Article
Health Care Sciences & Services
Kristen E. Pecanac, Roger L. Brown, Hanna B. Kremsreiter
Summary: The study found that about 43% of respondents reported making a major medical treatment decision, with decisions about surgery and life support being the most difficult. Decisional conflict was higher for those making decisions for a spouse/partner, parent, or someone else, and lower for those with stronger abilities to actively engage with healthcare providers and understand health information.
JOURNAL OF GENERAL INTERNAL MEDICINE
(2021)
Article
Otorhinolaryngology
Rohit Nallani, Joshua B. Smith, Joseph P. Penn, Andres M. Bur, Kiran Kakarala, Yelizaveta Shnayder, Mark R. Villwock, Kevin J. Sykes
Summary: Head and neck cancer patients with higher anxiety and lower quality of life experienced greater decision regret at 3 and 6 months post-treatment. Factors associated with greater regret included later disease stage at presentation, nonprimary surgical treatment, and lower health literacy.
HEAD AND NECK-JOURNAL FOR THE SCIENCES AND SPECIALTIES OF THE HEAD AND NECK
(2022)
Article
Oncology
Muemtaz Koeksal, Clara Hoppe, Anna-Katharina Schroeder, Davide Scafa, David Koch, Gustavo R. Sarria, Christina Leitzen, Alina Abramian, Christina Kaiser, Andree Faridi, Christoph Henkenberens, Leonard C. Schmeel, Frank A. Giordano
Summary: This study evaluates decision regret and physical and psychological well-being among breast cancer patients who underwent adjuvant radiotherapy and explores their associations with patient, tumor, treatment, and symptom characteristics. The findings suggest that most patients have little or no decision regret, but several characteristics such as radiation therapy and psychological well-being are associated with higher levels of regret.
Article
Health Care Sciences & Services
Inge S. van Strien-Knippenberg, Marieke C. S. Boshuizen, Domino Determann, Jasmijn H. de Boer, Olga C. Damman
Summary: This study aimed to co-create decision-relevant information about adjuvant breast cancer treatment with patients, including personalized survival rates, harm information, and VCMs. Patients identified the need for an overview/structure of information after diagnosis and transparent benefit/harm information for treatment options.
HEALTH EXPECTATIONS
(2022)
Article
Oncology
Rachel A. Freedman, Naomi Y. Ko, Ruth Lederman, Haley Gagnon, Tsion Fikre, Daniel A. Gundersen, Anna C. Revette, Ashley Odai-Afotey, Olga Kantor, Dawn L. Hershman, Katherine D. Crew, Nancy L. Keating
Summary: This study aimed to investigate the knowledge and understanding of breast cancer and treatment among breast cancer survivors. The research found significant variability in knowledge among the survivors, with some individuals having limited knowledge despite feeling well-informed. Black and Hispanic women had less knowledge about their cancers compared to White women. Understanding treatment rationale was associated with treatment initiation.
BREAST CANCER RESEARCH AND TREATMENT
(2022)
Article
Public, Environmental & Occupational Health
Stacy Cooper Bailey, Emma N. Andrews, Candida C. Halton, Michael S. Wolf
Summary: The study found that providing a health literacy-appropriate discussion guide significantly improved women's understanding of menopause symptoms and treatment options compared to traditional standard educational materials. The majority of women preferred the discussion guide and rated it highly in terms of appearance and content.
JOURNAL OF WOMENS HEALTH
(2021)
Article
Oncology
Ashley Odai-Afotey, Ruth I. Lederman, Naomi Y. Ko, Haley Gagnon, Tsion Fikre, Daniel A. Gundersen, Anna C. Revette, Dawn L. Hershman, Katherine D. Crew, Nancy L. Keating, Rachel A. Freedman
Summary: This study aimed to explore the disparities in breast cancer treatment among low-income and minority women. The results showed that non-White women had lower health literacy and numeracy and reported more financial concerns. While some women declined recommended treatments, overall treatment initiation rates were high.
BREAST CANCER RESEARCH AND TREATMENT
(2023)
Article
Psychology, Multidisciplinary
Olimpia Matarazzo, Lucia Abbamonte, Claudia Greco, Barbara Pizzini, Giovanna Nigro
Summary: The prevailing theory of regret in psychological literature may be too restrictive, as regret can also be elicited by circumstances forcing a choice inconsistent with one's intentions, regardless of outcome valence. Regret is influenced by external circumstances and a complex emotional constellation can be produced by decision-making, involving various emotions such as anger, disappointment, and satisfaction.
FRONTIERS IN PSYCHOLOGY
(2021)
Article
Oncology
Mariam Chichua, Eleonora Brivio, Davide Mazzoni, Gabriella Pravettoni
Summary: This commentary reflects on the literature on post-treatment cancer patient regret, identifying three main aspects of shared decision-making that predict patient regret, and providing recommendations for physicians involved in the process.
SUPPORTIVE CARE IN CANCER
(2022)
Article
Health Care Sciences & Services
Danielle M. Muscat, Heather L. Shepherd, Don Nutbeam, Lyndal Trevena, Kirsten J. McCaffery
Summary: This paper presents an integrated model that aims to enhance patient engagement in healthcare by drawing on the strengths of health literacy and shared decision-making concepts. The model includes addressing patients' skills and capacities, as well as modifying written and verbal information. It proposes an expanded model of shared decision-making that incorporates health literacy concepts and promotes two-tiered intervention methods to improve communication targeting and personalization and support the development of transferable health literacy skills among patients.
JOURNAL OF GENERAL INTERNAL MEDICINE
(2021)
Article
Health Care Sciences & Services
Izzati Yussof, Nur Fa'izah Ab Muin, Masnizah Mohd, Ernieda Hatah, Nor Asyikin Mohd Tahir, Noraida Mohamed Shah
Summary: The study aimed to determine the prevalence and types of misinformation related to breast cancer on Twitter, as well as the differences between English and Malay tweets. The results showed that misinformation on breast cancer prevention and treatment is widespread, with significantly more misinformation in Malay tweets compared to English ones. The study highlights the importance of educating patients on digital health literacy.
Article
Public, Environmental & Occupational Health
Alia Almoajel, Samar Alshamrani, Mesnad Alyabsi
Summary: This study aims to investigate the impact of e-health literacy on breast cancer literacy among Saudi women. The findings reveal that the participants have a high level of e-health literacy, which is correlated to their increased level of breast cancer literacy. The study emphasizes the importance of e-health literacy about breast cancer.
FRONTIERS IN PUBLIC HEALTH
(2022)
Article
Public, Environmental & Occupational Health
Kazuhiro Nakayama, Yuki Yonekura, Hitomi Danya, Kanako Hagiwara
Summary: Health literacy is often low among Japanese, making it difficult for them to evaluate health information and make informed decisions. This study found that people in Japan generally lack the skills to evaluate information and compare options when making decisions. Health literacy is significantly and positively associated with these specific skills, but opportunities to learn them are limited.
Article
Oncology
Lin Xiao, Jingxia Miao, Meifang Peng, Haihua Jiang, Suting Liu, Yawei Liu, Lili Zhang
Summary: The study found that health literacy, especially information acquisition ability and communication interaction ability, played a significant role in Chinese cancer patients' involvement in treatment decision-making.
Article
Oncology
Richard Harding, Naveen Salins, Krishna Sharan, Maria L. Ekstrand
Summary: The study revealed limited understanding of diagnosis and prognosis among cancer patients and family members in India, with different decision preferences and levels of insight. Health professionals faced challenges in disclosing information and making decisions, leading to inappropriate treatment choices and financial anxieties.