Review
Psychology, Multidisciplinary
Hanoch Livneh
Summary: This paper introduces the concept of psychological energy (PE) and its role in psychosocial adaptation to traumatic life events and the onset of chronic illness and disability (CID). It provides a brief historical review of energy, force, and action in physics, as well as an overview of PE in social, health, and rehabilitation psychology. The paper emphasizes the application of PE in stress, trauma, and CID onset, and discusses measuring instruments and new perspectives on the dimensional structure and dynamics of PE.
FRONTIERS IN PSYCHOLOGY
(2022)
Article
Health Care Sciences & Services
Ariel E. Schwartz, Elizabeth G. S. Munsell, Elizabeth K. Schmidt, Cristina Colon-Semenza, Kelsi Carolan, Dena L. Gassner
Summary: The study describes the employment and service disruptions experienced by individuals with disabilities and chronic health conditions during the COVID-19 pandemic. Findings show that while only a small percentage reported employment disruptions, a majority encountered service disruptions, primarily due to service discontinuation.
DISABILITY AND HEALTH JOURNAL
(2021)
Article
Public, Environmental & Occupational Health
Gil Zukerman, Maya Maor, Tamar Reichard, Shulamit Ben-Itzhak
Summary: There is a correlation between illness cognitions and psychological flexibility with well-being among patients with chronic medical conditions, and the association between psychological flexibility and well-being may vary across different chronic medical conditions depending on their severity.
PSYCHOLOGY HEALTH & MEDICINE
(2023)
Article
Anesthesiology
Anand Pooleri, Rishita Yeduri, Gabrielle Horne, Adrianne Frech, Dmitry Tumin
Summary: Chronic pain in early adulthood is associated with increased hazards of subsequent labor force exit and health-related work limitation, according to a longitudinal study. The study analyzed data from a nationally representative cohort and found that any level of pain interference reported at age 29 predicted these negative outcomes. Early identification and treatment of pain problems among young workers can help reduce future unemployment and disability burdens.
Article
Economics
Yishu Zhou, Jing Li
Summary: Disability employment is crucial for the social inclusion of people with disabilities. This paper explores how government and community supports address employment concerns and reduce requests for assistance. The results indicate that disability supports indirectly alleviate the need for employment aids by improving employment outcomes.
APPLIED ECONOMICS LETTERS
(2023)
Article
Audiology & Speech-Language Pathology
Peter Molander, Gerhard Andersson, Hugo Hesser
Summary: This study examined the reliability, factor structure, and validity of a new measure of hearing loss acceptance, the Hearing Acceptance Questionnaire (HAQ). The findings supported the HAQ's psychometric properties and revealed the unique contribution of psychological acceptance in explaining variance in hearing disability.
Article
Public, Environmental & Occupational Health
G. Broc, B. Porro
Summary: This report presents current knowledge on endometriosis, discussing its daily impact on women's psychological state and the resentment towards doctors associated with diagnosis delay, leading women to self-manage. The report proposes directions for research and intervention, including collaboration with stakeholders to devise a comprehensive strategy and more thorough examination of study areas such as work environment management, dietary changes and their consequences, and the social representation of endometriosis among physicians.
PSYCHOLOGY HEALTH & MEDICINE
(2023)
Article
Public, Environmental & Occupational Health
Marissa Shields, Matthew J. Spittal, Stefanie Dimov, Anne Kavanagh, Tania L. King
Summary: The COVID-19 pandemic has negatively affected the employment status and mental health of young people globally. However, little research has been conducted on young people with disabilities. This study examines the association between employment status and mental health among young Australians, taking into account the effect of disability status.
SSM-POPULATION HEALTH
(2022)
Article
Public, Environmental & Occupational Health
Melanie Jones
Summary: This study provides a comprehensive analysis of the impact of COVID-19 on the labor market for disabled workers in the UK. It finds that disabled workers face higher COVID-19-related economic and health risks, and there is a risk of future disability-related labor market inequality.
SOCIAL SCIENCE & MEDICINE
(2022)
Editorial Material
Health Care Sciences & Services
Gloria L. Krahn, Ann Robinson, Alexa J. Murray, Susan M. Havercamp
Summary: Health is not just the absence of disease or infirmity, but a dynamic balance of physical, mental, social, and existential well-being, requiring adaptation to life and environment. This new understanding has significant implications for research, policies, and practices, particularly in the context of disability and chronic conditions.
DISABILITY AND HEALTH JOURNAL
(2021)
Article
Oncology
Paul A. Glare, Daniel J. Costa, Michael K. Nicholas
Summary: This study retrospectively analyzed the clinical and psychosocial characteristics of cancer survivors with chronic pain. Tissue damage caused by cancer treatment leads to pain-related distress and disability, which are associated with maladaptive pain cognitions. There are differences between treatment-related pain and comorbid pain, but overall scores are similar to Australian pain clinic norms.
Article
Endocrinology & Metabolism
Andreas Ebbehoj, Esben Sondergaard, Peter Jepsen, Kirstine Stochholm, Helene Matilde Lundsgaard Svane, Morten Madsen, Per Logstrup Poulsen, Jens Otto Lunde Jorgensen
Summary: Cushing's syndrome has a negative impact on a wide range of socioeconomic variables, some of which improve after treatment.
JOURNAL OF CLINICAL ENDOCRINOLOGY & METABOLISM
(2022)
Article
Clinical Neurology
Anjali Mohan, Rajni Sharma, Babita Ghai, Vishal Kumar, Jeetinder K. Makkar, Aditi Jain
Summary: The aim of this study was to assess the validity and reliability of the Hindi version of the Roland Morris Disability Questionnaire (Hi-RMDQ) for chronic low back pain. The results showed that the Hi-RMDQ had excellent internal consistency and retest reliability, and it was positively and significantly associated with other related scores. Therefore, the Hi-RMDQ is a useful tool to measure disability in the Indian population with nonspecific back pain.
Article
Behavioral Sciences
Ali A. Asadi-Pooya, Mehdi Bazrafshan
Summary: This study found that unemployment is a serious issue among patients with FS, and psychiatric comorbidities play a significant role in their employment status.
BRAIN AND BEHAVIOR
(2021)
Article
Geriatrics & Gerontology
I Chiba, S. Lee, S. Bae, K. Makino, O. Katayama, K. Harada, K. Tomida, M. Morikawa, Y. Yamashiro, N. Takayanagi, H. Shimada
Summary: Increasing moderate-to-vigorous physical activity (MVPA) was associated with lower disability incidence in older adults with and without CKD, providing valuable insights for devising disability prevention strategies for older CKD patients.
JOURNAL OF NUTRITION HEALTH & AGING
(2022)
Article
Health Care Sciences & Services
Mieke Rijken, Rene Stussgen, Chantal Leemrijse, Mieke J. L. Bogerd, Joke C. Korevaar
Summary: The JA-CHRODIS Integrated Multimorbidity Care Model was piloted in the Netherlands to assess its suitability for improving care for people with multimorbidity. Prioritized elements of care included shared electronic health records, regular comprehensive assessments, self-management support, shared decision making, and care coordination. The model reflects the priorities and preferences for care of people with multimorbidity in the Netherlands, supporting its relevance for guiding the development of person-centred integrated care for people with multiple chronic conditions.
HEALTH EXPECTATIONS
(2021)
Review
Health Care Sciences & Services
Marieke van der Gaag, Monique Heijmans, Cristina Spoiala, Jany Rademakers
Summary: Patients with limited health literacy face difficulties in specific domains of self-management, particularly in medical management (especially adherence), communication, and knowledge. Other associations between health literacy and self-management are inconclusive.
Article
Health Care Sciences & Services
Mieke Rijken, James Close, Juliane Menting, Manon Lette, Annerieke Stoop, Nick Zonneveld, Simone R. de Bruin, Helen Lloyd, Monique Heijmans
Summary: This study evaluated the internal and construct validity of the Dutch version of the Person-Centred Coordinated Care Experience Questionnaire (P3CEQ) and found that it is a valid instrument for assessing the experience of person-centred coordinated care among people with chronic conditions in the Netherlands. The study also identified disparities in care experience based on gender, education level, health literacy, and patient activation.
HEALTH EXPECTATIONS
(2022)
Article
Multidisciplinary Sciences
Laxsini Murugesu, Monique Heijmans, Jany Rademakers, Mirjam P. Fransen
Summary: Insights into the challenges healthcare providers face in serving low health literate patients are lacking. This study explores the perceived challenges of healthcare providers and offers strategies for communication with low health literate patients. Survey results show that providers need more support in recognizing and discussing low health literacy, adapting communication, and assessing patient comprehension.
Article
Public, Environmental & Occupational Health
Marieke van der Gaag, Monique Heijmans, Marta Ballester, Carola Orrego, Ena Nino de Guzman, Lyudmil Ninov, Jany Rademakers
Summary: The study found that patients with limited health literacy prioritize satisfaction with healthcare, symptom management, and improving competences for self-management as outcomes of self-management. Building a strong patient-provider relationship is crucial for successful self-management.
FRONTIERS IN PUBLIC HEALTH
(2022)
Article
Pediatrics
Jany Rademakers, Marla T. H. Hahnraths, Onno C. P. van Schayck, Monique Heijmans
Summary: This study aimed to assess the impact of Dutch children's health literacy on their BMI, dietary behavior, and physical activity. The results revealed a significant positive association between children's health literacy and their engagement in physical activity.
Article
Genetics & Heredity
Yil Severijns, Maartje W. F. Heijmans, Christine E. M. de Die-Smulders, Emilia K. Bijlsma, Nicole Corsten-Janssen, Sara J. R. Joosten, Sander M. J. van Kuijk, Klaske D. Lichtenbelt, Cecile P. E. Ottenheim, Kyra E. Stuurman, Gita M. B. Tan-Sindhunata, Hein de Vries, Liesbeth A. D. M. van Osch
Summary: This study examines the effects of an online decision aid (DA) on the reproductive decision-making process of couples at risk of transmitting a genetic disease to their offspring. The results suggest that the use of this tool can reduce decisional conflict, increase knowledge, improve realistic expectations, enhance deliberation, and increase decisional self-efficacy.
JOURNAL OF GENETIC COUNSELING
(2023)
Article
Environmental Sciences
Monique Heijmans, Rune Poortvliet, Marieke Van der Gaag, Ana Gonzalez-Gonzalez, Jessica Beltran Puerta, Carlos Canelo-Aybar, Claudia Valli, Marta Ballester, Claudio Rocha, Montserrat Leon Garcia, Karla Salas-Gama, Chrysoula Kaloteraki, Marilina Santero, Ena Nino de Guzman, Cristina Spoiala, Pema Gurung, Saida Moaddine, Fabienne Willemen, Iza Cools, Julia Bleeker, Angelina Kancheva, Julia Ertl, Tajda Laure, Ivana Kancheva, Kevin Pacheco-Barrios, Jessica Zafra-Tanaka, Dimitris Mavridis, Areti Angeliki Veroniki, Stella Zevgiti, Georgios Seitidis, Pablo Alonso-Coello, Oliver Groene, Rosa Sunol, Carola Orrego
Summary: This study systematically describes the components and characteristics of interventions related to COPD self-management, using the COMPAR-EU taxonomy as a framework. The study found that there is a lot of room for improvement in the design and description of self-management interventions for COPD.
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH
(2022)
Review
Health Care Sciences & Services
Janneke Noordman, Maaike Meurs, Rune Poortvliet, Tamara Rusman, Carola Orrego-Villagran, Marta Ballester, Lyudmil Ninov, Ena Nino de Guzman, Pablo Alonso-Coello, Oliver Groene, Rosa Sunol, Monique Heijmans, Cordula Wagner
Summary: This study aims to identify and describe the contextual factors that have a significant impact on the successful implementation of self-management interventions for patients with type 2 diabetes, obesity, COPD, and/or heart failure. A qualitative review of reviews was conducted, revealing a wide range of factors on different levels, with a focus on patients, professionals, and interactions. There were fewer factors identified on the levels of intervention, organization, setting, and national level. There were no differences in the main themes of factors across the four diseases. Thus, it is crucial to consider multiple levels of contextual factors simultaneously for the successful implementation of self-management interventions.
Article
Health Care Sciences & Services
Juliane Menting, Femke van Schelven, Claire Aussems, Monique Heijmans, Hennie Boeije
Summary: This study aimed to investigate the changes in self-management behaviors during the COVID-19 pandemic and the factors contributing to these changes. The results showed that the majority of people with chronic diseases maintained stable self-management behaviors, while about 15% experienced improvements and 14% experienced deterioration. Factors such as gender, physical disability, mental health, daily stressors due to COVID-19 (patient level), changes in healthcare access (organization level), and social support (environment level) were significantly associated with changes in self-management.
BMC HEALTH SERVICES RESEARCH
(2023)
Article
Public, Environmental & Occupational Health
Rosa Sunol, Ana Isabel Gonzalez-Gonzalez, Claudia Valli, Marta Ballester, Laura Seils, Monique Heijmans, Rune Poortvliet, Marieke van der Gaag, Claudio Rocha, Montserrat Leon-Garcia, Karla Salas-Gama, Ena Nino de Guzman, Chrysoula Kaloteraki, Marilina Santero, Cristina Spoiala, Pema Gurung, Saida Moaddine, Fabienne Wilemen, Iza Cools, Julia Bleeker, Angelina Kancheva, Julia Ertl, Tajda Laure, Ivana Kancheva, Areti Angeliki Veroniki, Stella Zevgiti, Jessica Beltran, Carlos Canelo-Aybar, Jessica Hanae Zafra-Tanaka, Georgios Seitidis, Dimitris Mavridis, Oliver Groene, Pablo Alonso-Coello, Carola Orrego
Summary: The objective of this study was to conduct an evidence map on self-management interventions and patient-relevant outcomes for adults living with overweight/obesity. The majority of the research focused on clinical outcomes and behaviors adherence, while empowerment skills, quality of life, and satisfaction were less targeted. The most frequent techniques used were sharing information, goal setting, and self-monitoring training. The study highlights the need to widen the scope of research by focusing on outcomes important to patients, assessing emotional/social/share-decision support, exploring remote techniques, and including vulnerable populations.
PATIENT EDUCATION AND COUNSELING
(2023)
Article
Primary Health Care
Bart Knottnerus, Monique Heijmans, Jany Rademakers
Summary: This study investigated the difficulties faced by individuals with limited health literacy in acquiring information about COVID-19 and governmental measures, and made recommendations on the role of primary care in informing and supporting these patients.
Article
Surgery
Jany Rademakers, Marlon Rolink, Monique Heijmans
Summary: People with limited health literacy in the Netherlands require specific information on organ donation to make informed decisions. They need easy-to-understand information on choice options, eligibility, the role of partners/family, impact on quality of care, and the process of organ donation. Improved personal support and practical assistance for registration are suggested.
TRANSPLANT INTERNATIONAL
(2022)
Meeting Abstract
Health Care Sciences & Services
Ian Porter, Mieke Rijken, Oliver Groene, Rosa Sunol, Rachel Williams, Michael van den Berg, Jimmy Martin Delgado, Jon P. Evans, Marta Ballester, Janika Bloemeke, Chloe Thomas, Peter Groenewegen, Wienke Boerma, Monique Heijmans, Katherine De Bienassis, Candan Kendir, Niek Klazinga, Dolf De Boer, Jose M. Valderas
QUALITY OF LIFE RESEARCH
(2021)