Article
Geriatrics & Gerontology
Elise Mansfield, Emilie C. Cameron, Allison W. Boyes, Mariko L. Carey, Balakrishnan Nair, Alix E. Hall, Rob W. Sanson-Fisher
Summary: This study examined the prevalence and type of unmet needs experienced by carers of people with dementia in Australia using a quantitative instrument. The results showed that a large proportion of carers reported unmet needs.
AGING & MENTAL HEALTH
(2023)
Article
Geriatrics & Gerontology
Oriol Turro-Garriga, Vanesa Vinas-Diez, Lluis Zacarias-Pons, Josep-Lluis Conde-Sala, Josep Garre-Olmo
Summary: This study reports evidence of the effect of sense of coherence (SOC) on burden reports in relatives of persons with dementia. The findings suggest that caregivers with higher SOC experience lower burden levels throughout the follow-up, whereas those with lower SOC report greater burden at each visit.
INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY
(2022)
Article
Health Care Sciences & Services
Stephanie Perin, Rhoda Lai, Janine Diehl-Schmid, Emily You, Alexander Kurz, Maria Tensil, Michael Wenz, Bettina Foertsch, Nicola T. Lautenschlager
Summary: Compared to late life dementia, Young Onset Dementia (YOD) faces unique challenges, such as a lack of specialized and age-appropriate support services. This study assessed the acceptability and feasibility of combining an online information and skill-building program with individually tailored support sessions for carers of people with YOD.
Review
Neurosciences
Dorothee Bauernschmidt, Julian Hirt, Gero Langer, Gabriele Meyer, Susanne Unverzagt, Fabian Wilde, Janina Wittmann, Anja Bieber
Summary: This study aimed to evaluate the effectiveness of technology-based counselling interventions for people with dementia and informal carers. Five randomized controlled trials were included, and the results showed that these interventions had no significant effects on depressive symptoms, burden, and self-efficacy/mastery. However, the reliability of the findings is low due to potential bias in the methods used.
JOURNAL OF ALZHEIMERS DISEASE
(2023)
Article
Health Care Sciences & Services
Oriol Turro-Garriga, Maria del Mar Fernandez-Adarve, Pilar Monreal-Bosch
Summary: This study aimed to determine the needs of carers of non-institutionalized family members with dementia. Through focus groups and in-depth interviews, three main themes were identified: carers' demands for care services, institutions, and society, highlighting the importance of consultation-liaison reference figures for support.
Review
Psychology, Multidisciplinary
Yetsa A. Tuakli-Wosornu, Sandra L. Kirby
Summary: Para sport has much to teach the broader sports world about safeguarding and athlete protections. By centering athletes' human rights and emphasizing the rights-based philosophy, sport can be made safer for all participants. The violations of rights in Para and non-disabled sports demonstrate the vulnerabilities at both individual and organizational levels. These issues should be addressed through a global sport safeguarding approach.
FRONTIERS IN PSYCHOLOGY
(2022)
Review
Neurosciences
Kristian Steen Frederiksen, Krista L. Lanctot, Wendy Weidner, Julie Hviid Hahn-Pedersen, Soeren Mattke
Summary: The burden on care partners of individuals with Alzheimer's disease (AD) is significant, with higher burden and lower quality of life observed in those caring for individuals with more severe AD. Care partners also experience higher levels of stress, depression, and anxiety compared to those without caregiving responsibilities. Informal care costs increase with AD severity and account for a significant proportion of overall societal cost.
JOURNAL OF ALZHEIMERS DISEASE
(2023)
Article
Public, Environmental & Occupational Health
Michaela Goodson, Emma McLellan, Roshaslina Rosli, Maw Pin Tan, Shahrul Kamaruzzaman, Louise Robinson, Susan Moloney
Summary: This study in Malaysia shows that while dementia care and support services are available, they are underutilized due to variations in infrastructure. Early detection of dementia is often opportunistic.
FRONTIERS IN PUBLIC HEALTH
(2021)
Review
Pediatrics
Nuria Sanchez-Clemente, Sarah Eisen, Chris Harkensee, Nicky Longley, Rob O'Grady, Allison Ward
Summary: This article discusses the issues and risks that unaccompanied minors face when fleeing their countries and arriving in the UK, as well as the strengths and weaknesses of existing mechanisms and processes.
ARCHIVES OF DISEASE IN CHILDHOOD
(2023)
Article
Geriatrics & Gerontology
Gali H. Weissberger, Aaron C. Lim, Laura Mosqueda, Julie Schoen, Jenna Axelrod, Annie L. Nguyen, Kathleen H. Wilber, Richard S. Esquivel, S. Duke Han
Summary: This study compared elder abuse patterns during and prior to the COVID-19 pandemic. The results showed that there was an increase in reported cases of physical and emotional abuse during the pandemic compared to before. The frequency of multiple forms of abuse also increased during the pandemic.
Article
Social Work
Kathryn Brookfield, Rachel Fyson, Murray Goulden
Summary: This article discusses how technological advances are being used by perpetrators of domestic abuse and highlights specific groups of people who are more vulnerable to technology-facilitated domestic abuse. It emphasizes the importance of social workers understanding and addressing the use of technology in responding to domestic abuse and suggests specific methods and tools to address technology-facilitated domestic abuse. It also calls for updating existing risk assessment tools to better address technology-related harms.
BRITISH JOURNAL OF SOCIAL WORK
(2023)
Article
Psychiatry
Anna Soltys, Mariola Bidzan, Ernest Tyburski
Summary: Caring for Alzheimer's patients is challenging, and studies have shown that personality and personal resources are critical factors for caregivers in coping with stressful situations.
FRONTIERS IN PSYCHIATRY
(2021)
Review
Biochemistry & Molecular Biology
Ewa Szczurowska, Eszter Szanti-Pinter, Nikolai Chetverikov, Alena Randakova, Eva Kudova, Jan Jakubik
Summary: Muscarinic acetylcholine receptors in the central nervous system have various functions, such as cognition, memory, or reward. They are potential targets for diseases like Alzheimer's, schizophrenia, addiction, epilepsy, or depression. These receptors are modulated by neurosteroids and steroid hormones, and this review focuses on their modulation in the context of CNS diseases and proposes the use of neuroactive steroids in drug development.
INTERNATIONAL JOURNAL OF MOLECULAR SCIENCES
(2023)
Review
Behavioral Sciences
Carina Fernandes, Ines Macedo, Fernando Barbosa, Joao Marques-Teixeira
Summary: The impact of pathological aging on economic decision-making is significant, as impairments in this domain increase the vulnerability of older adults to financial abuse. Evidence suggests that both Mild Cognitive Impairment (MCI) and Alzheimer's Disease (AD) affect economic decision-making, with healthy older adults outperforming patients and MCI patients demonstrating better performance than AD patients. Financial capacity measures provide more robust findings compared to behavioral tasks, highlighting the need for further research in this area.
NEUROSCIENCE AND BIOBEHAVIORAL REVIEWS
(2021)
Review
Behavioral Sciences
Dorien F. Bangma, Oliver Tucha, Lara Tucha, Peter P. De Deyn, Janneke Koerts
Summary: Individuals living with neurodegenerative diseases appear to struggle more with financial decision-making compared to healthy controls, and this difficulty is linked to cognitive decline.
NEUROSCIENCE AND BIOBEHAVIORAL REVIEWS
(2021)
Article
Public, Environmental & Occupational Health
Sasha Scambler, Sarah Curtis, Jill Manthorpe, Kritika Samsi, Yvonne M. Rooney, Jennifer E. Gallagher
Summary: Dementia has been declared a public health priority due to an ageing population and the increasing number of people living with the condition. Research has shown a connection between dementia and poor oral health. This paper analyzes interview data from individuals with dementia, caregivers, and carer/diagnosed dyads using Bourdieu's concepts of field and capital, providing insight into the multi-layered impact of dementia on oral health.
Article
Social Work
Jermaine Ravalier, Paula McFadden, Patricia Gillen, John Mallett, Patricia Nicholl, Ruth Neill, Jill Manthorpe, John Moriarty, Heike Schroder, Denise Curry
Summary: Stress and mental health are major causes of sickness absence in the UK, particularly in the Social Work and Social Care sectors. This study examines the changing working conditions and well-being of UK Social Care and Social Workers during the COVID-19 pandemic. The findings show that working conditions and well-being were significantly worse during Phase 2, with worse psychological well-being than the UK average. The study emphasizes the importance of understanding and addressing the impact of the pandemic on this workforce.
JOURNAL OF SOCIAL WORK
(2023)
Article
Social Work
Peter Simcock, Jill Manthorpe, Anthea Tinker
Summary: This study explores and explains the layered, situational, and pathogenic sources of vulnerability from the perspectives of older deafblind adults in the UK. The findings emphasize the need to reject categorizing particular groups as permanently vulnerable and advocate for a layered approach in defining vulnerability. This study provides valuable insights for policymakers and social workers to better understand the experiences and concerns of deafblind individuals.
JOURNAL OF SOCIAL WORK
(2023)
Article
Social Work
Jess Harris, Stephen Martineau, Jill Manthorpe, Stan Burridge, Bruno Ornelas, Michela Tinelli, Michelle Cornes
Summary: This article examines social workers' attitudes and approaches towards people experiencing multiple exclusion homelessness (MEH) and self-neglect. The study reveals uncertainties and barriers within contemporary social work, such as the classification of homeless individuals under Adult Social Care and safeguarding, and the inclusion of self-neglect as a part of safeguarding practice. While there have been some positive developments, more clarity is needed in the profession to ensure that people experiencing MEH receive the necessary social work support and safeguarding expertise.
BRITISH JOURNAL OF SOCIAL WORK
(2023)
Article
Social Work
Jill Manthorpe, Kritika Samsi
Summary: The Social Care Workforce Race Equality Standard (SCWRES) was implemented in 2021 by eighteen volunteer local authorities (LAs). This article describes an early evaluation of the implementation processes. We conducted video-recorded interviews with thirty-one key players involved in implementation. Findings revealed strong personal and employer investment from all participants, despite some lack of clarity over aims and data demands required for the SCWRES. Barriers related to implementation related to rolling this out during a global pandemic. Support from senior management at the DHSC to LAs was welcomed and valuable, and there was generally positive feedback about how the SCWRES was received at LA level. Participants considered they had learnt much in the first six months of the initiative and this article highlights what can be applied in further SCWRES rollout.
BRITISH JOURNAL OF SOCIAL WORK
(2023)
Article
Social Work
Monica Leverton, Kritika Samsi, John Woolham, Jill Manthorpe
Summary: People employing Personal Assistants (PAs) faced challenges during the Covid-19 pandemic, including role tensions, lack of contact with social workers, and blurred expectations of PAs. PA employers expressed the need for support from social workers, flexibility in care plans, and greater autonomy over their Direct Payment budget.
BRITISH JOURNAL OF SOCIAL WORK
(2023)
Article
Social Work
Jermaine M. Ravalier, Paula McFadden, Patricia Gillen, John Mallett, Patricia Nicholl, Ruth Neill, Jill Manthorpe, John Moriarty, Heike Schroder, Denise Curry
Summary: Prior to the COVID-19 pandemic, social work and social care practitioners in the UK had poor working conditions. During the pandemic, social care occupations had higher COVID infection and mortality rates. This study examined the changing working conditions and well-being of UK social care and social workers between May 2020 and July 2021. The findings showed that both working conditions and well-being worsened during the pandemic.
BRITISH JOURNAL OF SOCIAL WORK
(2023)
Article
Geriatrics & Gerontology
Kritika Samsi, Katharine Orellana, Laura Cole, Jill Manthorpe
Summary: This study investigates the impact and issues of residential respite (RR) on family caregivers of people with dementia through workshops and interviews. It is found that although many caregivers perceive the need for respite, it is not necessarily translated into actual usage. Moreover, the planning and ease of booking are crucial for caregivers, but there is a lack of support in this aspect. Overall, systemic factors act as major barriers to RR use.
AGING & MENTAL HEALTH
(2023)
Article
Social Issues
Carl Purcell, Mary Baginsky, Jill Manthorpe, Jenny Driscoll
Summary: A growing number of parents in England are choosing to home educate their children instead of sending them to school, sparking a debate about the adequacy of regulation. This article presents concerns about the ability of local authorities to protect these children, based on interviews with officials, surveys of education agencies, and school staff. The authors argue that while the government is committed to compulsory registration of home-educated children, more must be done to strengthen local authority powers and address the reasons behind parents choosing this option.
SOCIAL POLICY AND SOCIETY
(2023)
Article
Health Care Sciences & Services
Elizabeth ONions, Irene Petersen, Joshua E. J. Buckman, Rebecca Charlton, Claudia Cooper, Anne Corbett, Francesca Happe, Jill Manthorpe, Marcus Richards, Rob Saunders, Cathy Zanker, Will Mandy, Joshua Stott
Summary: This study estimated the numbers of diagnosed and undiagnosed autistic individuals in England and examined the differences in diagnostic rates based on socio-demographic factors. The results showed a higher prevalence of diagnosed autism in children/young people compared to adults/older adults. Age-related inequalities were also evident in new diagnoses, indicating the urgent need to improve access to adult autism diagnostic services.
LANCET REGIONAL HEALTH-EUROPE
(2023)
Article
Social Work
Paula McFadden, Jana Ross, Justin MacLochlainn, John Mallett, Susan McGrory, Denise Currie, Heike Schroder, Patricia Nicholl, Jermaine Ravalier, Jill Manthorpe
Summary: This study examines the well-being, burnout, and work conditions of UK children's social workers during the COVID-19 pandemic. The findings indicate a decrease in participants' mental well-being and an increase in work-related burnout as the pandemic progresses. In the later stages of the pandemic, children's social workers in Northern Ireland showed better well-being and lower burnout levels compared to their counterparts in Great Britain. The qualitative analysis reveals four major themes: changes in service demand and referrals, adapted ways of working, staff shortages, and emotional impact.
BRITISH JOURNAL OF SOCIAL WORK
(2023)
Article
Public, Environmental & Occupational Health
Mary Baginsky, Emily Thomas, Jill Manthorpe
Summary: This article examines why 16 local authorities, similar to the 8 local authorities that decided to use easements, chose not to do so. It draws on interviews conducted in 2021 with Directors of Adult Services and Principal Social Workers to explore their decision-making process. The article also outlines their preparations prior to the pandemic, how they operated within the flexibilities of the Care Act, and their views on the authorities that adopted easements.
HEALTH & SOCIAL CARE IN THE COMMUNITY
(2023)