International Charter of principles for sharing bio-specimens and data

A P3G generic access agreement for population genomic studies

(2013) Bartha Maria Knoppers et al.   NATURE BIOTECHNOLOGY

Identifying Personal Genomes by Surname Inference

(2013) M. Gymrek et al.   SCIENCE

Ethics bureaucracy: a significant hurdle for collaborative follow-up of drug effectiveness in rare childhood diseases

(2012) Mats G Hansson et al.   ARCHIVES OF DISEASE IN CHILDHOOD

Medical registries represent vital patient interests and should not be dismantled by stricter regulation

(2012) Mats G. Hansson et al.   Cancer Epidemiology

From patients to partners: participant-centric initiatives in biomedical research

(2012) Jane Kaye et al.   NATURE REVIEWS GENETICS

The Tension Between Data Sharing and the Protection of Privacy in Genomics Research

(2011) Jane Kaye   Annual Review of Genomics and Human Genetics

Bridging consent: from toll bridges to lift bridges?

(2011) Isabelle Budin-Ljøsne et al.   BMC Medical Genomics

Biobanks--When is Re-consent Necessary?

(2011) K. S. Steinsbekk et al.   Public Health Ethics

Can Broad Consent be Informed Consent?

(2011) M. Sheehan   Public Health Ethics

Towards a data sharing Code of Conduct for international genomic research

(2011) Bartha Knoppers et al.   Genome Medicine

Stewardship of Human Biospecimens, DNA, Genotype, and Clinical Data in the GWAS Era

(2009) Stephen J. O'Brien   Annual Review of Genomics and Human Genetics

Donors Perceptions of Consent to and Feedback from Biobank Research: Time to Acknowledge Diversity?

(2009) K. Hoeyer   Public Health Genomics

Ethics and biobanks

(2008) M G Hansson   BRITISH JOURNAL OF CANCER

From genetic privacy to open consent

(2008) Jeantine E. Lunshof et al.   NATURE REVIEWS GENETICS

Informed Consent in the Genomics Era

(2008) Deborah Mascalzoni et al.   PLOS MEDICINE