Participants' Recall and Understanding of Genomic Research and Large-Scale Data Sharing

A Randomized Controlled Trial of Short and Standard-Length Consent Forms for a Genetic Cohort Study: Is Longer Better?

(2012) Kenji Matsui et al.   JOURNAL OF EPIDEMIOLOGY

The Tension Between Data Sharing and the Protection of Privacy in Genomics Research

(2011) Jane Kaye   Annual Review of Genomics and Human Genetics

Balancing the Risks and Benefits of Genomic Data Sharing: Genome Research Participants’ Perspectives

(2011) J.M. Oliver et al.   Public Health Genomics

Informed Consent in Genomics and Genetic Research

(2010) Amy L. McGuire et al.   Annual Review of Genomics and Human Genetics

Simplifying informed consent for biorepositories: Stakeholder perspectives

(2010) Laura M Beskow et al.   GENETICS IN MEDICINE

How Does Feeling Informed Relate to Being Informed? The DECISIONS Survey

(2010) Karen R. Sepucha et al.   MEDICAL DECISION MAKING

Communicating Genetic and Genomic Information: Health Literacy and Numeracy Considerations

(2010) D.H. Lea et al.   Public Health Genomics

WHAT SHOULD RESEARCH PARTICIPANTS UNDERSTAND TO UNDERSTAND THEY ARE PARTICIPANTS IN RESEARCH?

(2008) DAVID WENDLER et al.   BIOETHICS

DNA data sharing: research participants' perspectives

(2008) Amy L McGuire et al.   GENETICS IN MEDICINE