Research Stakeholders’ Views on Benefits and Challenges for Public Health Research Data Sharing in Kenya: The Importance of Trust and Social Relations

Systematic archiving and access to health research data: rationale, current status and way forward

(2016) Manju Rani et al.   BULLETIN OF THE WORLD HEALTH ORGANIZATION

Developing Ethical Practices for Public Health Research Data Sharing in South Africa

(2015) Spencer G. Denny et al.   Journal of Empirical Research on Human Research Ethics

Trust, Respect, and Reciprocity

(2015) Laura Merson et al.   Journal of Empirical Research on Human Research Ethics

Sweat, Skepticism, and Uncharted Territory

(2015) Ketaki Hate et al.   Journal of Empirical Research on Human Research Ethics

Perceived Benefits, Harms, and Views About How to Share Data Responsibly

(2015) Phaik Yeong Cheah et al.   Journal of Empirical Research on Human Research Ethics

Ethical issues in the export, storage and reuse of human biological samples in biomedical research: perspectives of key stakeholders in Ghana and Kenya

(2014) Paulina Tindana et al.   BMC Medical Ethics

Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya

(2013) Vicki Marsh et al.   BMC Medical Ethics

Evolving Friendships and Shifting Ethical Dilemmas: Fieldworkers’ Experiences in a Short Term Community Based Study in Kenya

(2013) Dorcas M. Kamuya et al.   Developing World Bioethics

Engaging Communities to Strengthen Research Ethics in Low-Income Settings: Selection and Perceptions of Members of a Network of Representatives in Coastal Kenya

(2013) Dorcas M. Kamuya et al.   Developing World Bioethics

Preparing for Responsible Sharing of Clinical Trial Data

(2013) Michelle M. Mello et al.   NEW ENGLAND JOURNAL OF MEDICINE

Benefits and payments for research participants: Experiences and views from a research centre on the Kenyan coast

(2012) Sassy Molyneux et al.   BMC Medical Ethics

Data sharing: not as simple as it seems

(2011) Neil Pearce et al.   Environmental Health

Blueprint for a deliberative public forum on biobanking policy: were theoretical principles achievable in practice?

(2011) Caron Molster et al.   HEALTH EXPECTATIONS

Sharing research data to improve public health: a perspective from the global south

(2011) Osman Sankoh et al.   LANCET

Experiences with community engagement and informed consent in a genetic cohort study of severe childhood diseases in Kenya

(2010) Vicki M Marsh et al.   BMC Medical Ethics

Sharing health data: developing country perspectives

(2010) Viroj Tangcharoensathien et al.   BULLETIN OF THE WORLD HEALTH ORGANIZATION

Sharing health data: good intentions are not enough

(2010) Elizabeth Pisani et al.   BULLETIN OF THE WORLD HEALTH ORGANIZATION

Responsibilities in international research: a new look revisited

(2010) S. R Benatar et al.   JOURNAL OF MEDICAL ETHICS

Biobank governance: a lesson in trust

(2010) A. K. Hawkins et al.   NEW GENETICS AND SOCIETY

Time for fair trade in research data

(2009) Elizabeth Pisani et al.   LANCET

Prepublication data sharing

(2009)   NATURE

Ethical Data Release in Genome-Wide Association Studies in Developing Countries

(2009) Michael Parker et al.   PLOS MEDICINE