“Is it Going to Hurt?”: The Impact of the Diagnostic Odyssey on Children and Their Families

Factors associated with perceived uncertainty among parents of children with undiagnosed medical conditions

(2012) Anne C. Madeo et al.   AMERICAN JOURNAL OF MEDICAL GENETICS PART A

The daily patterns of time use for parents of children with complex needs

(2012) Damhnat McCann et al.   Journal of Child Health Care

Living Without a Diagnosis: The Parental Experience

(2010) Celine Lewis et al.   Genetic Testing and Molecular Biomarkers

Parental perceived value of a diagnosis for intellectual disability (ID): A qualitative comparison of families with and without a diagnosis for their child's ID

(2009) Nancy L. Makela et al.   AMERICAN JOURNAL OF MEDICAL GENETICS PART A

Delayed Diagnosis in Duchenne Muscular Dystrophy: Data from the Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet)

(2009) Emma Ciafaloni et al.   JOURNAL OF PEDIATRICS

Behavioral Approaches to Anxiety and Pain Management for Pediatric Venous Access

(2008) Lindsey L. Cohen   PEDIATRICS

Clinical Implications of Unmanaged Needle-Insertion Pain and Distress in Children

(2008) Robert M. Kennedy et al.   PEDIATRICS

Social desirability response bias and self-report of psychological distress in pediatric chronic pain patients

(2007) Deirdre E. Logan et al.   PAIN