Article
Ethics
Birju R. Rao, Faisal M. Merchant, David H. Howard, Daniel Matlock, Neal W. Dickert
Summary: Shared decision-making is now a key focus in health policy, but there is still debate over which outcomes should be prioritized for policy-mandated shared decision-making.
JOURNAL OF LAW MEDICINE & ETHICS
(2021)
Article
Cardiac & Cardiovascular Systems
Birju R. Rao, Faisal M. Merchant, Eli R. Abernethy, Christine Bethencourt, Dan Matlock, Neal W. Dickert
Summary: This study explored patients' paths to making decisions about implantable cardioverter-defibrillators (ICD) and found challenges in shared decision-making. Understanding patients' decision-making paths during consultations with primary cardiologists can inform the implementation of shared decision-making and suggest that decision aids should focus on the experience of living with an ICD.
JOURNAL OF CARDIAC FAILURE
(2022)
Article
Ethics
David M. Shaw, Christophe O. Schneble
Summary: This article summarises previously described proposals for ethical governance of autonomous vehicles, criticises them, and offers an alternative solution of joint decision making between humans and cars. The method aims to overcome the shortcomings of humans and computers in ethical and processing capacity, enabling shared decision making in collision situations.
SCIENCE AND ENGINEERING ETHICS
(2021)
Article
Critical Care Medicine
Shawn P. E. Nishi, Lisa M. Lowenstein, Tito R. Mendoza, Maria A. Lopez, Laura C. Crocker, Karen Sepucha, Jiangong Niu, Robert J. Volk
Summary: Among patients recently assessed for LCS, the quality of decision-making is highly variable, with patients valuing early cancer detection over concerns about harms. Patients were more likely to receive information on the benefits of LCS than on the risks, and one-third experienced some degree of decisional conflict. However, most patients felt they were adequately involved in the screening decision-making process.
Article
Computer Science, Information Systems
Angela K. Shen, Jeremey J. Michel, Aisha T. Langford, Elizabeth A. Sobczyk
Summary: Clinical decision support systems provide automated reminders in electronic health systems to support physicians and other health professionals in clinical decision-making. The new clinical guidance on shared clinical decision-making for adult vaccines has raised challenges for providers in how to best implement recommendations and ensure patient-provider conversations occur. The goal of shared decision-making is to facilitate discussions rather than solely focusing on vaccination, necessitating provider guidance and tools to ensure vaccines are not overlooked.
JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION
(2021)
Article
Public, Environmental & Occupational Health
Ellen A. Lipstein, William B. Brinkman, Yin Zhang, Kevin A. Hommel, Richard F. Ittenbach, Chunyan Liu, Lee A. Denson
Summary: This study aimed to assess the feasibility and acceptability of a multi-component intervention for pediatric inflammatory bowel disease. The results showed that two out of three intervention components were feasible and the intervention led to a significant increase in visit length. Parents, patients, and most physicians rated the intervention as acceptable. The intervention was associated with a higher level of observed shared decision making. Overall, the intervention shows promise in supporting shared decision making and engaging parents and patients in pediatric IBD decisions.
PATIENT EDUCATION AND COUNSELING
(2022)
Article
Medicine, General & Internal
Cheng-Hsu Chen, Chia-Tien Hsu, Ming-Ju Wu, Shang-Feng Tsai
Summary: This 5-year project on shared decision making for renal biopsy collected cases of biopsy and bleeding, and launched a quality improvement process for shared decision making, including the use of videos and an information platform. Results showed that shared decision making helped patients better understand renal biopsy, leading to increased satisfaction.
Article
Pediatrics
Jurg Caspar Streuli, James Anderson, Sierra Alef-Defoe, Eva Bergstrasser, Jovana Jucker, Stephanie Meyer, Sophia Chaksad-Weiland, Effy Vayena
Summary: By combining the best interest standard (BIS) and shared decision-making (SD-M), a shared optimum approach (SOA) has been proposed for improving paediatric decision-making, based on principles of participation, provision, and protection. The study challenges reductive approaches to BIS and emphasizes the importance of shared decision-making in implementing the best interest standard.
EUROPEAN JOURNAL OF PEDIATRICS
(2021)
Article
Critical Care Medicine
Urs Weber, Qiang Zhang, Derek Ou, James Garritano, Jennifer Johnson, Nathanial Anderson, Andrea K. Knies, Belinda Nhundu, Cynthia Bautista, Kevin B. Huang, Ana-Maria Vranceanu, Jonathan Rosand, David Y. Hwang
Summary: The study aimed to identify factors associated with dissatisfaction with shared decision-making support among families of neuro-critically ill patients. Results showed that families who were dissatisfied with decision-making support participated in fewer formal family meetings in the neuro-ICU. Future studies should consider broad inclusion criteria and promoting frequency of family meetings as a core strategy to improve family satisfaction with neurocritical care decision-making support.
NEUROCRITICAL CARE
(2021)
Article
Public, Environmental & Occupational Health
Ellen A. Lipstein, Maggie Breslin, Cassandra M. Dodds, Michael D. Kappelman, Nicholas J. Ollberding, Peter Margolis, Yingying Xu, William B. Brinkman
Summary: Through a nested, cluster-randomized trial, we found no difference in knowledge improvement with a shared decision making intervention as part of consent. There were no significant differences in knowledge or decisional support between study arms, but there was variation in clinician use of the intervention.
PATIENT EDUCATION AND COUNSELING
(2021)
Article
Health Policy & Services
Alex Waddell, Gerri Spassova, Louise Sampson, Lena Jungbluth, Jennifer Dam, Peter Bragge
Summary: This study aimed to develop a series of interventions to increase the use of shared decision-making (SDM) in maternity care. Pain management options during labor were identified as a high priority for SDM application. Three interventions were developed, including patient and clinician access to the government's maternity record, a persuasive communications campaign, and SDM simulation training. Successful implementation factors included strategic alignment, leadership support, pre-existing resources, clinical champions, and equity.
HEALTH RESEARCH POLICY AND SYSTEMS
(2023)
Article
Chemistry, Medicinal
Hector Guadalajara, Olatz Lopez-Fernandez, Miguel Leon Arellano, Victor Dominguez-Prieto, Cristina Carames, Damian Garcia-Olmo
Summary: Personalized precision medicine (PPM) advocates for the use of genomic information in personalized treatment and shared decision-making (SDM) to balance personal and clinical factors, aiming to improve the quality and value of care. However, the knowledge base for clinicians to individualize information and involve patients in the decision-making process is relatively limited. Ethical implications of SDM need to be addressed, and efforts should be made to enhance clinician and patient training, as well as the development and utilization of SDM tools in PPM.
Review
Public, Environmental & Occupational Health
Xuejing Li, Dan Yang, Meiqi Meng, Junqiang Zhao, Yiyi Yin, Hefang Wang, Xiaoyan Zhang, Qian Liu, Mengdi Li, Jianping Liu, Yufang Hao
Summary: Shared decision-making (SDM) is in its early stages in mainland China. There is a lack of comprehensive understanding of decisional needs concepts, and limited research on decision support and decisional outcomes. Uniform standards for developing patient decision aids are lacking. Chinese SDM studies primarily focus on physiological needs.
FRONTIERS IN PUBLIC HEALTH
(2023)
Article
Health Care Sciences & Services
Anja K. Kother, Katharina U. Siebenhaar, Georg W. Alpers
Summary: The study found that most participants had a strong need for information and a moderate preference for participation in generic decision making. In the hypothetical case of a COVID-19 infection, most people preferred decisions led by physicians. Generic participation preference was the strongest predictor of COVID-19-related participation preference, followed by age, education, and anxiety. Additionally, higher levels of generic and COVID-19-related participation preferences predicted lower acceptance of triage.
MEDICAL DECISION MAKING
(2021)
Review
Medicine, General & Internal
Amy C. Barradell, Charlotte Gerlis, Linzy Houchen-Wolloff, Hilary L. Bekker, Noelle Robertson, Sally J. Singh
Summary: We are developing an intervention to support healthcare professionals in aiding patients' pulmonary rehabilitation decision-making. By evaluating interventions in chronic respiratory diseases, we found that SDM interventions including patient decision aids, healthcare professional training, and consultation prompts can support patient PR decisions and improve health outcomes.
Meeting Abstract
Health Care Sciences & Services
Marie Bakitas, James Dionne-Odom, Maria Pisu, Andres Azuero, Dilip Babu, Lucy Gansauer, James Bearden, Keith Swetz, Leigh Minchew, Margaret Sullivan, Rachel Wells, Richard Taylor, Yasemin Turkman, Thomas Ramsey, Lisa Zubkoff
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2019)
Article
Health Care Sciences & Services
Haider J. Warraich, Mathew S. Maurer, Chetan B. Patel, Robert J. Mentz, Keith M. Swetz
JOURNAL OF PALLIATIVE MEDICINE
(2019)
Editorial Material
Ethics
Keith M. Swetz, Sandra L. Frazier, Jarrett W. Richardson, Tait D. Shanafelt
AMERICAN JOURNAL OF BIOETHICS
(2019)
Article
Health Care Sciences & Services
Arif H. Kamal, Janet H. Bull, Steven P. Wolf, Keith M. Swetz, Tait D. Shanafelt, Katherine Ast, Dio Kavalieratos, Christian T. Sinclair
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2020)
Letter
Health Care Sciences & Services
Arif Kamal, Janet H. Bull, Steven P. Wolf, Keith M. Swetz, Tait D. Shanafelt, Katherine Ast, Dio Kavalieratos, Christian T. Sinclair
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2020)
Article
Cardiac & Cardiovascular Systems
Nathan E. Goldstein, Harriet Mather, Karen McKendrick, Laura P. Gelfman, Mathew D. Hutchinson, Rachel Lampert, Hannah I. Lipman, Daniel D. Matlock, Jacob J. Strand, Keith M. Swetz, Jill Kalman, Jean S. Kutner, Sean Pinney, R. Sean Morrison
JOURNAL OF THE AMERICAN COLLEGE OF CARDIOLOGY
(2019)
Editorial Material
Ethics
Leslie C. Avant, Keith Mark Swetz
AMERICAN JOURNAL OF BIOETHICS
(2020)
Retraction
Health Care Sciences & Services
Arif H. Kamal, Janet H. Bull, Steven P. Wolf, Keith M. Swetz, Tait D. Shanafelt, Katherine Ast, Dio Kavalieratos, Christian T. Sinclair
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2020)
Article
Health Care Sciences & Services
Mathias Schloegl, Anand S. Iyer, Florian Riese, David Blum, Lanier O'Hare, Tejaswini Kulkarni, Sophie Pautex, Jan Schildmann, Keith M. Swetz, Pallavi Kumar, Christopher A. Jones
Summary: Prognostication is considered as an essential component in medical care, but it becomes increasingly challenging as research advances bring new treatments for complex conditions like cancer and dementia. This article, written by palliative care clinicians with expertise in geriatrics, pulmonology, and oncology, aims to provide a helpful framework for prognostication in these illnesses.
JOURNAL OF PALLIATIVE MEDICINE
(2021)
Article
Health Care Sciences & Services
Mathias Schloegl, Esther S. Pak, Amar D. Bansal, Jane O. Schell, Sabha Ganai, Arif H. Kamal, Keith M. Swetz, Jennifer M. Maguire, Aristotelis Perrakis, Haider J. Warraich, Christopher A. Jones
Summary: This article presents 10 tips for PC clinicians to consider when caring and discussing prognosis for seriously ill patients, emphasizing the importance of broad understanding of treatments for serious diseases and collaboration in prognostication with specialists.
JOURNAL OF PALLIATIVE MEDICINE
(2021)
Article
Cardiac & Cardiovascular Systems
Melisa Wilson, Rebekah H. Anguiano, Rana L. A. Awdish, James C. Coons, Amy Kimber, Melissa Morrison, Sara Paulus, Ann Schmit, Frank Spexarth, Keith M. Swetz, Nathan J. Verlinden, Mary E. Whittenhall, Margaret R. Sketch, Meredith Broderick, Jacqueline Brewer
Summary: Referral to palliative or supportive care services is challenging for patients with pulmonary arterial hypertension (PAH). Experts reached a consensus that patients should be referred to these services when disease symptoms become unmanageable or for end-of-life care. Pain management techniques, end-of-life care, and psychosocial recommendations were identified as important services. Discussing palliative or supportive care with patients, focusing on their overall health and treatment adherence, as well as prioritizing psychosocial aspects of care, was found to be important.
PULMONARY CIRCULATION
(2022)
Article
Medicine, General & Internal
J. Nicholas Dionne-Odom, Deborah B. Ejem, Rachel Wells, Andres Azuero, Macy L. Stockdill, Konda Keebler, Elizabeth Sockwell, Sheri Tims, Sally Engler, Elizabeth Kvale, Raegan W. Durant, Rodney O. Tucker, Kathryn L. Burgio, Jose Tallaj, Salpy Pamboukian, Keith M. Swetz, Marie A. Bakitas
Meeting Abstract
Health Care Sciences & Services
Rachel Wells, James Dionne-Odom, Andres Azuero, Harleah Buck, Sally Engler, Konda Keebler, Tims Tims, Macy Stockdill, Elizabeth Sockwell, Deborah Ejem, Rodney Tucker, Raegan Durant, Kathryn Burgio, Salpy Pamboukian, Keith Swetz, Marie Bakitas
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2020)
Meeting Abstract
Health Care Sciences & Services
Marie Bakitas, James Dionne-Odom, Deborah Ejem, Rachel Wells, Andres Azuero, Macy Stockdill, Konda Keebler, Elizabeth Sockwell, Tims Tims, Sally Engler, Elizabeth Kvale, Raegan Durant, Rodney Tucker, Kathryn Burgio, Keith Swetz, Salpy Pamboukian
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2020)
Meeting Abstract
Health Care Sciences & Services
James Dionne-Odom, Deborah Ejem, Rachel Wells, Andres Azuero, Macy Stockdill, Konda Keebler, Elizabeth Sockwell, Tims Tims, Sally Engler, Elizabeth Kvale, Raegan Durant, Rodney Tucker, Kathryn Burgio, Salpy Pamboukian, Keith Swetz, Marie Bakitas
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2020)
