Why Patients Decline Genomic Sequencing Studies: Experiences from the CSER Consortium
出版年份 2018 全文链接
标题
Why Patients Decline Genomic Sequencing Studies: Experiences from the CSER Consortium
作者
关键词
Exome sequencing, Genome sequencing, Reason for decline, Rate of decline, Clinical Sequencing Exploratory Research (CSER) consortium
出版物
Journal of Genetic Counseling
Volume -, Issue -, Pages -
出版商
Springer Nature
发表日期
2018-03-01
DOI
10.1007/s10897-018-0243-7
参考文献
相关参考文献
注意:仅列出部分参考文献,下载原文获取全部文献信息。- Genome sequencing and carrier testing: decisions on categorization and whether to disclose results of carrier testing
- (2017) Patricia Himes et al. GENETICS IN MEDICINE
- Large, Prospective Analysis of the Reasons Patients Do Not Pursue BRCA Genetic Testing Following Genetic Counseling
- (2017) Sommer Hayden et al. Journal of Genetic Counseling
- Reasons for Declining Preconception Expanded Carrier Screening Using Genome Sequencing
- (2017) Marian J. Gilmore et al. Journal of Genetic Counseling
- Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine
- (2016) Robert C. Green et al. AMERICAN JOURNAL OF HUMAN GENETICS
- Stakeholder views on secondary findings in whole-genome and whole-exome sequencing: a systematic review of quantitative and qualitative studies
- (2016) Michael P. Mackley et al. GENETICS IN MEDICINE
- Participants and Study Decliners’ Perspectives About the Risks of Participating in a Clinical Trial of Whole Genome Sequencing
- (2016) Jill Oliver Robinson et al. Journal of Empirical Research on Human Research Ethics
- Swedish parents’ interest in preconception genetic carrier screening
- (2016) Maria Ekstrand Ragnar et al. UPSALA JOURNAL OF MEDICAL SCIENCES
- Genetic Counselors’ Perspectives and Practices Regarding Expanded Carrier Screening after Initial Clinical Availability
- (2015) Gabriel A. Lazarin et al. Journal of Genetic Counseling
- “Is It Worth Knowing?” Focus Group Participants’ Perceived Utility of Genomic Preconception Carrier Screening
- (2015) Jennifer L. Schneider et al. Journal of Genetic Counseling
- GINA, Genetic Discrimination, and Genomic Medicine
- (2015) Robert C. Green et al. NEW ENGLAND JOURNAL OF MEDICINE
- Anticipate and Communicate: Ethical Management of Incidental and Secondary Findings in the Clinical, Research, and Direct-to-Consumer Contexts (December 2013 Report of the Presidential Commission for the Study of Bioethical Issues)
- (2014) C. Weiner AMERICAN JOURNAL OF EPIDEMIOLOGY
- Factors influencing recruitment to research: qualitative study of the experiences and perceptions of research teams
- (2014) Lisa Newington et al. BMC Medical Research Methodology
- Cost-effectiveness of health research study participant recruitment strategies: A systematic review
- (2014) Lynn Huynh et al. Clinical Trials
- The hidden harm behind the return of results from personal genome services: a need for rigorous and responsible evaluation
- (2014) A. Cecile J.W. Janssens GENETICS IN MEDICINE
- Strategies for Enrollment of African Americans into Cancer Genetic Studies
- (2014) Altovise Ewing et al. JOURNAL OF CANCER EDUCATION
- Obtaining informed consent for clinical tumor and germline exome sequencing of newly diagnosed childhood cancer patients
- (2014) Sarah Scollon et al. Genome Medicine
- Genetic discrimination and life insurance: a systematic review of the evidence
- (2013) Yann Joly et al. BMC Medicine
- Patient decisions for disclosure of secondary findings among the first 200 individuals undergoing clinical diagnostic exome sequencing
- (2013) Layla Shahmirzadi et al. GENETICS IN MEDICINE
- Processes and preliminary outputs for identification of actionable genes as incidental findings in genomic sequence data in the Clinical Sequencing Exploratory Research Consortium
- (2013) Jonathan S. Berg et al. GENETICS IN MEDICINE
- Using Information Technology and Social Networking for Recruitment of Research Participants: Experience From an Exploratory Study of Pediatric Klinefelter Syndrome
- (2013) Sharron Close et al. JOURNAL OF MEDICAL INTERNET RESEARCH
- Patient Autonomy and Incidental Findings in Clinical Genomics
- (2013) S. M. Wolf et al. SCIENCE
- Family Physicians’ Awareness and Knowledge of the Genetic Information Non-Discrimination Act (GINA)
- (2011) Amanda L. Laedtke et al. Journal of Genetic Counseling
- Genomic research and wide data sharing: Views of prospective participants
- (2010) Susan Brown Trinidad et al. GENETICS IN MEDICINE
- The right not to know and preimplantation genetic diagnosis for Huntington's disease
- (2009) E Asscher et al. JOURNAL OF MEDICAL ETHICS
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