期刊
DISABILITY AND REHABILITATION
卷 34, 期 25, 页码 2139-2147出版社
TAYLOR & FRANCIS LTD
DOI: 10.3109/09638288.2012.676146
关键词
Complementary treatment; non-pharmacological treatment; pain; patient expectation; spinal cord injury
资金
- Swedish Cancer & Traffic Injury Society Fund [CTRF]
- Swedish Association for Survivors of Accident and Injury [RTP]
- Norrbacka-Eugenia Foundation
- Karolinska Institutet Funds and Foundations
Purpose: To explore and obtain increased knowledge about (i) strategies and treatments used by individuals with neuropathic pain following spinal cord injury (SCI) for handling long-term pain, and (ii) their experience, needs and expectations of SCI neuropathic pain management. Methods: Qualitative methods with an emergent research design were used. Eighteen informants who suffered from long-term SCI neuropathic pain participated. Data were collected with diaries and thematized research interviews. Content analysis and constant comparison according to grounded theory were used for the analyses. Results: A model with four categories emerged: Pain is my main problem explained the impact of pain in the informants' everyday life; Drugs - the health care solution described the informants' experience of pain management; The gap in my meeting with health care described the discrepancy between what the informants wanted and what health care could offer. But. this works for me described treatments and strategies, which the informants found helpful for pain control and pain relief. Conclusion: Neuropathic pain, one of the major problems following SCI, is difficult to treat successfully. To improve treatment outcome, health care needs to listen to, respond to and respect the patient's knowledge, experience and wishes. Future research needs to address treatments that patients find effective.
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