Article
Rheumatology
David Felson, Vivi Feathers, Chinmayi Naik, Daniel H. Solomon, Michael E. Weinblatt, Nancy Shadick
Summary: In rheumatoid arthritis patients with low 28-joint tender and swollen joint counts but who perceive their disease as active, there may be pain in uncounted joints that could respond to rheumatoid arthritis treatment.
Review
Rheumatology
Tim Pickles, Rhiannon Macefield, Olalekan Lee Aiyegbusi, Claire Beecher, Mike Horton, Karl Bang Christensen, Rhiannon Phillips, David Gillespie, Ernest Choy
Summary: The current standard of care for rheumatoid arthritis (RA) requires assessment of disease activity (DA) through joint counts and blood tests, but the frequency of assessment is often limited by healthcare providers. Patient Reported Outcome Measures (PROMs) could provide an efficient and informative way to assess RA DA.
Article
Biochemical Research Methods
Martin Howell, Noa Amir, Chandana Guha, Karine Manera, Allison Tong
Summary: Randomised controlled clinical trials are essential for clinical guidelines and patient care. Valid and reliable PROMs are necessary to measure patient outcomes. Mixed methods research is critical for developing PROMs.
Article
Dermatology
W. T. N. Hunt, J. Sofela, M. F. Mohd Mustapa
Summary: The majority of BAD PILs have been written at a level that will be challenging for some patients to read. It is recommended to reduce sentence length and aim for shorter words to improve accessibility.
CLINICAL AND EXPERIMENTAL DERMATOLOGY
(2022)
Article
Health Care Sciences & Services
Keon Pearson, Summer Ngo, Eson Ekpo, Ashish Sarraju, Grayson Baird, Joshua Knowles, Fatima Rodriguez
Summary: This study assessed the readability of online patient educational materials (OPEMs) related to Lp(a). The study found that the readability of these materials generally exceeded the sixth grade level recommended by the American Medical Association, potentially surpassing the health literacy of the public.
JOURNAL OF MEDICAL INTERNET RESEARCH
(2022)
Article
Rheumatology
Hayley McBain, Chris Flood, Michael Shipley, Abigail Olaleye, Samantha Moore, Stanton Newman
Summary: The patient-initiated DMARD self-monitoring service was found to reduce healthcare costs compared to usual care, but it was not deemed cost-effective due to higher costs and lack of significant effects on quality of life and disease activity measures.
Article
Rheumatology
Josh Colls, Yvonne C. Lee, Chang Xu, Cassandra Corrigan, Fengxin Lu, Georgia Marquez-Grap, Meredith Murray, Dong H. Suh, Daniel H. Solomon
Summary: The study developed and tested an ePRO app for RA over a 6-month period, with strong adherence observed among patients. Older age and lower disease activity were found to be significant predictors of increased adherence to the app.
Review
Rheumatology
Adewale O. Adebajo, Richard O. Akintayo
Summary: There is room for improvement in treatment adherence in PsA, and successful patient education can help with this issue. However, caution should be exercised when dealing with internet videos and other educational aids not created by health professionals.
CURRENT OPINION IN RHEUMATOLOGY
(2021)
Article
Multidisciplinary Sciences
Yoshitake Kitanishi, Masakazu Fujiwara, Bruce Binkowitz
Summary: This study explores the classification and prediction of health insurance and acute hospital-based claims using machine learning on real-world data in Japan, while association analysis and Topological Data Analysis (TDA) Mapper are employed to interpret the related diseases in depression diagnoses.
Article
Health Care Sciences & Services
Leia Martinez Silvagnoli, Caroline Shepherd, James Pritchett, Jason Gardner
Summary: The study aimed to evaluate audience preferences for plain language summaries (PLSs) of medical research articles on different diseases. Surveys were conducted with participants from various age groups to assess readability levels and formats. Results showed that graphical summaries and medium-complexity text-based summaries were the most preferred formats across different diseases, highlighting the importance of considering audience preferences when creating PLSs.
JOURNAL OF MEDICAL INTERNET RESEARCH
(2022)
Article
Rheumatology
Isabel Morales-Ivorra, Javier Narvaez, Carmen Gomez-Vaquero, Carmen Moragues, Joan M. Nolla, Jose A. Narvaez, Manuel Alejandro Marin-Lopez
Summary: Remote assessment of patients with rheumatoid arthritis has increased in recent years. In this study, two novel composite disease activity indexes based on thermography of hands and machine learning were developed and validated, showing strong correlations with ultrasound-determined synovitis and potential to improve remote consultations with patients with RA.
Article
Rheumatology
Susan Bridgewater, Mwidimi Ndosi, Jill Dawson, Pamela Richards, Christine Silverthorne, Emma Dures, Susan M. Goodman, Catherine Hill, Sarah L. Mackie, Joanna C. Robson
Summary: The Steroid PRO is a 15-item scale that has been found to be valid and reliable for measuring the impact of glucocorticoid therapy in people with rheumatic diseases. The study included participants from the UK, USA, Australia and New Zealand, with a total of 946 responses. The scale structure was determined through Rasch measurement model and exploratory factor analysis, confirming its construct validity and reliability.
ANNALS OF THE RHEUMATIC DISEASES
(2023)
Article
Rheumatology
Emilie Pianarosa, Glen S. Hazlewood, Megan Thomas, Ralph Hsiao, Cheryl Barnabe
Summary: This study identified challenges and possible solutions for health equity in rheumatoid arthritis (RA) care in Canada through interviews with various populations, leading to five primary solutions to address population-based inequities.
JOURNAL OF RHEUMATOLOGY
(2021)
Article
Medicine, General & Internal
Peter C. Taylor, Codrina Ancuta, Orsolya Nagy, Maria C. de la Vega, Andrey Gordeev, Radka Jankova, Umut Kalyoncu, Ivan Lagunes-Galindo, Jadranka Morovic-Vergles, Mariana Peixoto G. U. e Silva de Souza, Bernadette Rojkovich, Prodromos Sidiropoulos, Atsushi Kawakami
Summary: The SENSE study found that treatment satisfaction in rheumatoid arthritis patients is closely related to patients' needs and perspectives, with the use of advanced therapies potentially improving satisfaction. The study also revealed a high preference for oral rheumatoid arthritis medications among patients, who also desire rapid treatment onset.
PATIENT PREFERENCE AND ADHERENCE
(2021)
Article
Rheumatology
Marta Novella-Navarro, Joseluis Cabrera-Alarcon, Natalia Lopez-Juanes, Alejandro Villalba, Elisa Fernandez Fernandez, Irene Monjo, Diana Peiteado, Laura Nuno, Chamaida Plasencia-Rodriguez, Alejandro Balsa
Summary: The study aims to analyze the trajectories of DAS28, PGA, and PhGA and assess their predictive capabilities for D2TRA classification.