“Stop Talking to People; Talk with Them”: A Qualitative Study of Information Needs and Experiences Among Genetic Research Participants in Pakistan and Denmark

The Vulnerability of Study Participants in the Context of Transnational Biomedical Research: From Conceptual Considerations to Practical Implications

(2016) Helen Grete Orth et al.   Developing World Bioethics

Traveling questions: uncertainty and nonknowledge as vehicles of translation in genetic research participation

(2016) Klaus Hoeyer   NEW GENETICS AND SOCIETY

Sharing and Reuse of Sensitive Data and Samples: Supporting Researchers in Identifying Ethical and Legal Requirements

(2015) Murat Sariyar et al.   BIOPRESERVATION AND BIOBANKING

Sharing and Reuse of Sensitive Data and Samples: Supporting Researchers in Identifying Ethical and Legal Requirements

(2015) Murat Sariyar et al.   Biopreservation and Biobanking

Return of results: Ethical and legal distinctions between research and clinical care

(2014) Wylie Burke et al.   AMERICAN JOURNAL OF MEDICAL GENETICS PART C-SEMINARS IN MEDICAL GENETICS

What Are Some of the ELSI Challenges of International Collaborations Involving Biobanks, Global Sample Collection, and Genomic Data Sharing and How Should They Be Addressed?

(2014) Edward S. Dove et al.   BIOPRESERVATION AND BIOBANKING

International Charter of principles for sharing bio-specimens and data

(2014) Deborah Mascalzoni et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

A human rights approach to an international code of conduct for genomic and clinical data sharing

(2014) Bartha M. Knoppers et al.   HUMAN GENETICS

Indigenous body parts, mutating temporalities, and the half-lives of postcolonial technoscience

(2013) Emma Kowal et al.   SOCIAL STUDIES OF SCIENCE

Experiencing everyday ethics in context: Frontline data collectors perspectives and practices of bioethics

(2013) Patricia Kingori   SOCIAL SCIENCE & MEDICINE

Toward a roadmap in global biobanking for health

(2012) Jennifer R Harris et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Meanings of blood, bleeding and blood donations in Pakistan: implications for national vs global safe blood supply policies

(2011) Z. Mumtaz et al.   HEALTH POLICY AND PLANNING

Feedback of individual genetic results to research participants: in favor of a qualified disclosure policy

(2011) Annelien L. Bredenoord et al.   HUMAN MUTATION

Ethical and Practical Guidelines for Reporting Genetic Research Results to Study Participants

(2010) Richard R. Fabsitz et al.   Circulation-Cardiovascular Genetics

‘He is now like a brother, I can even give him some blood’ – Relational ethics and material exchanges in a malaria vaccine ‘trial community’ in The Gambia

(2008) P. Wenzel Geissler et al.   SOCIAL SCIENCE & MEDICINE