“Trust is not something you can reclaim easily”: patenting in the field of direct-to-consumer genetic testing

From patients to partners: participant-centric initiatives in biomedical research

(2012) Jane Kaye et al.   NATURE REVIEWS GENETICS

Voting with their Mice: Personal Genome Testing and the “Participatory Turn” in Disease Research

(2011) Barbara Prainsack et al.   Accountability in Research-Policies and Quality Assurance

Direct-to-Consumer Genetic Testing: Perceptions, Problems, and Policy Responses

(2011) Timothy Caulfield et al.   Annual Review of Medicine

Web-Based Genome-Wide Association Study Identifies Two Novel Loci and a Substantial Genetic Component for Parkinson's Disease

(2011) Chuong B. Do et al.   PLoS Genetics

Patents in Genomics and Human Genetics

(2010) Robert Cook-Deegan et al.   Annual Review of Genomics and Human Genetics

Public and Biobank Participant Attitudes toward Genetic Research Participation and Data Sharing

(2010) A.A. Lemke et al.   Public Health Genomics

Assessing the understanding of biobank participants

(2009) K.E. Ormond et al.   AMERICAN JOURNAL OF MEDICAL GENETICS PART A

RECONSIDERING THE VALUE OF CONSENT IN BIOBANK RESEARCH

(2009) JUDY ALLEN et al.   BIOETHICS

The dangers of diagnostic monopolies

(2009) Robert Cook-Deegan et al.   NATURE

Disclosure of Financial Relationships to Participants in Clinical Research

(2009) Kevin P. Weinfurt et al.   NEW ENGLAND JOURNAL OF MEDICINE

“We only did it because he asked us”: Gendered accounts of participation in a population genetic data collection

(2009) Gillian Haddow   SOCIAL SCIENCE & MEDICINE

Commercialization, patenting and genomics: researcher perspectives

(2009) CJ Murdoch et al.   Genome Medicine