Article
Pediatrics
Hao-Chuan Liu, Chung-Hsien Chaou, Chiao-Wei Lo, Hung-Tao Chung, Mao-Sheng Hwang
Summary: This study investigated the impacts of different structural heart defects and treatments on the psychology and health-related quality of life (HRQoL) of children and adolescents with congenital heart disease (CHD). It found that cyanotic heart disease (CyHD) had the most significant impact on patients' psychological and HRQoL status.
Article
Nutrition & Dietetics
Marco Crocco, Angela Calvi, Paolo Gandullia, Federica Malerba, Anthea Mariani, Sonia Di Profio, Barbara Tappino, Stefano Bonassi
Summary: This study aimed to assess the Health-Related Quality of Life (HRQoL) of Italian children and their parents with coeliac disease using the Coeliac Disease Dutch Questionnaire (CDDUX). The Italian version of the CDDUX questionnaire was found to be a valid and reliable tool for evaluating HRQoL in children and adolescents with CD, showing significant differences in HRQoL among populations of different nationalities. The main clinical variable affecting HRQoL in both children and parents was found to be lower age.
Article
Allergy
Cecile Frachette, Agnes Fina, Eric Fontas, Dominique Donzeau, Marie Hoflack, Frederique Gastaud, Elisabeth Baechler, Emmanuelle Dor, Bruno Descos, Valerie Triolo, Stephanie Berthet, Carole Bailly-Piccini, Melissa Beguin, Bertine Flokstra-de Blok, Thierry Bourrier, Lisa Giovannini-Chami
Summary: The study aimed to assess the health-related quality of life (HRQL) of food-allergic patients compared to the general population and those with other chronic diseases. Results showed that food-allergic patients had better HRQL in certain domains compared to healthy controls and other chronic disease patients, but had poorer overall health perception. While most food-allergic children had been prescribed an epinephrine autoinjector, only slightly over half of them carried it with them at all times.
PEDIATRIC ALLERGY AND IMMUNOLOGY
(2022)
Article
Multidisciplinary Sciences
Hiroki Sugimori, Maki Hirao, Ataru Igarashi, Hiroshi Yatsuhashi, Shunya Ikeda, Naohiko Masaki, Hiroshi Yotsuyanagi, Takeshi Yoda, Takeshi Odajima, Tomoyuki Takura, Tomohiro Hirao
Summary: This study comprehensively assessed the health state utilities of patients with HB, HC, and hepatitis-related conditions in Japan using a nationwide survey. Self-administered questionnaires and expert estimations were used to determine the utilities of different disease conditions.
SCIENTIFIC REPORTS
(2022)
Article
Medicine, General & Internal
Mohamad Adam Bujang, Wei Hong Lai, Selvasingam Ratnasingam, Xun Ting Tiong, Yoon Khee Hon, Eileen Pin Pin Yap, Yvonne Yih Huan Jee, Nurul Fatma Diyana Ahmad, Alex Ren Jye Kim, Masliyana Husin, Jamaiyah Haniff
Summary: This study developed and validated a health-related quality of life instrument called the HRQ-6D, aiming to measure an individual's HRQOL within a 24-hour period. Through the questionnaire development and testing process involving five phases, six domains were identified, and the HRQ-6D was found to be reliable, valid, and significantly associated with clinical evidence.
JOURNAL OF CLINICAL MEDICINE
(2023)
Article
Dentistry, Oral Surgery & Medicine
Kristina Bertl, Georgios Tsakos, Nikolaos Pandis, Anna Bogren, Johan Burisch, Andreas Stavropoulos
Summary: This study is the first to find that oral health problems are associated with the disease-specific quality of life (QoL) of inflammatory bowel disease (IBD) patients, and vice versa. This emphasizes the potential advantages of including dental professionals in the multi-disciplinary treatment teams of IBD patients.
JOURNAL OF CLINICAL PERIODONTOLOGY
(2023)
Article
Health Care Sciences & Services
Simegn Molla, Mezgebu Yitayal, Getasew Amare
Summary: This study aimed to assess the health-related quality of life and associated factors among adult heart failure patients in southern Ethiopia hospitals. The study revealed that age and gender of participants, family size, occupation, residency, admission history, salt intake, and NYHA class were significant factors influencing the HRQoL of patients with heart failure. Overall, patients with heart failure had a low HRQoL.
RISK MANAGEMENT AND HEALTHCARE POLICY
(2021)
Article
Health Care Sciences & Services
Jelizaveta Gordejeva, Richard Zowalla, Monika Pobiruchin, Martin Wiesner
Summary: This study analyzed disease-related Wikipedia pages written in English, German, and Russian using readability metrics. The results showed that most disease-related articles on Wikipedia are difficult or very difficult to read, suggesting they are not suitable as patient education materials.
JOURNAL OF MEDICAL INTERNET RESEARCH
(2022)
Article
Cardiac & Cardiovascular Systems
Reaksmei Ly, Clement Karsenty, Pascal Amedro, Sarah Cohen, Olivia Domanski, Francois Godart, Jelena Radojevic, Guy Vaksmann, Nicole Naccache, Anissa Boubrit, Vincent Bataille, Sebastien Hascoet, Magalie Ladouceur
Summary: This study aimed to determine the predictive value of quality of life (QoL) on outcomes in adults with congenital heart disease (ACHD) and heart failure (HF). The study results showed that patients with poor QoL experience severe events more frequently, thus highlighting the importance of evaluating QoL and implementing rehabilitation programs to alter their trajectory.
JOURNAL OF THE AMERICAN HEART ASSOCIATION
(2023)
Article
Oncology
Li-Fei Sun, Sheng Huang, Yun-Fen Li, Zhuang-Qing Yang, Xiao-Juan Yang, Jie-Ya Zou, Xiao-Wen Wang, Jian-Yun Nie
Summary: This study explored the factors influencing the health-related quality of life of spouses of breast cancer patients and the suitable questionnaires for assessment. The results showed that social support and cognition of the treatment effect were important factors influencing the health-related quality of life of spouses. The EQ-5D-3L questionnaire demonstrated good reliability and validity in measuring the quality of life of spouses of breast cancer patients.
FRONTIERS IN ONCOLOGY
(2022)
Article
Cardiac & Cardiovascular Systems
Javed Butler, Amanda Stebbins, Vojtech Melenovsky, Nancy K. Sweitzer, Martin R. Cowie, Josef Stehlik, Muhammad Shahzeb Khan, Robert O. Blaustein, Justin A. Ezekowitz, Adrian F. Hernandez, Carolyn S. P. Lam, Richard Nkulikiyinka, Christopher M. O'Connor, Burkert M. Pieske, Piotr Ponikowski, John A. Spertus, Adriaan A. Voors, Kevin J. Anstrom, Paul W. Armstrong
Summary: This study investigated the effects of vericiguat compared with placebo on health status outcomes in heart failure patients. The Kansas City Cardiomyopathy Questionnaire was used to measure the outcomes. The results showed that vericiguat did not significantly improve the KCCQ scores compared with placebo. However, vericiguat reduced the risk of cardiovascular death or heart failure hospitalization across the range of baseline health status.
CIRCULATION-HEART FAILURE
(2022)
Article
Medicine, General & Internal
Mohammed Nasir, Konno Taddesse, Muluken Ahmed, Zeleke Argaw, Tigistu Gebreyonnis Gebretensaye, Sura Markos
Summary: This study aimed to assess the quality of life (QOL) of adult rheumatic heart disease (RHD) patients who had followed up at St Peter and Tikur Anbessa Hospital, Ethiopia. The results showed that RHD patients had poor QOL, and factors such as age, marital status, place of residence, comorbidity, number of medications, and intervention were associated with QOL.
INTERNATIONAL JOURNAL OF GENERAL MEDICINE
(2023)
Review
Public, Environmental & Occupational Health
Zhaoli Tang, Almea Matanock, Seonghye Jeon, Andrew J. Leidner
Summary: This study reviewed the literature and developed pooled quality-adjusted life-year (QALY) estimates associated with pneumococcal disease states. The findings indicated disparities in QOL estimates associated with pneumococcal disease in the literature. Pooled estimates provide a consistent source for future modeling efforts.
JOURNAL OF PUBLIC HEALTH
(2022)
Article
Medicine, General & Internal
Edyta Kinel, Krzysztof Korbel, Mateusz Kozinoga, Dariusz Czaprowski, Lukasz Stepniak, Tomasz Kotwicki
Summary: This study compared the validity of ISYQOL-PL and SRS-22 questionnaire scores in patients with scoliosis, showing a significantly better quality of life in mild scoliosis with ISYQOL-PL. The severity of scoliosis had a direct statistically significant impact on patients' quality of life when evaluated using ISYQOL-PL.
JOURNAL OF CLINICAL MEDICINE
(2021)
Article
Health Care Sciences & Services
Anan S. Jarab, Hanan W. Hamam, Walid A. Al-Qerem, Shrouq R. Abu Heshmeh, Tareq L. Mukattash, Eman A. Alefishat
Summary: This study aimed to evaluate the health-related quality of life (HRQOL) among patients with heart failure (HF) in Jordan and explore factors associated with poor HRQOL. The study found that the number of HF medications and not taking a loop diuretic significantly increased HRQOL, while the number of other chronic diseases, higher NYHA classes, low monthly income, and being unsatisfied with prescribed medications significantly decreased HRQOL.
HEALTH AND QUALITY OF LIFE OUTCOMES
(2023)
