Review
Oncology
Elizabeth Todio, Jessica Sharp, April Morrow, Natalie Taylor, Penelope Schofield, Carolyn Mazariego
Summary: This systematic review examines the impact of patient treatment decision-aids (DAs) on decisional outcomes and treatment choice for men diagnosed with localised prostate cancer. The results suggest that DAs have the potential to improve patient knowledge, but do not have significant effects on decisional regret or preparedness.
Article
Medical Informatics
Hilary P. Bagshaw, Alejandro Martinez, Nastaran Heidari, David Scheinker, Alan Pollack, Radka Stoyanova, Eric Horwitz, Gerard Morton, Amar U. Kishan, Mark K. Buyyounouski
Summary: This study developed an automated decision aid for patient-centric treatment decision-making, based on decision analysis, preference thresholds, and value elicitations to maximize the compatibility between a patient's treatment expectations and outcomes. The web-based decision aid allows patients to evaluate treatment options based on their preferences and values, potentially influencing treatment compliance, side effects tolerance, and decision satisfaction. The model enables personalized medicine practice and can be expanded to include additional inputs such as genomics and alternative therapies.
BMC MEDICAL INFORMATICS AND DECISION MAKING
(2021)
Article
Public, Environmental & Occupational Health
Lisa Mackenzie, Elise Mansfield, Anne Herrmann, Alice Grady, Tiffany-Jane Evans, Robert Sanson-Fisher
Summary: The study found that breast cancer patients may encounter problems in medical decision making, and psychological distress significantly increases the likelihood of experiencing these problems, but does not lead to the misalignment of preferred and perceived roles.
PATIENT EDUCATION AND COUNSELING
(2021)
Review
Oncology
Eveline A. Noteboom, Anne M. May, Elsken van der Wall, Niek J. de Wit, Charles W. Helsper
Summary: Analysis of 31 studies reveals variations in patients' preferences and perceptions regarding involvement in cancer treatment decision-making, with a significant number perceiving a decisional role different from their preferred role. Improvements in patient involvement have been observed over the past decade, although there is still room for enhancement.
Article
Medical Informatics
Tatsuya Ogawa, Shuhei Fujimoto, Kyohei Omon, Tomoya Ishigaki, Shu Morioka
Summary: This study aims to clarify the issues concerning patient involvement in physiotherapy in Japan and examine the relationship between shared decision-making and perceptions of patient involvement. The results showed that patients in Japan have a low level of decision-making involvement in physiotherapy and they desire more active involvement. Shared decision-making was identified as an important factor related to perceptions of patient involvement in decision-making.
BMC MEDICAL INFORMATICS AND DECISION MAKING
(2023)
Article
Oncology
Wilma Savelberg, Liesbeth J. Boersma, Marjolein Smidt, Trudy van der Weijden
Summary: This study conducted a process evaluation among four breast cancer care teams, finding that the implementation strategies were followed in 14% of patients, 92% of patients received a login code for the PtDA, and 67% of patients used the PtDA at home. Clinician promotion was a crucial factor influencing the use of PtDAs.
EUROPEAN JOURNAL OF CANCER CARE
(2021)
Article
Oncology
Shucheng Pan, Jinjiao Mao, Lijuan Wang, Yun Dai, Wei Wang
Summary: This study aimed to explore patients' experiences and perceptions towards treatment decision-making. The findings revealed that patients with prostate cancer had varying degrees of involvement in the decision-making process, emphasizing their right to be informed about the disease condition and treatment options, as well as the importance of future considerations and advance care planning.
SUPPORTIVE CARE IN CANCER
(2022)
Article
Urology & Nephrology
Katharina Beyer, Sara J. MacLennan, Lisa Moris, Michael Lardas, Ken Mastris, Gary Hooker, Robert Greene, Erik Briers, Muhammad Imran Omar, Jemma Healey, Sheela Tripathee, Giorgio Gandaglia, Lionne D. F. Venderbos, Emma J. Smith, Josefine Bjorkqvist, Alex Asiimwe, Johannes Huber, Monique J. Roobol, Jihong Zong, Anders Bjartell, James N'Dow, Alberto Briganti, Steven MacLennan, Mieke Van Hemelrijck
Summary: Patients should play a more active role in research, not only as participants and recipients, but also in designing research agendas and developing core outcome sets. The PIONEER Consortium has developed a core outcome set for prostate cancer research with the active involvement of patients, aiming to inform future research projects involving all stakeholders.
EUROPEAN UROLOGY FOCUS
(2021)
Article
Obstetrics & Gynecology
Laura A. M. van Lieshout, Malou E. Gelderblom, Joanne A. de Hullu, Regina The, Alexandra A. van Ginkel, Anke J. M. Oerlemans, Kirsten M. W. H. Smeets, Malou P. H. Schreurs, Jurgen M. J. Piek, Rosella P. M. G. Hermens
Summary: A patient decision aid was developed in collaboration with patients and healthcare professionals for opportunistic salpingectomy and salpingectomy as a sterilization method. The tool was found to be useful in supporting patients in making informed decisions and supporting the counseling process by gynecologists.
AMERICAN JOURNAL OF OBSTETRICS AND GYNECOLOGY
(2022)
Review
Oncology
Mengqian Zhang, Xiaoning He, Jing Wu, Feng Xie
Summary: This review summarizes and compares the preferences for cancer treatments between physicians and patients. The study found that patients place more importance on health benefit and treatment process, while physicians prioritize adverse effects. The results highlight the need for improved communication in cancer treatment decision-making.
Article
Oncology
Lien Smets, Annelies Debucquoy, Eva Oldenburger, Chantal Van Audenhove, Lynn Debrun, Jeroen Dekervel, Gabriele Bislenghi, Andre D'Hoore, Albert Wolthuis, Karin Haustermans
Summary: This study developed a patient decision aid (PtDA) for rectal cancer patients with a clinical complete response after neo-adjuvant treatment, aiming to facilitate shared decision making. The results of the survey showed that most patients believed using a PtDA in clinical practice would be of added value in decision making.
Article
Oncology
Emily A. Walsh, Patricia B. Pedreira, Patricia I. Moreno, Paula J. Popok, Rina S. Fox, Betina Yanez, Michael H. Antoni, Frank J. Penedo
Summary: Men with advanced prostate cancer (APC) often experience intense pain, which has negative impacts on their psychosocial and functional well-being. This study explored the relationship between pain severity, cancer-related distress symptoms, and physical and functional well-being in men with APC. The findings suggest that intrusive and hyperarousal symptoms partially mediate the relationship between pain severity and decrements in physical and functional well-being. Rating: 8 out of 10.
SUPPORTIVE CARE IN CANCER
(2023)
Article
Economics
Arthur Le Pargneux, Hossam Zeitoun
Summary: Patience is a crucial factor in determining subjective well-being differences between countries. This study finds evidence of a significant causal effect of patience on subjective well-being, which remains robust across various specifications and measures.
APPLIED ECONOMICS LETTERS
(2023)
Article
Economics
Junpeng Li, Wanglin Ma, Binlei Gong
Summary: This study explores how maize farmers' market participation influences their subjective well-being and highlights the importance of government efforts in inciting market transactions to increase farmers' incomes and well-being. The findings suggest that market participation significantly improves maize farmers' happiness, life satisfaction, and confidence about the future, with maize income mediating this association. The study also reveals that market participation intensity and experiences of natural disasters play a role in shaping farmers' well-being.
ECONOMIC ANALYSIS AND POLICY
(2023)
Article
Psychology, Applied
Laura Pasca, Giuseppe Carrus, Ana Loureiro, Oscar Navarro, Angelo Panno, Cesar Tapia Follen, Juan Ignacio Aragones
Summary: The relationship between people and nature affects their well-being and connectedness to nature. Viewing images of different types of natural environments can have a significant impact on people's well-being and connectedness.
APPLIED PSYCHOLOGY-HEALTH AND WELL BEING
(2022)
Article
Health Care Sciences & Services
Julia J. van Tol-Geerdink, Jan Willem H. Leer, Carl J. Wijburg, Inge M. van Oort, Henk Vergunst, Emile J. van Lin, J. Alfred Witjes, Peep F. M. Stalmeier
HEALTH EXPECTATIONS
(2016)
Article
Radiology, Nuclear Medicine & Medical Imaging
Martijn Kusters, Rob Louwe, Liesbeth Biemans-van Kastel, Henk Nieuwenkamp, Rien Zahradnik, Roy Claessen, Ronald van Seters, Henk Huizenga
JOURNAL OF APPLIED CLINICAL MEDICAL PHYSICS
(2015)
Article
Radiology, Nuclear Medicine & Medical Imaging
Daan Martens, Mark Luesink, Henk Huizenga, Kasper L. Pasma
JOURNAL OF APPLIED CLINICAL MEDICAL PHYSICS
(2015)
Article
Engineering, Biomedical
L. J. van Battum, H. Huizenga, R. M. Verdaasdonk, S. Heukelom
PHYSICS IN MEDICINE AND BIOLOGY
(2016)
Article
Health Care Sciences & Services
Maarten Cuypers, Romy E. D. Lamers, Paul J. M. Kil, Julia J. van Tol-Geerdink, Cornelia F. van Uden-Kraan, Lonneke V. van de Poll-Franse, Marieke de Vries
HEALTH INFORMATICS JOURNAL
(2019)
Article
Urology & Nephrology
Julia J. van Tol-Geerdink, Jan Willem Leer, Philip C. Weijerman, Inge M. van Oort, Henk Vergunst, Emile N. van Lin, J. Alfred Witjes, Peep F. Stalmeier
Article
Oncology
J. J. van Tol-Geerdink, J. W. H. Leer, I. M. van Oort, E. J. N. T. van Lin, P. C. Weijerman, H. Vergunst, J. A. Witjes, P. F. M. Stalmeier
BRITISH JOURNAL OF CANCER
(2013)
Article
Oncology
Aswin L. Hoffmann, Henk Huizenga, Johannes H. A. M. Kaanders
RADIATION ONCOLOGY
(2013)
Article
Oncology
Maarten Cuypers, Hoda H. M. Al-Itejawi, Cornelia F. van Uden-Kraan, Peep F. M. Stalmeier, Romy E. D. Lamers, Inge M. van Oort, Diederik M. Somford, Reindert Jeroen A. van Moorselaar, Irma M. Verdonck-de Leeuw, Lonneke van de Poll-Franse, Julia J. van Tol-Geerdink, Marieke de Vries
JOURNAL OF CANCER EDUCATION
(2020)
Article
Medicine, General & Internal
Marleen J. Emaus, Ivana Isgum, Sanne G. M. van Velzen, H. J. G. Desiree van den Bongard, Sofie A. M. Gernaat, Nikolas Lessmann, Margriet G. A. Sattler, Arco J. Teske, Joan Penninkhof, Hanneke Meijer, Jean-Philippe Pignol, Helena M. Verkooijen, Rhode M. Bijlsma, Erwin L. A. Blezer, Michiel L. Bots, Henrike J. Bretveld, Maartje J. Hooning, Luca Incrocci, Pim A. de Jong, Tim Leiner, Julia J. van Tol-Geerdink, Ilonca Vaartjes, Wouter B. Veldhuis, Janneke Verloop, Max A. Viergever, Frank L. J. Visseren, Hester Wessels
Article
Health Care Sciences & Services
Julia J. van Tol-Geerdink, Inge M. van Oort, Diederik M. Somford, Carl J. Wijburg, Arno Geboers, Cornelia F. van Uden-Kraan, Marieke de Vries, Peep F. M. Stalmeier
HEALTH INFORMATICS JOURNAL
(2020)
Article
Oncology
Roxanne Gal, Sanne G. M. van Velzen, Maartje J. Hooning, Marleen J. Emaus, Femke van der Leij, Madelijn L. Gregorowitsch, Erwin L. A. Blezer, Sofie A. M. Gernaat, Nikolas Lessmann, Margriet G. A. Sattler, Tim Leiner, Pim A. de Jong, Arco J. Teske, Janneke Verloop, Joan J. Penninkhof, Ilonca Vaartjes, Hanneke Meijer, Julia J. van Tol-Geerdink, Jean-Philippe Pignol, Desiree H. J. G. van den Bongard, Ivana Isgum, Helena M. Verkooijen
Summary: This study found an association between coronary artery calcium (CAC) levels on breast cancer radiotherapy planning CT scans and cardiovascular disease, especially coronary artery disease (CAD). Automated CAC scoring may serve as a quick, cost-effective tool to identify breast cancer patients at increased risk of CVD, enabling the implementation of risk-mitigating strategies to reduce CVD burden after breast cancer.
Article
Medicine, General & Internal
Cecile van de Weerd, Julia J. Van Tol-Geerdink, Guido B. van den Broek, Johannes H. A. M. Kaanders, Henri A. M. Marres, Rosella P. M. G. Hermens, Robert P. Takes
Summary: Monitoring patients after cancer treatment is common practice, but long-term routine follow-up for head and neck cancer patients has been debated. This study investigates a novel follow-up approach, allowing patients to choose their own follow-up program.
Article
Oncology
Cecile van de Weerd, Tom Ebbers, Donna E. M. Smilde, Julia J. van Tol-Geerdink, Robert P. Takes, Guido B. van den Broek, Rosella P. M. G. Hermens, Rudolf B. Kool
Summary: A remote monitoring app was developed for head and neck cancer follow-up during the SARS-CoV-2 pandemic. The usability and patients' experiences with the app were studied through a mixed-methods approach. The app was found to be user-friendly and made patients feel more in control, but there were some barriers that need to be resolved before it can be used in regular follow-up.
Article
Peripheral Vascular Disease
Roxanne Gal, Madelijn L. Gregorowitsch, Marleen J. Emaus, Erwin L. A. Blezer, Femke van der Leij, Sanne G. M. van Velzen, Julia J. van Tol-Geerdink, Ivana Isgum, Helena M. Verkooijen
Summary: The study found that the majority of breast cancer patients are not aware of the CVD risks associated with CAC, but most express a desire to be informed about their CVD risk based on CAC scores. It is important to develop strategies to manage these patients effectively.
INTERNATIONAL JOURNAL OF CARDIOLOGY CARDIOVASCULAR RISK AND PREVENTION
(2021)