Research led by participants: a new social contract for a new kind of research

The Apomediated World: Regulating Research When Social Media Has Changed Research

(2015) Dan O'Connor   JOURNAL OF LAW MEDICINE & ETHICS

openSNP–A Crowdsourced Web Resource for Personal Genomics

(2014) Bastian Greshake et al.   PLoS One

Towards the patient revolution

(2014) F. Godlee   BMJ-British Medical Journal

The next step in the patient revolution: patients initiating and leading research

(2014) E. Vayena   BMJ-British Medical Journal

Subjects no more: what happens when trial participants realize they hold the power?

(2014) P. Wicks et al.   BMJ-British Medical Journal

The final chapter of the ALS lithium saga

(2013) Adriano Chiò et al.   LANCET NEUROLOGY

The ethics of participant-led biomedical research

(2013) Effy Vayena et al.   NATURE BIOTECHNOLOGY

Caught in the Web: Informed Consent for Online Health Research

(2013) E. Vayena et al.   Science Translational Medicine

Adapting Standards: Ethical Oversight of Participant-Led Health Research

(2013) Effy Vayena et al.   PLOS MEDICINE

Ethical Issues in Health Research With Novel Online Sources

(2012) Effy Vayena et al.   AMERICAN JOURNAL OF PUBLIC HEALTH

Crowdsourced Health Research Studies: An Important Emerging Complement to Clinical Trials in the Public Health Research Ecosystem

(2012) Melanie Swan   JOURNAL OF MEDICAL INTERNET RESEARCH

Toward Precision Medicine: A New Social Contract?

(2012) S. Desmond-Hellmann   Science Translational Medicine

Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm

(2011) Paul Wicks et al.   NATURE BIOTECHNOLOGY