Article
Otorhinolaryngology
Sung Eun Hyun, You Gyoung Yi, Hyung-Ik Shin
Summary: The study aimed to assess the reliability and validity of the EDACS in adults with CP, showing it to be a reliable and valid tool for classifying eating and drinking ability. The EDACS correlated well with FOIS, SWAL-QOL, and MACS, but not with GMFCS. Additionally, there were differences in correlation with EDACS based on different types of CP.
Article
Rehabilitation
Hsiu-Ching Chiu, Katherine Buckeridge, Ta-An Lee, Diane Sellers
Summary: This study found that there is high agreement between health professionals and teachers in assessing the functional eating and drinking abilities of children with cerebral palsy using EDACS. This suggests that the Chinese version of EDACS is a valid and reliable tool for classification in this population.
DISABILITY AND REHABILITATION
(2022)
Article
Clinical Neurology
Diane Sellers, Lindsay Pennington, Elizabeth Bryant, Katherine Benfer, Kelly Weir, Sonia Aboagye, Christopher Morris
Summary: The aim of this study was to develop and test Mini-EDACS, a system for describing the eating and drinking abilities of children with cerebral palsy aged between 18 and 36 months. The Mini-EDACS was developed through modifying the existing EDACS system, conducting an international survey, and assessing interobserver reliability. The results indicate that Mini-EDACS provides valid and reliable classification for evaluating the eating and drinking performance of young children with cerebral palsy.
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY
(2022)
Article
Pediatrics
Ksenia M. Bykova, Ulrike Frank, Gay L. Girolami
Summary: This prospective study aims to assess the concurrent validity of the Eating and Drinking Ability Classification System (EDACS) in identifying aspiration risk in children with cerebral palsy. It also investigates the relationship between the aspiration and non-aspiration groups using both the EDACS and the PEDI-EAT-10. The study finds that EDACS is a valid tool in identifying aspiration risk in children classified in EDACS levels III-V, with a significant correlation between EDACS and PEDI-EAT-10.
EUROPEAN JOURNAL OF PEDIATRICS
(2023)
Article
Health Care Sciences & Services
Roman Rethwilm, Harald Boehm, Leonhard Doederlein, Peter A. Federolf, Chakravarthy U. Dussa
Summary: The study identified that pre-surgical function and the number of surgical procedures are important factors influencing the ability to run after surgery. Patients with lower pre-surgical function are at higher risk of losing the ability to run post-surgery.
JOURNAL OF PERSONALIZED MEDICINE
(2021)
Article
Nursing
Weitong Li, Qiuqin Wang, Yujing Chen, Yalou Pu, Guihua Xu
Summary: The study aimed to develop and psychometrically test a Comprehensive Ability of Older People Assessment scale, which includes 40 items across six dimensions. The scale demonstrated good validity and reliability in assessing the health status and nursing needs of older people, providing a scientific basis for accurate evaluation and supervision in various care settings.
Article
Clinical Neurology
Anita McAllister, Eva Sjostrand, Elisabet Rodby-Bousquet
Summary: This study aimed to examine the eating and drinking ability in adults with cerebral palsy (CP) in relation to various factors such as sex, age, subtype, gross motor and hand function, and nutritional status. The results showed that more than half of the adults could eat and drink safely, but a significant portion had dysphagia. Body weight, height, and BMI decreased as the eating and drinking ability level decreased. The study suggests the importance of routine screening and treatment for dysphagia in adults with CP to prevent nutritional complications. The need for support during mealtimes was also associated with lower body weight.
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY
(2022)
Article
Chemistry, Analytical
Maria Raquel Raposo, Diogo Ricardo, Julia Teles, Antonio Prieto Veloso, Filipa Joao
Summary: This study investigated the test-retest reliability and minimal detectable change of plantar pressure insole variables in children with CP. The results showed high test-retest reliability for most variables and the variability observed between sessions may be attributed to the heterogeneous sub-diagnosis of CP.
Article
Clinical Neurology
Jennifer M. Ryan, Grace Lavelle, Nicola Theis, Cherry Kilbride, Marika Noorkoiv
Summary: This study found variations in patterns of visits to rehabilitation and medical professionals among ambulatory young people with CP living in England. Physiotherapists were the most commonly used professionals, followed by dentists, general practitioners, occupational therapists, and orthopaedic surgeons. The overall proportion of young people using services was low, which may support the reorganization of services to maximize benefits to young people with CP.
FRONTIERS IN NEUROLOGY
(2021)
Article
Computer Science, Artificial Intelligence
Jie Li, Zhelong Wang, Sen Qiu, Hongyu Zhao, Jiaxin Wang, Xin Shi, Bing Liang, Giancarlo Fortino
Summary: Hippotherapy is a new rehabilitation therapy for children with cerebral palsy, and a method based on body sensor network is proposed to evaluate its effectiveness. The results show that symptoms of some CP children have been relieved, providing empirical basis for the application of hippotherapy in pediatric CP rehabilitation.
INFORMATION FUSION
(2021)
Article
Medicine, General & Internal
Karen Porter, Nicola Burch, Claire Campbell, Chris Danbury, Charles Foster, Simon Gabe, Andrew Goddard, Katie Harp, Anne Holdoway, Tom Hughes, Karen Le Ball, Jeremy Nightingale, Andrew Rochford, Alex Ruck Keene, Alison Smith, Trevor Smith, Aminda De Silva
Summary: Eating and drinking are crucial not only for nutrition and hydration, but also for pleasure and social interaction. The RCP has published updated guidance offering support to individuals with eating and drinking difficulties, particularly towards end of life. Decisions about nutrition and hydration are among the most challenging in medical practice, and the updated guidance aims to assist healthcare professionals in making decisions in the best interests of patients.
Article
Chemistry, Multidisciplinary
Diogo Ricardo, Julia Teles, Maria Raquel Raposo, Antonio Prieto Veloso, Filipa Joao
Summary: This study evaluated the test-retest reliability of gait parameters in children with CP, showing good reliability for most parameters and lower values for kinematic variables. The results suggest wide-ranging reliability values for lower limb joint angles and joint moments of force during gait.
APPLIED SCIENCES-BASEL
(2021)
Article
Social Sciences, Interdisciplinary
Ahmet Bildiren, Ozge Bikmaz Bilgen, Mediha Korkmaz
Summary: The present study developed a national non-verbal cognitive ability test in Turkey, which was validated through various reliability and validity analyses. Test-retest, split-halves, KR-20, and KR-21 methods were applied for reliability analyses. The results showed that the test had high internal consistency and reliability.
Article
Nutrition & Dietetics
Pushpa Nair, Yolanda Barrado-Martin, Kanthee Anantapong, Kirsten Moore, Christina Smith, Elizabeth Sampson, Jill Manthorpe, Kate Walters, Nathan Davies
Summary: This study explores the experiences of ethnic minority groups in managing eating and drinking difficulties in dementia. It found that food and drink are strongly linked to identity, culture, and emotions. Providing culturally familiar foods and supporting previous food-related roles promoted reminiscence and encouraged eating and drinking for people with dementia. Social interactions also played a role, but could lead to distress in individuals with advanced dementia.
Article
Clinical Neurology
Heejun Kim, Chanhee Park, Joshua (Sung) H. You
Summary: The study developed a portable DPS measurement system for accurately measuring dynamic postural sway in children with cerebral palsy during walking and daily activities. The results showed good concurrent validity and test-retest reliability of the system, as well as its ability to differentiate between DPS measurements in healthy children and children with cerebral palsy.
NEUROREHABILITATION
(2022)
Article
Rehabilitation
Cristina Mei, Madeleine Hodgson, Sheena Reilly, Bethany Fern, Dinah Reddihough, Fiona Mensah, Lindsay Pennington, Annabel Losche, Angela Morgan
Summary: This study explored the characteristics and associated factors of oromotor dysfunction in minimally verbal children with cerebral palsy. The findings showed that oromotor dysfunction was highly prevalent and had significant functional impacts on feeding and communication. Fine motor function was found to be a stronger predictor for identifying children with cerebral palsy who are minimally verbal and at risk of oromotor dysfunction.
DISABILITY AND REHABILITATION
(2022)
Article
Clinical Neurology
Diane Sellers, Lindsay Pennington, Elizabeth Bryant, Katherine Benfer, Kelly Weir, Sonia Aboagye, Christopher Morris
Summary: The aim of this study was to develop and test Mini-EDACS, a system for describing the eating and drinking abilities of children with cerebral palsy aged between 18 and 36 months. The Mini-EDACS was developed through modifying the existing EDACS system, conducting an international survey, and assessing interobserver reliability. The results indicate that Mini-EDACS provides valid and reliable classification for evaluating the eating and drinking performance of young children with cerebral palsy.
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY
(2022)
Article
Rehabilitation
Jennifer McAnuff, Jenny L. Gibson, Rob Webster, Kulwinder Kaur-Bola, Sarah Crombie, Aimee Grayston, Lindsay Pennington
Summary: This study systematically assessed the available evidence for school-based interventions led by allied health professionals. The results showed that these interventions targeted a wide range of outcomes and were implemented in different populations. Future research should focus on school-based health interventions and prioritize the development of implementation models and proper preparation and deployment of education workforce.
DISABILITY AND REHABILITATION
(2023)
Article
Psychology, Developmental
Irene E. M. Spaans, Joke J. M. Geytenbeek, Emma Vaillant, Maaike A. M. C. de Kleijn, Annemieke I. I. Buizer, Lindsay Pennington
Summary: The study aimed to determine the reliability and validity of the Dutch-language version of the Viking Speech Scale (VSS-NL) and its association with motor type of cerebral palsy (CP) in children. The results showed that VSS-NL had excellent inter- and intrarater reliability, strong convergent validity, and moderate discriminant validity.
CHILD CARE HEALTH AND DEVELOPMENT
(2023)
Review
Clinical Neurology
Hannah Merrick, Helen Driver, Chloe Main, Ryan P. W. Kenny, Catherine Richmond, Amanda Allard, Kulwinder Bola, Christopher Morris, Jeremy R. Parr, Fiona Pearson, Lindsay Pennington
Summary: This study aims to identify the impact of service adaptations on children and young people with long-term disability during the COVID-19 pandemic. The reduction of face-to-face care and the adoption of telehealth had a significant impact on children and families. However, there is limited evidence on changes to mental health services, transitions of care, social care, or child-reported satisfaction.
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY
(2023)
Editorial Material
Medicine, Research & Experimental
Bernie Carter, Lucy Bray, Nadia al-Najjar, Agnes Tort Piella, Catrin Tudur-Smith, Catherine Spowart, Amber Collingwood, Holly Crudgington, Janet Currier, Dyfrig A. Hughes, Eifiona Wood, Rachael Martin, Christopher Morris, Deborah Roberts, Alison Rouncefield-Swales, Heather Sutherland, Victoria Watson, Georgia Cook, Luci Wiggs, Paul Gringras, Deb Pal
Summary: This study reflects on the recruitment challenges faced in a trial examining the effectiveness of antiseizure medications and a sleep behavior intervention in children with Rolandic epilepsy. The study highlights the importance of considering parental preference, involving children in decision-making, and using alternative trial designs. Future studies should prioritize consultation and explore novel methods such as preference trials and discrete choice experiments.
Article
Audiology & Speech-Language Pathology
Kubra Seyhan-Biyik, Fatma Esen-Aydin, Sinem Asena Sel, Onal Incebay, Esra Ozcebe, Mintaze Kerem-Gunel, Fatma Banu Anlar, Lindsay Pennington
Summary: The study validated the effectiveness and reliability of VSS-T in children with CP, finding a strong correlation with other functional classifications and comorbidities; good to excellent interrater reliability and intra-rater reliability were observed between parents and therapists; the study suggested that VSS-T can be used to classify 4-18-year-old children with CP.
INTERNATIONAL JOURNAL OF LANGUAGE & COMMUNICATION DISORDERS
(2023)
Article
Developmental Biology
Chrysovalanto Mamasoula, Theophile Bigirumurame, Thomas Chadwick, Marie-Claude Addor, Clara Cavero-Carbonell, Carlos M. Dias, Luis-Javier Echevarria-Gonzalez-de-Garibay, Miriam Gatt, Babak Khoshnood, Kari Klungsoyr, Kay Randall, Sylvia Stoianova, Martin Haeusler, Vera Nelen, Amanda J. Neville, Isabelle Perthus, Anna Pierini, Benedicte Bertaut-Nativel, Anke Rissmann, Florence Rouget, Bruno Schaub, David Tucker, Diana Wellesley, Natalya Zymak-Zakutnia, Ingeborg Barisic, Hermien E. K. de Walle, Monica Lanzoni, Gerardine Sayers, Carmel Mullaney, Lindsay Pennington, Judith Rankin
Summary: Using population-based data from 24 registries in Europe, the study examined the association between maternal age and the prevalence of congenital heart defects (CHD) from 1995 to 2015. The results showed an increased total prevalence of CHD for younger (<= 24 years old) and older (35-44 years old) mothers. Additionally, a positive association between younger mothers and severe CHD phenotypes, as well as between older mothers and mild CHD phenotypes, was observed.
BIRTH DEFECTS RESEARCH
(2023)
Article
Rehabilitation
Pegah Firouzeh, Christopher Morris, Lyn K. Sonnenberg, Patricia Manns, Lesley Pritchard
Summary: This study explored the experiences of parents of young children with cerebral palsy who used Ankle-Foot Orthoses (AFOs). The findings revealed that adjusting to AFOs was a challenging and time-consuming process for parents and children, resulting in lower than anticipated use. Clinicians should be aware of the physical and psychosocial adjustment process and work with families to optimize and individualize AFO use.
DISABILITY AND REHABILITATION
(2023)
Article
Medicine, General & Internal
Nadia Al-Najjar, Lucy Bray, Bernie Carter, Advisory Panel Castle, Amber Collingwood, Georgia Cook, Holly Crudgington, Janet Currier, Kristina Charlotte Dietz, Will A. S. Hardy, Harriet Hiscock, Dyfrig Hughes, Christopher Morris, Deborah Roberts, Alison Rouncefield-Swales, Holly Saron, Catherine Spowart, Lucy Stibbs-Eaton, Catrin Tudur Smith, Victoria Watson, Liam Whittle, Luci Wiggs, Eifiona Wood, Paul Gringras, Deb K. Pal
Summary: This article introduces a clinical trial for sleep interventions in children with epilepsy. The trial compares the effectiveness and cost-effectiveness of standard care with a parent-led online sleep intervention that incorporates evidence-based behavioral components. The aim of the trial is to address the issue of costly and non-scalable face-to-face educational sessions.
Article
Rehabilitation
Eileen Mairi Morrow, Christopher Morris, Tim Theologis, Julia Frost
Summary: The purpose of this study is to improve outcome consistency in children's elective lower limb orthopaedic surgeries by developing a core outcome set (COS). Through online interviews with allied health professionals (AHPs), important outcomes for these surgeries were identified and the reasons behind their selection were explored. This information can inform the development of the COS.
DISABILITY AND REHABILITATION
(2023)
Article
Health Care Sciences & Services
Alice Garrood, Gretchen Bjornstad, Aleksandra Borek, Annette Gillett, Jenny Lloyd, Sarah Brand, Mark Tarrant, Susan Ball, Annie Hawton, Annabel McDonald, Mary Fredlund, Fleur Boyle, Vashti Berry, Stuart Logan, Christopher Morris
Summary: This study explores the sustainable implementation of the Healthy Parent Carers (HPC) program outside the research context in the United Kingdom. Two delivery partner organizations successfully recruited and trained facilitators to deliver the program to parent carers in different localities using Zoom.
HEALTH EXPECTATIONS
(2023)
Review
Psychology, Educational
Javiera Salazar Rivera, Nouf Alsaadi, Eliana Parra-Esquivel, Christopher Morris, Christopher Boyle
Summary: This review explores the interventions delivered by Occupational Therapists (OTs) in schools and their outcomes based on the tier of support. 50 studies since 1990 were identified, primarily focusing on school performance and conducted with students aged five to eight years old. The interventions were provided across all three tiers of support, mainly addressing academic tasks, particularly handwriting. Reflecting on the outcomes and support tiers of OT interventions is important for evolving school practices.
JOURNAL OF OCCUPATIONAL THERAPY SCHOOLS AND EARLY INTERVENTION
(2023)
Article
Pediatrics
Helen Taylor, Lindsay Pennington, Christopher Morris, Dawn Craig, Helen McConachie, Jill Cadwgan, Diane Sellers, Morag Andrew, Johanna Smith, Deborah Garland, Elaine McColl, Charlotte Buswell, Julian Thomas, Allan Colver, Jeremy Parr
Summary: This study aimed to explore interventions and outcomes needed to improve EDSD in children with neurodisability, with 19 interventions and 10 outcomes identified as essential by parents and health professionals. Both groups supported the use of a 'toolkit' for shared decision making and prioritizing interventions for children.
BMJ PAEDIATRICS OPEN
(2022)
