Health-related quality of life for children with rare diagnoses, their parents’ satisfaction with life and the association between the two

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Dimensionality and measurement invariance in the Satisfaction with Life Scale in Norway

(2011) Jocelyne Clench-Aas et al.   QUALITY OF LIFE RESEARCH

How Does Participation of Youth With Spina Bifida Vary by Age?

(2010) Erin H. Kelly et al.   CLINICAL ORTHOPAEDICS AND RELATED RESEARCH

Quality of life in individuals with spina bifida: A research update

(2010) Kathleen J. Sawin et al.   Developmental Disabilities Research Reviews

A predictive model of Health Related Quality of life of parents of chronically ill children: the importance of care-dependency of their child and their support system

(2009) Janneke Hatzmann et al.   Health and Quality of Life Outcomes

Rehabilitation and Medical Management of the Adult with Spina Bifida

(2008) Brad E. Dicianno et al.   AMERICAN JOURNAL OF PHYSICAL MEDICINE & REHABILITATION