Discontinuity of Cardiac Follow‐Up in Young People With Congenital Heart Disease Transitioning to Adulthood: A Systematic Review and Meta‐Analysis

Outpatient volumes and medical staffing resources as predictors for continuity of follow-up care during transfer of adolescents with congenital heart disease

(2020) Sandra Skogby et al.   INTERNATIONAL JOURNAL OF CARDIOLOGY

A transition clinic intervention to improve follow-up rates in adolescents and young adults with congenital heart disease

(2020) Stephanie S. Gaydos et al.   CARDIOLOGY IN THE YOUNG

Meta-analysis: How to quantify and explain heterogeneity?

(2020) Todd Ruppar   European Journal of Cardiovascular Nursing

International research in cardiovascular nursing: Getting insight in the role of system factors

(2019) Philip Moons   European Journal of Cardiovascular Nursing

Staffing, activities, and infrastructure in 96 specialised adult congenital heart disease clinics in Europe

(2019) Corina Thomet et al.   INTERNATIONAL JOURNAL OF CARDIOLOGY

Factors influencing the participation of adolescents and young adults with a congenital heart disease in a transition education program: A prospective multicentre controlled study

(2019) Oscar Werner et al.   PATIENT EDUCATION AND COUNSELING

Knowledge of Life-Long Cardiac Care by Adolescents and Young Adults with Congenital Heart Disease

(2019) Susan M. Fernandes et al.   PEDIATRIC CARDIOLOGY

A model for geographic and sociodemographic access to care disparities for adults with congenital heart disease

(2019) Katherine B. Salciccioli et al.   Congenital Heart Disease

The Scope of Research on Transfer and Transition in Young Persons With Chronic Conditions

(2019) Mariela Acuña Mora et al.   JOURNAL OF ADOLESCENT HEALTH

Transition program for adolescents with congenital heart disease in transition to adulthood: protocol for a mixed-method process evaluation study (the STEPSTONES project)

(2019) Markus Saarijärvi et al.   BMJ Open

Empowering young persons with congenital heart disease: Using intervention mapping to develop a transition program - the STEPSTONES project

(2019) Mariela Acuña Mora et al.   Journal of Pediatric Nursing-Nursing Care of Children & Families

Loss of follow-up in transition to adult CHD: a single-centre experience

(2018) Madhukar S. Kollengode et al.   CARDIOLOGY IN THE YOUNG

Transition Intervention for Adolescents With Congenital Heart Disease

(2018) Andrew S. Mackie et al.   JOURNAL OF THE AMERICAN COLLEGE OF CARDIOLOGY

Functional classification of heart failure before and after implementing a healthcare transition program for youth and young adults transferring from a pediatric to an adult congenital heart disease clinics

(2018) Albert C. Hergenroeder et al.   Congenital Heart Disease

Short-term outcomes following implementation of a dedicated young adult congenital heart disease transition program

(2017) Sumeet S. Vaikunth et al.   Congenital Heart Disease

Person-centred transition programme to empower adolescents with congenital heart disease in the transition to adulthood: a study protocol for a hybrid randomised controlled trial (STEPSTONES project)

(2017) Mariela Acuña Mora et al.   BMJ Open

Survivorship in Children and Young Adults With Congenital Heart Disease in Sweden

(2017) Zacharias Mandalenakis et al.   JAMA Internal Medicine

Predictors of Care Gaps in Adolescents With Complex Chronic Condition Transitioning to Adulthood

(2016) E. Goossens et al.   PEDIATRICS

Implementation of the American College of Cardiology/American Heart Association 2008 Guidelines for the Management of Adults With Congenital Heart Disease

(2015) Eva Goossens et al.   AMERICAN JOURNAL OF CARDIOLOGY

Challenges of intra-institutional transfer of care from paediatric to adult congenital cardiology: the need for retention as well as transition

(2015) Claudine M. Bohun et al.   CARDIOLOGY IN THE YOUNG

Provision of Transition Education and Referral Patterns from Pediatric Cardiology to Adult Cardiac Care

(2015) Anna L. Harbison et al.   PEDIATRIC CARDIOLOGY

Prevalence and Patterns of Retention in Cardiac Care in Young Adults with Congenital Heart Disease

(2013) Mark D. Norris et al.   JOURNAL OF PEDIATRICS

Prevalence and Predictors of Gaps in Care Among Adult Congenital Heart Disease Patients

(2013) Michelle Gurvitz et al.   JOURNAL OF THE AMERICAN COLLEGE OF CARDIOLOGY

Best Practices in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: The Transition Process and Medical and Psychosocial Issues

(2011) Craig Sable et al.   CIRCULATION

Transfer of Adolescents With Congenital Heart Disease From Pediatric Cardiology to Adult Health Care

(2011) Eva Goossens et al.   JOURNAL OF THE AMERICAN COLLEGE OF CARDIOLOGY

Adolescents' Understanding of Their Congenital Heart Disease on Transfer to Adult-Focused Care

(2010) Kristien Van Deyk et al.   AMERICAN JOURNAL OF CARDIOLOGY

Temporal Trends in Survival to Adulthood Among Patients Born With Congenital Heart Disease From 1970 to 1992 in Belgium

(2010) Philip Moons et al.   CIRCULATION

Children and Adults With Congenital Heart Disease Lost to Follow-Up

(2009) Andrew S. Mackie et al.   CIRCULATION

Attitude Toward and Current Practice of Transfer and Transition of Adolescents with Congenital Heart Disease in the United States of America and Europe

(2009) Deborah Hilderson et al.   PEDIATRIC CARDIOLOGY

Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement

(2009) David Moher et al.   PLOS MEDICINE

Implementation of Transition Programs can Prevent Another Lost Generation of Patients with Congenital Heart Disease

(2008) Philip Moons et al.   European Journal of Cardiovascular Nursing

Lapse of care as a predictor for morbidity in adults with congenital heart disease

(2007) Elizabeth Yeung et al.   INTERNATIONAL JOURNAL OF CARDIOLOGY