The Genetic Counseling Outcome Scale: a new patient-reported outcome measure for clinical genetics services

Health-related quality of life measures in genetic disorders: An outcome variable for consideration in clinical trials

(2009) David A. Stevenson et al.   AMERICAN JOURNAL OF MEDICAL GENETICS PART C-SEMINARS IN MEDICAL GENETICS

Quality in clinical genetics

(2009) Marc S. Williams   AMERICAN JOURNAL OF MEDICAL GENETICS PART C-SEMINARS IN MEDICAL GENETICS

What process attributes of clinical genetics services could maximise patient benefits?

(2008) Marion McAllister et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Angiotensin II Blockade and Aortic-Root Dilation in Marfan's Syndrome

(2008) Benjamin S. Brooke et al.   NEW ENGLAND JOURNAL OF MEDICINE

Patient reported outcome measures: a model-based classification system for research and clinical practice

(2008) Jose M. Valderas et al.   QUALITY OF LIFE RESEARCH

Outcome Measurement in Clinical Genetics Services: A Systematic Review of Validated Measures

(2007) Katherine Payne et al.   VALUE IN HEALTH