Review
Medicine, General & Internal
Sasha Shepperd, Daniela C. Goncalves-Bradley, Sharon E. Straus, Bee Wee
Summary: The evidence suggests that home-based end-of-life care programs can increase the likelihood of patients dying at home. However, the impact of home-based end-of-life care on patient outcomes, symptom control, caregiver satisfaction, and healthcare costs remains uncertain.
COCHRANE DATABASE OF SYSTEMATIC REVIEWS
(2021)
Article
Health Care Sciences & Services
Meng-Ping Wu, Lee-Ing Tsao, Sheng-Jean Huang, Chieh-Yu Liu
Summary: In Chinese or Eastern society, most EOL patients choose to die at home, but primary family caregivers are often not prepared for this. Therefore, a measurement tool, the RHBPCS, was developed to assess the readiness for home-based palliative care for primary family caregivers, with good reliability and validity demonstrated in the study.
Article
Health Care Sciences & Services
Perri R. Tutelman, Keagan G. Lipak, Aminat Adewumi, Marci Z. Fults, Lisa M. Humphrey, Cynthia A. Gerhardt
Summary: This study aimed to explore the concerns of parents with a child in home-based PPC. The results showed that parents' concerns mainly focused on ensuring their child's well-being, uncertainty about diagnosis and prognosis, the process of their child's death, and the impact on the family. These findings highlight the need for interventions to support seriously ill children and their families in PPC.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2021)
Article
Health Care Sciences & Services
Debra Lotstein, Margaret J. Klein, Lisa C. Lindley, Joanne Wolfe
Summary: This study investigated the referral practices of a hospital-based pediatric palliative care team to community-based programs. It found that only a minority of patients received referrals, and those in the ICU and with neurologic conditions may be at higher risk of missing appropriate referrals.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2023)
Article
Geriatrics & Gerontology
Yu Sun, Masao Iwagami, Jun Komiyama, Takehiro Sugiyama, Ryota Inokuchi, Nobuo Sakata, Tomoko Ito, Satoru Yoshie, Hiroki Matsui, Keitaro Kume, Masaru Sanuki, Genta Kato, Yukiko Mori, Hiroaki Ueshima, Nanako Tamiya
Summary: To meet the increasing demand for home healthcare in Japan, home care support clinics/hospitals (HCSCs) were introduced in 2006, followed by enhanced HCSCs in 2012. A retrospective cohort study evaluated the effectiveness of HCSCs in providing 24-hour home care services. The study found that enhanced HCSCs had more emergency house calls, reduced hospitalizations, and enabled expected deaths at home, indicating the advantages of further promoting HCSCs.
JOURNAL OF THE AMERICAN GERIATRICS SOCIETY
(2023)
Article
Public, Environmental & Occupational Health
Jiaoli Cai, Li Zhang, Denise Guerriere, Peter C. Coyte
Summary: Informal care, provided by both primary and non-primary caregivers, plays a crucial role in the care of care-recipients. Primary caregivers, typically spouses and children, bear the main responsibility for care, while non-primary caregivers, comprising others, contribute significantly as well. Suitable interventions are encouraged to balance the work of primary caregivers, promote non-primary care-giving, and effectively arrange formal home-based palliative care services.
HEALTH & SOCIAL CARE IN THE COMMUNITY
(2021)
Article
Geriatrics & Gerontology
Bruce Leff, Christine Ritchie, Deborah G. Freeland, Namirah Jamshed, Anita Major, Naomi Gallopyn, Shanaz Sharieff, Jane Taylor, Jean A. Yudin, Orla C. Sheehan
Summary: This article describes the work of the National HBPC Learning Network, which aims to foster a continuous learning culture among home-based primary care practices and improve practice quality. Through recruitment, training, and feedback, LN practices have addressed and improved performance in multiple quality areas.
JOURNAL OF THE AMERICAN MEDICAL DIRECTORS ASSOCIATION
(2022)
Article
Health Care Sciences & Services
Grant M. Smith, Brook A. Calton, Michael W. Rabow, Angela K. Marks, Kara E. Bischoff, Steven Z. Pantilat, David L. O'Riordan
Summary: Patients seen by palliative care teams at home have worse function and are more likely to be referred for care planning, while patients seen in clinic have more palliative care needs related to pain and symptom management. Both populations have significant palliative care needs that require appropriately staffed interdisciplinary teams to address.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2021)
Article
Oncology
Amandine Bertrand, Veronique Veyet, Florence Goy, Marie Cervos, Matthias Schell
Summary: The study found that home nurses play a crucial role in pediatric palliative care, with most of them having reservations about accepting these duties but also showing significant personal involvement in the cases. Key influencing factors include the availability and proactiveness of the HCU team, as well as communication and planning with the families.
SUPPORTIVE CARE IN CANCER
(2022)
Article
Geriatrics & Gerontology
Daniel Kinder, Dawn Smith, Mary Ersek, Melissa Wachterman, Joshua Thorpe, Darlene Davis, Ann Kutney-Lee
Summary: This study found that veterans enrolled in the HBPC program who received community-based hospice services had higher ratings of end-of-life care from bereaved family members, which may help improve the overall experience of end-of-life care for veterans and their families.
JOURNAL OF THE AMERICAN GERIATRICS SOCIETY
(2022)
Review
Health Care Sciences & Services
Nanna Maria Hammer, Pernille Envold Bidstrup, Jesper Brok, Minna Devantier, Per Sjogren, Kjeld Schmiegelow, Anders Larsen, Geana Paula Kurita, Marianne Olsen, Hanne Baekgaard Larsen
Summary: This systematic review examined the impact of home-based specialized pediatric palliative care (SPPC) and found that receiving home-based SPPC was associated with an increased likelihood of home death, potentially improved quality of life, and reduced symptom burden. However, the limited number of studies and a high risk of bias in the included studies contribute to a low overall strength of evidence.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2023)
Article
Medicine, General & Internal
Samuel T. Edwards, Liberty Greene, Camila Chaudhary, Derek Boothroyd, Bruce Kinosian, Donna M. Zulman
Summary: This study aimed to investigate outpatient care fragmentation patterns and subsequent acute care among high-risk HBPC patients. The study found that an increased number of practitioners was associated with higher odds of ED visits and hospitalizations for ambulatory care sensitive conditions, while more concentrated care was associated with reduced odds of these outcomes.
Article
Health Care Sciences & Services
Jiaoli Cai, Li Zhang, Denise Guerriere, Peter C. Coyte
Summary: Informal care intensity is influenced by factors such as proximity to death, home-based nursing care, living arrangements, and employment status of caregivers. Spousal caregivers tend to provide more hours of informal care. Various demographic factors of both patients and caregivers play a role in determining the number of hours of informal care provided. This study highlights the importance of considering predisposing, enabling, and needs-based factors when planning and targeting support for informal care provision.
PALLIATIVE MEDICINE
(2021)
Article
Geriatrics & Gerontology
Samuel T. Edwards, Allison O'Neill, Meike Niederhausen, Apoorva Salvi, Avery Laliberte, Somnath Saha, Denise M. Hynes, Steven Pizer, Bruce Kinosian
Summary: Veterans Affairs home-based primary care provides comprehensive care for patients with complex chronic disease. This study examines the care trajectories of newly enrolled patients in VA HBPC, finding variable trajectories with overall reductions in acute care use and a majority of time spent in non-institutional settings.
JOURNAL OF THE AMERICAN GERIATRICS SOCIETY
(2023)
Article
Oncology
Katherine Hicks-Courant, Genevieve P. Kanter, Marilyn M. Schapira, Colleen M. Brensinger, Qing Liu, Emily Meichun Ko
Summary: This study examines the impact of primary oncologist specialty, gynecologic oncology versus medical oncology, on the intensity of care at the end of life for elderly patients with gynecologic cancer. The results show that there are differences between the two specialties in the provision of high-intensity end-of-life care, as well as in the rates of invasive procedures and Medicare spending.
INTERNATIONAL JOURNAL OF GYNECOLOGICAL CANCER
(2022)