Obtaining informed consent for clinical tumor and germline exome sequencing of newly diagnosed childhood cancer patients

Suggestions from adolescents, young adults, and parents for improving informed consent in phase 1 pediatric oncology trials

(2013) Justin N. Baker et al.   CANCER

Participants' Recall and Understanding of Genomic Research and Large-Scale Data Sharing

(2013) Jill Oliver Robinson et al.   Journal of Empirical Research on Human Research Ethics

Stakeholders’ Opinions on the Implementation of Pediatric Whole Exome Sequencing: Implications for Informed Consent

(2013) Brooke L. Levenseller et al.   Journal of Genetic Counseling

Clinical Whole-Exome Sequencing for the Diagnosis of Mendelian Disorders

(2013) Yaping Yang et al.   NEW ENGLAND JOURNAL OF MEDICINE

Informed consent for whole genome sequencing: A qualitative analysis of participant expectations and perceptions of risks, benefits, and harms

(2012) Holly K. Tabor et al.   AMERICAN JOURNAL OF MEDICAL GENETICS PART A

Effects of informed consent for individual genome sequencing on relevant knowledge

(2012) KA Kaphingst et al.   CLINICAL GENETICS

Next-generation sequencing in the clinic: are we ready?

(2012) Leslie G. Biesecker et al.   NATURE REVIEWS GENETICS

Factors Related to Voluntary Parental Decision-Making in Pediatric Oncology

(2012) V. A. Miller et al.   PEDIATRICS

Attitudes of Patients With Cancer About Personalized Medicine and Somatic Genetic Testing

(2012) Stacy W. Gray et al.   Journal of Oncology Practice

Genomics really gets personal: How exome and whole genome sequencing challenge the ethical framework of human genetics research

(2011) Holly K. Tabor et al.   AMERICAN JOURNAL OF MEDICAL GENETICS PART A

To share or not to share: A randomized trial of consent for data sharing in genome research

(2011) Amy L. McGuire et al.   GENETICS IN MEDICINE

Outcomes of informed consent among parents of children in cancer clinical trials

(2011) Tony H. Truong et al.   PEDIATRIC BLOOD & CANCER

Communicating Genetic and Genomic Information: Health Literacy and Numeracy Considerations

(2010) D.H. Lea et al.   Public Health Genomics

Australian Study on Public Knowledge of Human Genetics and Health

(2008) C. Molster et al.   Public Health Genomics