Review
Medicine, General & Internal
Massimo Romano
Summary: Heart failure is a common and clinically challenging disease with high morbidity and mortality. However, compared to cancer patients, the palliative care needs of heart failure patients are often overlooked. Some key unresolved issues regarding early referral to palliative care programs need to be addressed, including patient selection criteria, roles of healthcare providers, and timing for promoting patient awareness and shared decision-making.
JOURNAL OF CLINICAL MEDICINE
(2022)
Article
Cardiac & Cardiovascular Systems
Lisa Hentsch, Piotr Z. Sobanski, Monica Escher, Sophie Pautex, Philippe Meyer
Summary: As life expectancy increases and survival rate after cardiovascular events improves, the number of people living with chronic heart failure is rising. Palliative care can address the significant quality of life limitation experienced by those with chronic heart diseases. However, models for integrated palliative care are scarce and often only available for end-of-life patients. This paper describes the implementation of a model to improve early integration of palliative care for heart failure patients, enabling access to care and allowing patients to plan according to their values and preferences. However, the effectiveness of this interdisciplinary model on patients' quality of life and symptom burden still needs evaluation.
FRONTIERS IN CARDIOVASCULAR MEDICINE
(2022)
Article
Cardiac & Cardiovascular Systems
Bradi B. Granger, James A. Tulsky, Brystana G. Kaufman, Robert M. Clare, Kevin Anstrom, Daniel B. Mark, Kimberly A. Johnson, Chetan B. Patel, Mona Fiuzat, Karen Steinhauser, Christopher O'connor, Joseph G. Rogers, Robert J. Mentz
Summary: This study explored patterns of polypharmacy in patients with advanced heart failure and evaluated the impact of interdisciplinary palliative care on medication counts. The results showed that polypharmacy was common at baseline and increased during follow-up, but the palliative intervention did not affect medication counts compared to standard care.
JOURNAL OF CARDIAC FAILURE
(2022)
Review
Cardiac & Cardiovascular Systems
Manuel Martinez-Selles, Tomasz Grodzicki
Summary: This article discusses the modification of cardiovascular drugs in patients with advanced heart failure who are not eligible for heart transplantation or ventricular assist devices. It provides recommendations for adjusting drug treatment to meet the needs and wishes of each patient, with a focus on symptomatic improvement.
FRONTIERS IN CARDIOVASCULAR MEDICINE
(2022)
Review
Cardiac & Cardiovascular Systems
Eva Bergstraesser, Saumya Lukose, Karin Zimmermann, Angela Oxenius
Summary: Palliative care for children with advanced heart disease is crucial but often overlooked. This review provides an overview of the current knowledge on these children, including their medical care, symptom burden, experiences of parents, prognostic understanding, and the involvement of pediatric palliative care. The importance of a partnership between pediatric cardiology and pediatric palliative care is emphasized for better support and care for these children and their families.
FRONTIERS IN CARDIOVASCULAR MEDICINE
(2022)
Article
Nursing
Karen Higginbotham, Ian Jones, Martin Johnson
Summary: This study explored how healthcare professionals and patients negotiate decision making in end stage heart failure care, leading to key themes of symptom recognition, care organization, and information provision.
JOURNAL OF ADVANCED NURSING
(2021)
Article
Nutrition & Dietetics
Tatsuhiro Shibata, Kazutoshi Mawatari, Naoko Nakashima, Koutatsu Shimozono, Kouko Ushijima, Yumiko Yamaji, Kumi Tetsuka, Miki Murakami, Kouta Okabe, Toshiyuki Yanai, Shoichiro Nohara, Jinya Takahashi, Hiroki Aoki, Hideo Yasukawa, Yoshihiro Fukumoto
Summary: The study found that HF-specific palliative care team activities positively impact EOLC discussions, therapy and care for HF patients, reducing invasive procedures, increasing the use of symptom relief medications, improving meal quality, and enhancing participation in EOLC discussions.
Article
Urology & Nephrology
Kathryn Ducharlet, Jennifer Weil, Hilton Gock, Jennifer Philip
Summary: This study explored renal clinicians' experiences of providing end-of-life care and developed recommendations to improve experiences. Clinicians reported multiple challenges of end-of-life care experiences resulting in compromised treatment planning and decision making and highlighted priorities to guide better care experiences.
KIDNEY INTERNATIONAL REPORTS
(2023)
Article
Cardiac & Cardiovascular Systems
Carl J. Hoijer, Miriam J. Johnson
Summary: In 2018, 11% of heart failure patients who died in Sweden and had an implanted cardioverter-defibrillator (ICD) received Specialized Palliative Care (SPC). Among those who died outside of hospital, 52% had their ICD deactivated prior to death, with 78% of those accessing SPC having their ICD deactivated.
INTERNATIONAL JOURNAL OF CARDIOLOGY
(2023)
Article
Cardiac & Cardiovascular Systems
Margaret Kruithoff, Douglas Sawyer, Daria Egorova, Rebecca N. Hutchinson
Summary: A retrospective chart review of 53 patients initiated on continuous palliative inotropes found high rates of documented GOCC, but only slightly more than half of the patients had documented discussions regarding preferences for ICD deactivation. Patients seen by palliative care were more likely to have documented discussions about ICD deactivation, and the frequency of palliative care consultation and documented GOCC conversations increased over time.
JOURNAL OF CARDIAC FAILURE
(2022)
Review
Cardiac & Cardiovascular Systems
Ju-Hee Lee, Kyung-Kuk Hwang
Summary: Efforts to improve end-of-life care should focus not only on cancer patients, but also on patients with other serious medical illnesses such as heart failure. Recent guidelines for heart failure provide more clinical considerations for palliative care, emphasizing the importance of early discussions on end-of-life issues and communication with patients and families to establish treatment goals.
KOREAN CIRCULATION JOURNAL
(2022)
Article
Geriatrics & Gerontology
Mana Doi, Yukie Maruyama, Akiko Kaneda, Maya Minamizaki, Masami Fukada, Yuka Kanoya
Summary: This study aims to describe comprehensive nursing practice for older patients with heart failure at their end of life. The findings show that specialized nurses provide acute care, palliative care, and psychological support to alleviate physical and mental symptoms throughout the different stages of chronic heart failure. In addition to nursing care by specialized nurses at each stage shown in this study, it is important to initiate advance care planning early in the end-of-life stage and to provide care for patients with multiple professionals.
Article
Cardiac & Cardiovascular Systems
Javier Fernandez-Martinez, Miriam Romero-Correa, Prado Salamanca-Bautista, Oscar Aramburu-Bodas, Francesc Formiga, Patricia Vazquez-Rodriguez, Alicia Conde-Martel, Jose Angel Garcia-Garcia, Inmaculada Paez-Rubio, Manuel Lopez-Reboiro, Cristina Sanchez-Sanchez, Jose Luis Arias-Jimenez
Summary: The study found that one in four patients admitted with heart failure met criteria for advanced disease, being older with more comorbidities. Specialist palliative care services were only involved in a minority of patients, mostly those who were highly symptomatic or had cancer.
INTERNATIONAL JOURNAL OF CARDIOLOGY
(2021)
Article
Medicine, General & Internal
Jui-Kun Chiang, Yee-Hsin Kao
Summary: Research shows that palliative services are associated with improved quality of end-of-life care for patients with advanced illnesses receiving home-based care, leading to reduced likelihood of dying in a hospital.
Review
Health Care Sciences & Services
M. Pilar Ingle, Cristina Valdovinos, Kelsey L. Ford, Shou Zhou, Sheana Bull, Starlynne Gornail, Xuhong Zhang, Susan Moore, Jennifer Portz
Summary: This study aimed to identify and assess user perspectives of palliative care and end-of-life (PCEOL) portal tools available for patients and caregivers. A scoping review of academic literature identified 12 tools addressing PCEOL domains such as ethical or legal, physical, and psychological or psychiatric. While high user acceptability was reported, little attention was given to usability among older adults.
JOURNAL OF MEDICAL INTERNET RESEARCH
(2021)
Article
Medicine, General & Internal
Henry Llewellyn, Jane Neerkin, Lewis Thorne, Elena Wilson, Louise Jones, Elizabeth L. Sampson, Emma Townsley, Joseph T. S. Low
Article
Oncology
Marc Serfaty, Megan Armstrong, Victoria Vickerstaff, Sarah Davis, Anna Gola, Philip McNamee, Rumana Z. Omar, Michael King, Adrian Tookman, Louise Jones, Joseph T. S. Low
Review
Health Care Sciences & Services
Rebecca J. Anderson, Steven Bloch, Megan Armstrong, Patrick C. Stone, Joseph T. S. Low
PALLIATIVE MEDICINE
(2019)
Article
Gastroenterology & Hepatology
Joseph T. S. Low, Sarah Davis, Lynda Greenslade, Cathy Carroll, Rachel Craig, Jo Wilson, Jennifer-Louise Clancy, Aileen Marshall, Douglas Thorburn, Patrick Stone
JOURNAL OF CLINICAL GASTROENTEROLOGY
(2020)
Article
Health Care Sciences & Services
Rebecca J. Anderson, Patrick C. Stone, Joseph T. S. Low, Steven Bloch
PALLIATIVE MEDICINE
(2020)
Review
Gastroenterology & Hepatology
Shan Shan Vijeratnam, Bridget Candy, Rachel Craig, Aileen Marshall, Patrick Stone, Joseph T. S. Low
Summary: Patients with end-stage liver disease on the liver transplant waiting list may benefit from specialist palliative care, but there are challenges in referral due to lack of clarity on criteria and patients' concerns. Limited understanding and uptake of advance care planning and treatment goals were found among patients. Further research is needed to explore how palliative care could be integrated into this clinical setting.
DIGESTIVE DISEASES AND SCIENCES
(2021)
Article
Public, Environmental & Occupational Health
Rebecca J. Anderson, Patrick C. Stone, Joseph T. S. Low, Steven Bloch
Summary: The study shows that in end-of-life conversations, clinicians and families transition from the uncertainty of prognosis to focusing on patient comfort through changing the topic of discussion, emphasizing the importance of ongoing care and action.
PATIENT EDUCATION AND COUNSELING
(2021)
Article
Gastroenterology & Hepatology
Joseph Low, Catherine Carroll, Jo Wilson, Rachel Craig, Shree Vadera, Sara Cococcia, Douglas Thorburn, Patrick Stone, Aileen Marshall, Victoria Vickerstaff
Summary: The study found that SPICT and BPST have the potential to serve as screening tools to predict palliative care needs for liver patients, but have limited ability in predicting 12-month mortality. Further research is required to determine the implementation of these tools in a clinical setting.
FRONTLINE GASTROENTEROLOGY
(2022)
Article
Health Care Sciences & Services
Sarah Davis, Paul Higgs, Louise Jones, Lynda Greenslade, Jo Wilson, Joseph T. S. Low
Summary: Through interviews with patients with cirrhosis, we found that doctors possess medical power in clinical encounters, leading to patients' inability to express their needs and opinions, highlighting the persistent issue of power in healthcare interactions.
Letter
Biophysics
Rosalina Naidoo, Joseph Low, Michael Rennoldson, Robert Danby, Hayley Leonard, Alejandro Madrigal, Julia Lee, Chloe Anthias
BONE MARROW TRANSPLANTATION
(2022)
Review
Psychology, Clinical
Sarah Davis, Marc Serfaty, Joe Low, Megan Armstrong, Nuriye Kupeli, Anne Lanceley
Summary: This study provides an overview of psychological distress in advanced cancer patients. The results suggest that experiential avoidance (EA) may be beneficial in the short term to alleviate distress but can impair function and limit engagement in life in the longer term. The study highlights the importance of understanding the complexity of EA behaviors and defining EA precisely for clinicians and researchers.
INTERNATIONAL JOURNAL OF BEHAVIORAL MEDICINE
(2023)
Review
Gastroenterology & Hepatology
Sumita Verma, Jay Hingwala, Joseph T. S. Low, Arpan A. Patel, Manisha Verma, Stephen Bremner, Yazan Haddadin, Myrick C. Shinall, Paul Komenda, Nneka N. Ufere
Summary: This article reviews past and ongoing palliative interventional trials in advanced chronic liver disease, identifies barriers and facilitators, and offers guidance on addressing these challenges, aiming to reduce inequities in palliative care provision for patients.
JOURNAL OF HEPATOLOGY
(2023)
Meeting Abstract
Hematology
Rosalina Naidoo, Joseph Low, Mike Rennoldson, Robert Danby, Hayley Leonard, Alejandro Madrigal, Chloe Anthias
BRITISH JOURNAL OF HAEMATOLOGY
(2021)
Correction
Public, Environmental & Occupational Health
H. H. Y. Kwok, J. Low, D. Devakumar
Review
Public, Environmental & Occupational Health
Harley H. Y. Kwok, Joesph Low, Delan Devakumar, Bridget Candy