ulrica Jonsson, Meta Nystrom Eek, Katharina Stibrant Sunnerhagen, Kate Himmelmann
Summary: Through a longitudinal study of adults with cerebral palsy, it was found that changes in walking ability, intellectual disability, and epilepsy were significantly different over the years. These changes were more related to the subtype of CP rather than age or sex.
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY
(2021)
Review
Psychology, Educational
Elizabeth Smith, Tessa-May Zirnsak, Jennifer Power, Anthony Lyons, Christine Bigby
Summary: This review explores the social inclusion/exclusion experiences of LGBTQ and gender diverse adults with intellectual disability in disability services, highlighting the marginalization of this cohort in western societies and the lack of research on the experiences of transgender individuals. Interventions are needed to support the inclusion of this group in disability support services.
JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES
(2022)
Review
Public, Environmental & Occupational Health
Freda McCormick, Lynne Marsh, Laurence Taggart, Michael Brown
Summary: Adults with intellectual disabilities face significant physical and mental health needs in acute hospital settings compared to their typically developing peers. Poor communication from healthcare staff, lack of information sharing, and issues related to compassionate care and respect were identified as common challenges. Increasing the use of hospital passports and expanding the role of intellectual disability liaison nurses may enhance the hospital experience for individuals with intellectual disabilities.
HEALTH & SOCIAL CARE IN THE COMMUNITY
(2021)
Article
Biochemistry & Molecular Biology
Mio Aerden, Anne-Sophie Denomme-Pichon, Dominique Bonneau, Ange-Line Bruel, Julian Delanne, Benedicte Gerard, Benoit Mazel, Christophe Philippe, Lucile Pinson, Clement Prouteau, Audrey Putoux, Frederic Tran Mau-Them, Eleonore Viora-Dupont, Antonio Vitobello, Alban Ziegler, Amelie Piton, Bertrand Isidor, Christine Francannet, Pierre-Yves Maillard, Sophie Julia, Anais Philippe, Elise Schaefer, Saskia Koene, Claudia Ruivenkamp, Mariette Hoffer, Eric Legius, Miel Theunis, Boris Keren, Julien Buratti, Perrine Charles, Thomas Courtin, Mala Misra-Isrie, Mieke van Haelst, Quinten Waisfisz, Dagmar Wieczorek, Ariane Schmetz, Theresia Herget, Fanny Kortuem, Jasmin Lisfeld, Francois-Guillaume Debray, Nuria C. Bramswig, Isis Atallah, Heidi Fodstad, Guillaume Jouret, Berta Almoguera, Saoud Tahsin-Swafiri, Fernando Santos-Simarro, Maria Palomares-Bralo, Vanesa Lopez-Gonzalez, Maria Kibaek, Pernille M. Torring, Alessandra Renieri, Lucia Pia Bruno, Katrin Ounap, Monica Wojcik, Tzung-Chien Hsieh, Peter Krawitz, Hilde Van Esch
Summary: Haploinsufficiency of TRIP12 causes Clark-Baraitser syndrome, a neurodevelopmental disorder characterized by intellectual disability, epilepsy, autism spectrum disorder, and dysmorphic features. Through GestaltMatcher image analysis based on deep-learning algorithms, a distinct facial gestalt was established. The largest cohort to date of individuals with TRIP12 variants was studied, further defining the associated phenotype and introducing a facial gestalt.
EUROPEAN JOURNAL OF HUMAN GENETICS
(2023)
Article
Psychology, Educational
Paddy McNally, Mandy Irvine, Laurence Taggart, Mark Shevlin, John Keesler
Summary: This study explores the knowledge of trauma and trauma informed care among residential staff. Findings show that different staff groups have different perspectives on trauma and trauma informed care. Limitations were found in staff's knowledge of trauma, implementation of evidence-based supports, and access to specialist services for adults with an intellectual disability. All participants highlighted the need for training on trauma.
JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES
(2022)
Article
Health Care Sciences & Services
Marc L. Copersino, Elspeth Slayter, R. Kathryn McHugh, Karen J. Shedlack, Scott E. Lukas, Roger D. Weiss
Summary: This study examines the clinical utility of an alcohol and other drug refusal skills intervention for individuals with intellectual disability. The findings suggest that participation in the intervention group significantly improves refusal skills, and the extent of skill acquisition is more strongly influenced by group attendance rather than individual differences in learning ability.
DISABILITY AND HEALTH JOURNAL
(2022)
Article
Behavioral Sciences
C. P. J. A. Monte, J. B. A. M. Arends, R. H. C. Lazeron, I. Y. Tan, P. A. J. M. Boon
Summary: The aim of the ECOMRAID trial was to study seizure-related complications in people with epilepsy and intellectual disability living in a residential setting. A retrospective study was conducted, and data from 370 patients were collected. The study found a high prevalence of seizure-related complications, with fewer complications in residential care institutions compared to specialized epilepsy clinics.
EPILEPSY & BEHAVIOR
(2023)
Article
Psychiatry
Sophie Lonchampt, Fabienne Gerber, Jean-Michel Aubry, Jules Desmeules, Markus Kosel, Marie Besson
Summary: Polypharmacy and inappropriate prescription are common in adults with intellectual disabilities, with all patients being polymedicated and an average of 5.7 potentially inappropriate medications per hospitalization. Specific prescribing and deprescribing guidelines are needed for this population.
FRONTIERS IN PSYCHIATRY
(2021)
Article
Environmental Sciences
Anna Gutowska
Summary: The study explores the role of informal caregivers for adults with intellectual disabilities in Poland. It finds that caregiving has a negative impact on the well-being of caregivers and highlights issues such as addiction to caregiving, psychophysical fatigue, and neglect from the society. As the number of seniors with intellectual disabilities continues to grow, it is important to consider the unique situations of caregivers.
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH
(2022)
