Biobanks--When is Re-consent Necessary?

The Ethics of Research Biobanking: A Critical Review of the Literature

(2011) Klaus Hoeyer   Biotechnology & Genetic Engineering Reviews

Tackling Epistemological Naivety: Large-Scale Information Systems and the Complexities of the Common Good

(2011) KJETIL ROMMETVEIT   CAMBRIDGE QUARTERLY OF HEALTHCARE ETHICS

Changing Ethical Frameworks: From Individual Rights to the Common Good?

(2011) MARGIT SUTROP   CAMBRIDGE QUARTERLY OF HEALTHCARE ETHICS

Health Ideologies, Objectivism, and the Common Good: On the Rights of Dissidents

(2011) ROGER STRAND   CAMBRIDGE QUARTERLY OF HEALTHCARE ETHICS

Ethical Endgames: Broad Consent for Narrow Interests; Open Consent for Closed Minds

(2011) JAN REINERT KARLSEN et al.   CAMBRIDGE QUARTERLY OF HEALTHCARE ETHICS

Active choice but not too active: Public perspectives on biobank consent models

(2011) Christian M. Simon et al.   GENETICS IN MEDICINE

From genomic databases to translation: a call to action

(2011) B. M. Knoppers et al.   JOURNAL OF MEDICAL ETHICS

The Risks and Benefits of Re-Consent

(2011) J. S. Forsberg et al.   SCIENCE

Response--The Risks and Benefits of Re-Consent

(2011) S. B. Trinidad et al.   SCIENCE

Research Practice and Participant Preferences: The Growing Gulf

(2011) S. B. Trinidad et al.   SCIENCE

Why Communities and Their Goods Matter: Illustrated with the Example of Biobanks

(2011) H. Widdows et al.   Public Health Ethics

THE FUTURE OF BIOETHICS: THREE DOGMAS AND A CUP OF HEMLOCK

(2010) ANGUS DAWSON   BIOETHICS

Consent to ‘personal’ genomics and privacy

(2010) Bartha Maria Knoppers   EMBO REPORTS

Assessing the Privacy Risks of Data Sharing in Genomics

(2010) C. Heeney et al.   Public Health Genomics

Tailoring the process of informed consent in genetic and genomic research

(2010) Charles N Rotimi et al.   Genome Medicine

Constraints on Data Sharing

(2009) Graham A. Colditz   EPIDEMIOLOGY

Ethical implications of the use of whole genome methods in medical research

(2009) Jane Kaye et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Changing perspectives in biobank research: from individual rights to concerns about public health regarding the return of results

(2009) Joanna Stjernschantz Forsberg et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Broadening consent--and diluting ethics?

(2009) B Hofmann   JOURNAL OF MEDICAL ETHICS

Prepublication data sharing

(2009)   NATURE

Data sharing in genomics — re-shaping scientific practice

(2009) Jane Kaye et al.   NATURE REVIEWS GENETICS

Genetic Risk Prediction — Are We There Yet?

(2009) Peter Kraft et al.   NEW ENGLAND JOURNAL OF MEDICINE

Can genomics tell me who I am? Essentialistic rhetoric in direct-to-consumer DNA testing

(2009) A. Nordgren et al.   NEW GENETICS AND SOCIETY

Attitudes towards biomedical use of tissue sample collections, consent, and biobanks among Finns

(2009) Aaro Tupasela et al.   SCANDINAVIAN JOURNAL OF PUBLIC HEALTH

Public Health Research Ethics: A Research Agenda

(2009) M. Verweij et al.   Public Health Ethics

“Broad” consent, exceptions to consent and the question of using biological samples for research purposes different from the initial collection purpose

(2009) Carlo Petrini   SOCIAL SCIENCE & MEDICINE

Planning for translational research in genomics

(2009) Naomi Hawkins et al.   Genome Medicine

Ethics and biobanks

(2008) M G Hansson   BRITISH JOURNAL OF CANCER

Banking together. A unified model of informed consent for biobanking

(2008) Elena Salvaterra et al.   EMBO REPORTS

From genetic privacy to open consent

(2008) Jeantine E. Lunshof et al.   NATURE REVIEWS GENETICS

Lung cancer patients’ perceptions of informed consent documents

(2008) Kari Sand et al.   PATIENT EDUCATION AND COUNSELING

A proposal for a model of informed consent for the collection, storage and use of biological materials for research purposes

(2008) Corinna Porteri et al.   PATIENT EDUCATION AND COUNSELING

Gene Concepts and Genethics: Beyond Exceptionalism

(2008) Péter Kakuk   SCIENCE AND ENGINEERING ETHICS

Informed consent in biobank research: A deliberative approach to the debate

(2008) David M. Secko et al.   SOCIAL SCIENCE & MEDICINE

Research Ethics Recommendations for Whole-Genome Research: Consensus Statement

(2008) Timothy Caulfield et al.   PLOS BIOLOGY

Predicting Unobserved Phenotypes for Complex Traits from Whole-Genome SNP Data

(2008) Sang Hong Lee et al.   PLoS Genetics

Research ethics and the challenge of whole-genome sequencing

(2007) Amy L. McGuire et al.   NATURE REVIEWS GENETICS