Digital phenotyping and sensitive health data: Implications for data governance

When health tech companies change their terms of service

(2020) Jessica L. Roberts et al.   SCIENCE

Electronic Informed Consent in Mobile Applications Research

(2020) John T. Wilbanks   JOURNAL OF LAW MEDICINE & ETHICS

Ethical guidelines for COVID-19 tracing apps

(2020) Jessica Morley et al.   NATURE

COVID-19 Contact Tracing Apps: A Stress Test for Privacy, the GDPR and Data Protection Regimes

(2020) Laura Bradford et al.   Journal of Law and the Biosciences

Opportunities and challenges in the collection and analysis of digital phenotyping data

(2020) Jukka-Pekka Onnela   NEUROPSYCHOPHARMACOLOGY

Federated learning in medicine: facilitating multi-institutional collaborations without sharing patient data

(2020) Micah J. Sheller et al.   Scientific Reports

How to fix the GDPR's frustration of global biomedical research

(2020) Jasper Bovenberg et al.   SCIENCE

Federated Machine Learning

(2019) Qiang Yang et al.   ACM Transactions on Intelligent Systems and Technology

AI can be sexist and racist — it’s time to make it fair

(2018) James Zou et al.   NATURE

Genetic database software as medical devices

(2018) Adrian Thorogood et al.   HUMAN MUTATION

BRCA Challenge: BRCA Exchange as a global resource for variants in BRCA1 and BRCA2

(2018) Melissa S. Cline et al.   PLoS Genetics

ClinVar: improving access to variant interpretations and supporting evidence

(2017) Melissa J Landrum et al.   NUCLEIC ACIDS RESEARCH

Accuracy of Wrist-Worn Heart Rate Monitors

(2017) Robert Wang et al.   JAMA Cardiology

Harnessing Smartphone-Based Digital Phenotyping to Enhance Behavioral and Mental Health

(2016) Jukka-Pekka Onnela et al.   NEUROPSYCHOPHARMACOLOGY

The Rise of Consumer Health Wearables: Promises and Barriers

(2016) Lukasz Piwek et al.   PLOS MEDICINE

The mPower study, Parkinson disease mobile data collected using ResearchKit

(2016) Brian M. Bot et al.   Scientific Data

The digital phenotype

(2015) Sachin H Jain et al.   NATURE BIOTECHNOLOGY

The European Genome-phenome Archive of human data consented for biomedical research

(2015) Ilkka Lappalainen et al.   NATURE GENETICS

The Human Gene Mutation Database: building a comprehensive mutation repository for clinical and molecular genetics, diagnostic testing and personalized genomic medicine

(2013) Peter D. Stenson et al.   HUMAN GENETICS

PhenoTips: Patient Phenotyping Software for Clinical and Research Use

(2013) Marta Girdea et al.   HUMAN MUTATION

Systematic review of the Hawthorne effect: New concepts are needed to study research participation effects

(2013) Jim McCambridge et al.   JOURNAL OF CLINICAL EPIDEMIOLOGY

NCBI’s Database of Genotypes and Phenotypes: dbGaP

(2013) Kimberly A. Tryka et al.   NUCLEIC ACIDS RESEARCH

Council of Europe adopts protocol on genetic testing for health purposes

(2009) Laurence Lwoff   EUROPEAN JOURNAL OF HUMAN GENETICS

Biobanken und Biomolekulare Ressourcen Forschungsinfrastruktur (BBMRI)

(2008) C. Viertler et al.   PATHOLOGE