Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives

Research led by participants: a new social contract for a new kind of research

(2015) Effy Vayena et al.   JOURNAL OF MEDICAL ETHICS

The social licence for research: whycare.dataran into trouble

(2015) Pam Carter et al.   JOURNAL OF MEDICAL ETHICS

A New Initiative on Precision Medicine

(2015) Francis S. Collins et al.   NEW ENGLAND JOURNAL OF MEDICINE

Lessons from Fraxinus, a crowd-sourced citizen science game in genomics

(2015) Ghanasyam Rallapalli et al.   eLife

Spatiotemporal monitoring of allergic rhinitis symptoms in the Netherlands using citizen science

(2014) L. A. de Weger et al.   ALLERGY

Patient engagement in research: a systematic review

(2014) Juan Pablo Domecq et al.   BMC HEALTH SERVICES RESEARCH

Dynamic consent: a patient interface for twenty-first century research networks

(2014) Jane Kaye et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Big data, open science and the brain: lessons learned from genomics

(2014) Suparna Choudhury et al.   Frontiers in Human Neuroscience

The how and why of societal publications for citizen science projects and scientists

(2014) Arnold J. H. van Vliet et al.   INTERNATIONAL JOURNAL OF BIOMETEOROLOGY

Scientists@Home: What Drives the Quantity and Quality of Online Citizen Science Participation?

(2014) Oded Nov et al.   PLoS One

Next Steps for Citizen Science

(2014) R. Bonney et al.   SCIENCE

Citizen science: Amateur experts

(2013) Trisha Gura   NATURE

Evolving approaches to the ethical management of genomic data

(2013) Jean E. McEwen et al.   TRENDS IN GENETICS

DISCLOSURE OF CONFIDENTIAL PATIENT INFORMATION AND THE DUTY TO CONSULT: THE ROLE OF THE HEALTH AND SOCIAL CARE INFORMATION CENTRE

(2013) J. Grace et al.   Medical Law Review

“Trust is not something you can reclaim easily”: patenting in the field of direct-to-consumer genetic testing

(2012) Sigrid Sterckx et al.   GENETICS IN MEDICINE

From patients to partners: participant-centric initiatives in biomedical research

(2012) Jane Kaye et al.   NATURE REVIEWS GENETICS

Open Air Laboratories (OPAL): A community-driven research programme

(2011) L. Davies et al.   ENVIRONMENTAL POLLUTION

Easier citizen science is better

(2011) Jeffrey Parsons et al.   NATURE

Algorithm discovery by protein folding game players

(2011) F. Khatib et al.   PROCEEDINGS OF THE NATIONAL ACADEMY OF SCIENCES OF THE UNITED STATES OF AMERICA

Predicting intention to biobank: a national survey

(2010) C. R. Critchley et al.   EUROPEAN JOURNAL OF PUBLIC HEALTH

Citizen science

(2010)   NATURE NEUROSCIENCE

Personal genomics and individual identities: motivations and moral imperatives of early users

(2010) Michelle L. McGowan et al.   NEW GENETICS AND SOCIETY

Research Ethics in the Era of Personalized Medicine: Updating Science’s Contract with Society

(2010) Eric M. Meslin et al.   Public Health Genomics