Article
Health Care Sciences & Services
Lauren J. Hunt, Sarah B. Garrett, Gabrielle Dressler, Rebecca Sudore, Christine S. Ritchie, Krista L. Harrison
Summary: The study indicates that hospice providers have different experiences with ACP quality measurement, encountering barriers and having negative attitudes towards federally mandated requirements. They suggest personalizing measures, emphasizing the importance of quality measurement, and streamlining processes for improvement.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2021)
Article
Oncology
Rebecca Liddicoat Yamarik, Laraine Ann Chiu, Mara Flannery, Kaitlyn Van Allen, Oluwaseun M. Adeyemi, Allison A. Cuthel, Abraham S. Brody, Keith Goldfeld, Deborah R. Schrag, Corita Grudzen
Summary: We conducted a 6-month telephone nursing program for persons living with advanced cancer to help them manage symptoms, coordinate care, and plan for future care. Half of the subjects completed the program, a quarter died or enrolled in hospice, 19% were lost to follow-up, and 9% withdrew from the program. White patients and those with fewer symptoms were more likely to withdraw. 83% of all patients completed some advance care planning, and 80% of patients received hospice care prior to death.
Article
Nursing
Michael J. Tatterton, Megan J. Fisher, Helen Storton, Charlotte Walker
Summary: Perinatal palliative care services are increasingly available globally, offering clinical and psychological support to families. However, little is known about the role of children's hospice care in perinatal palliative care. This study conducted an electronic survey among UK children's hospices and found that they play an important and growing role in the care of babies and families with life-limiting conditions.
JOURNAL OF NURSING SCHOLARSHIP
(2023)
Review
Critical Care Medicine
Emily K. Rose, James O'Connor
Summary: COPD is a progressive disease that affects patients' quality of life, and it is crucial to discuss patients' care goals before the disease becomes refractory. Advance Care Planning (ACP) is a comprehensive approach to discussing goals with patients. Existing research has shown that ACP improves communication, reduces hospital admissions, and enhances quality of life, although most studies have focused on cancer patients. Without further research and guidance, obtaining funding for ACP programs dedicated to COPD may be challenging. There are currently no guidelines for addressing ACP in patients with COPD, and barriers exist that hinder meaningful discussions between patients, families, and healthcare providers. Research has also indicated that multidisciplinary teams can improve care and quality of life. Therefore, dedicated research should investigate the effects of ACP initiatives on outcomes in COPD patients, particularly in reducing hospital admissions and improving quality of life.
Review
Health Care Sciences & Services
Marian S. Grant, Anthony L. Back, Nicole S. Dettmar
Summary: Studies show that while most participants are aware of the importance of advance care planning (ACP), only a small percentage have taken concrete actions; for palliative care, lack of awareness is common, but most participants have a positive perception after being prompted with a definition; for hospice, awareness is high and favorable ratings are common, although some participants have misconceptions.
JOURNAL OF PALLIATIVE MEDICINE
(2021)
Review
Health Care Sciences & Services
Jessica Geiger, Gavin Enck, Lisa Luciani, Jeffrey Fudin, Mary Lynn McPherson
Summary: This article provides an overview of pharmacists' involvement with palliative care, highlighting their integral role on the team. It points out the lack of board certification in palliative care for pharmacists despite their years of participation on multidisciplinary teams.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2022)
Article
Geriatrics & Gerontology
Anna Oh, Theresa A. Allison, Katherine Mahoney, Nicole Thompson, Christine S. Ritchie, Rebecca L. Sudore, Krista L. Harrison
Summary: This study aims to understand the facilitators and barriers to hospice staff engagement in advance care planning conversations. Through interviews and analysis, it was found that hospice staff have varying levels of capability, opportunity, motivation, and behavior. Recommendations were made to improve ACP discussions, including training, introducing ACP earlier, and increasing workforce diversity.
JOURNAL OF THE AMERICAN MEDICAL DIRECTORS ASSOCIATION
(2022)
Article
Clinical Neurology
Jenny T. van der Steen, Miharu Nakanishi, Lieve van den Block, Paola Di Giulio, Silvia Gonella, Juergen In Der Schmitten, Rebecca L. Sudore, Karen Harrison Dening, Deborah Parker, Ninoslav Mimica, Iva Holmerova, Philip Larkin, Sandra Martins Pereira, Judith A. C. Rietjens, Ida J. Korfage
Summary: This study aimed to conceptualize advance care planning for dementia through a Delphi study, focusing on defining the concept and identifying key issues such as capacity, family, and engagement. The results highlighted the importance of communication and relationship-centered approach for ACP in dementia.
ALZHEIMERS & DEMENTIA
(2023)
Article
Health Care Sciences & Services
Jean Abbott, Kelly Ferraro, Daniel Johnson, Barbara Statland, John Massone, Carol Fowler, Peggy Budai, Stephen V. Cantrill
Summary: The article highlights the shortages of palliative care and hospice services during the current pandemic and stresses the importance of anticipating future surges in order to avoid a degradation of care quality for vulnerable patients who require critical care interventions.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2021)
Article
Surgery
Katherine C. Lee, Anne M. Walling, Steven S. Senglaub, Rachelle Bernacki, Lee A. Fleisher, Marcia M. Russell, Neil S. Wenger, Zara Cooper
Summary: This study aimed to develop a set of quality indicators to measure access to and the quality of primary palliative care (PC) delivered to seriously ill surgical patients. After two rounds of rating by an expert panel, a total of 24 indicators were rated as valid, covering various phases of surgical care.
Review
Oncology
Adela Wu, Gabriela Ruiz Colon, Rebecca Aslakson, Erqi Pollom, Chirag B. Patel
Summary: Glioblastoma is the most common primary brain malignancy in adults, with a devastating prognosis despite standard treatments. Advance care planning and palliative care are critical for these patients, yet many do not pursue it or have access to these services. More focused and high-quality studies on end-of-life care are needed to address gaps in palliative care resource utilization for glioblastoma patients.
Review
Health Care Sciences & Services
Jean Abbott, Carli D. Kassner, Cordt T. Kassner
Summary: According to the study, less than half of the states' crisis planning documents explicitly mentioned plans for palliative care and hospice services, despite the existence of this issue before the COVID pandemic. Failure to address these needs will result in avoidable suffering for patients in various settings.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2023)
Article
Oncology
Michael G. Cohen, Andrew D. Althouse, Robert M. Arnold, Hailey W. Bulls, Douglas B. White, Edward Chu, Margaret Q. Rosenzweig, Kenneth J. Smith, Yael Schenker
Summary: This study found that engagement in advance care planning (ACP) did not decrease hope in patients with advanced cancer, and may even increase hope. These results may provide reassurance to clinicians who are apprehensive about having these important and difficult conversations.
Review
Pediatrics
Nadine Lusney, Camara van Breemen, Edlyn Lim, Colleen Pawliuk, Zahra Hussein
Summary: To assess pediatric advance care planning (pACP) documentation and implementation, clinicians at a Canadian pediatric hospice conducted a scoping review. Sixty-four articles and fifteen pACP forms/tools were reviewed, highlighting the importance of a structured, collaborative, and iterative process between families and healthcare providers. No single ACP tool was identified as the gold standard, and implementation strategies included a structured pACP tool, ongoing training, mentorship, and organizational structures.
Review
Gastroenterology & Hepatology
Puneeta Tandon, Anne Walling, Heather Patton, Tamar Taddei
Summary: Palliative Care is an approach focusing on improving the quality of life for patients facing life-limiting illness, applicable in cirrhosis patients. However, there is limited guidance and promotion of PC in patients with cirrhosis.
CLINICAL GASTROENTEROLOGY AND HEPATOLOGY
(2021)
Article
Urology & Nephrology
Louis H. Diamond, Nancy C. Armistead, Dale E. Lupu, Alvin H. Moss
Summary: The article advocates for providing supportive care for patients with kidney disease, promoting a more patient-centered care approach, and emphasizes the need for urgent policy changes to improve the quality of life for patients.
AMERICAN JOURNAL OF KIDNEY DISEASES
(2021)
Review
Urology & Nephrology
Devika Nair, Sonia Malhotra, Dale Lupu, Glenda Harbert, Jennifer S. Scherer
Summary: The COVID-19 pandemic has worsened challenges in communication, prognostication, and medical decision-making for patients with kidney disease. Certain biomarkers, demographics, and medical comorbidities increase the risk of mortality among these patients. Interdisciplinary care models are crucial in crisis situations to provide goal-concordant care.
CURRENT OPINION IN NEPHROLOGY AND HYPERTENSION
(2021)
Article
Health Care Sciences & Services
Marie A. Flannery, Supriya Mohile, Eva Culakova, Sally Norton, Charles Kamen, J. Nicholas Dionne-Odom, Grace DiGiovanni, Lorraine Griggs, Thomas Bradley, Judith O. Hopkins, Jane Jijun Liu, Kah Poh Loh
Summary: This study found that over a quarter of older adults with advanced cancer received assistance in completing patient-reported outcomes. The majority of those who received assistance were identified at the beginning of the study, and the prevalence of assistance decreased over time.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2022)
Article
Nursing
Petra Mandysova, Keela Herr
Summary: This study assessed the psychometric properties of the Revised Iowa Pain Thermometer-Czech in patients with stroke and found that it demonstrated acceptable convergent validity, test-retest reliability, and usability in Czech-speaking cooperative patients with stroke.
JOURNAL OF NURSING MEASUREMENT
(2022)
Article
Urology & Nephrology
Dale E. Lupu, Annette Aldous, Elizabeth Anderson, Jane O. Schell, Hunter Groninger, Michael J. Sherman, Joseph R. Aiello, Samuel J. Simmens
Summary: This study examined the impact of coaching in CKD clinics on patient engagement with advance care planning (ACP). The results showed that coached patients had higher scores on the ACP engagement scale and were more likely to have a documented advance directive or portable medical order. However, the effect of coaching may be influenced by the healthcare environment in which it is delivered.
AMERICAN JOURNAL OF KIDNEY DISEASES
(2022)
Article
Oncology
Yingzi Zhang, Supriya Mohile, Eva Culakova, Sally Norton, Kah Poh Loh, Sindhuja Kadambi, Lee Kehoe, Valerie Aarne Grossman, Victor G. Vogel, Brian L. Burnette, Thomas P. Bradley, Marie Flannery
Summary: This study examines the uncertainty trajectory and its interdependent relationship between older adults with advanced cancer and their caregivers. The findings suggest that patient and caregiver uncertainty levels affect each other, highlighting the importance of addressing uncertainty in interventions for older patients with advanced cancer and caregivers.
Review
Urology & Nephrology
Dale Lupu, Alvin H. Moss
Summary: Patients with kidney failure often have lower quality of life compared to those with other chronic diseases, and require more support. Kidney supportive care focuses on improving quality of life by aligning care with patient preferences and goals, but faces barriers to implementation in the United States.
SEMINARS IN NEPHROLOGY
(2021)
Article
Geriatrics & Gerontology
Clarissa A. Shaw, Caitlin Ward, Jean Gordon, Kristine N. Williams, Keela Herr
Summary: The study found that in acute care settings, the use of elderspeak by nursing staff increases the likelihood of resistance of care behaviors in patients with dementia. Pain and elderspeak are two modifiable factors that contribute to resistance of care in hospitalized patients with dementia. Person-centered interventions targeting communication practices and pain management are needed to address these issues.
JOURNAL OF THE AMERICAN GERIATRICS SOCIETY
(2022)
Article
Oncology
S. Yilmaz, M. C. Janelsins, M. Flannery, E. Culakova, M. Wells, P. -j. Lin, K. P. Loh, R. Epstein, C. Kamen, A. S. Kleckner, S. A. Norton, S. Plumb, S. Alberti, K. Doyle, M. Porto, M. Weber, N. Dukelow, A. Magnuson, L. A. Kehoe, G. Nightingale, M. Jensen-Battaglia, K. M. Mustian, S. G. Mohile
Summary: The study aims to evaluate the effectiveness of the GEMS intervention in improving functional outcomes for older cancer survivors.
JOURNAL OF GERIATRIC ONCOLOGY
(2022)
Article
Health Care Sciences & Services
Giselle Rodriguez de Sosa, Amanda Nicklas, Mae Thamer, Elizabeth Anderson, Naveena Reddy, JoAnn Stevelos, Michael J. Germain, Mark L. Unruh, Dale E. Lupu
Summary: This study aims to promote advance care planning (ACP) conversations in dialysis centers to improve goal-concordant care for patients. The project trains social workers or nurses and provides support and resources to increase the adoption and quality of ACP conversations. This implementation project is of importance for improving advance care planning for dialysis patients.
BMC PALLIATIVE CARE
(2022)
Article
Health Care Sciences & Services
Kan Z. Gianattasio, Melinda C. Power, Dale Lupu, Christina Prather, Ali Moghtaderi
Summary: The study examines the impact of two policies on live discharge rates and length of stay in hospice care. It finds that the policies did not significantly affect live discharge rates, but resulted in an increased rate of length of stay.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2023)
Article
Public, Environmental & Occupational Health
Paul R. Duberstein, Michael Hoerger, Sally A. Norton, Supriya Mohile, Britt Dahlberg, Erica Goldblatt Hyatt, Ronald M. Epstein, Marsha N. Wittink
Summary: Prior interventions have failed to reduce harmful treatments and procedures at the end-of-life. A new model called the Trans-theoretical Model of Irrational Biomedical Exuberance (TRIBE) integrates Terror Management Theory and Socioemotional Selectivity Theory to explain the influence of social and emotional factors on healthcare utilization. TRIBE highlights the need for psychological innovation in interventions, health policy, and research on healthcare utilization.
SOCIAL SCIENCE & MEDICINE
(2023)
Article
Oncology
Marissa LoCastro, Chandrika Sanapala, Ying Wang, Marielle Jensen-Battaglia, Marsha Wittink, Sally Norton, Heidi D. Klepin, Daniel R. Richardson, Jason H. Mendler, Jane Liesveld, Eric Huselton, Kristen O'Dwyer, Ashley-Marie Cortes, Chrystina Rodriguez, William Dale, Kah Poh Loh
Summary: This study assessed the feasibility and usefulness of a patient-centered communication tool (UR-GOAL tool) for treatment decision making between older patients with AML, their caregivers, and oncologists. The results showed that the UR-GOAL tool helped patients understand their diagnosis and treatment options, improve communication with oncologists, and make more informed decisions.
Article
Health Care Sciences & Services
Anne M. Walling, Katherine Ast, Jordan M. Harrison, Sydney M. Dy, Mary Ersek, Laura C. Hanson, Arif H. Kamal, Christine S. Ritchie, Joan M. Teno, Joseph D. Rotella, Vyjeyanthi S. Periyakoil, Sangeeta C. Ahluwalia
Summary: This study developed and tested two patient-reported measures to assess the quality of Palliative care. The development process involved patient engagement and feedback. The measures addressed the gaps in research and received endorsement from the National Quality Forum.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2023)
Article
Urology & Nephrology
Dale E. Lupu, Annette Aldous, Glenda Harbert, Manjula Kurella Tamura, Laura M. Holdsworth, Amanda Nicklas, Brandy Vinson, Alvin H. Moss
Summary: The current care models for older patients with kidney failure in the United States lack supportive care approaches, leading to poor symptom management. To address this issue, a supportive care change package consisting of 14 best-practice recommendations has been developed and will be implemented through a collaborative model.
