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A Study on Caregiver Burden: Stressors, Challenges, and Possible Solutions

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SAGE PUBLICATIONS INC
DOI: 10.1177/1049909111416494

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hospice; family caregiver; caregiver burden; end of life; palliative; care; terminal illness; home care

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Purpose: The purpose of this qualitative study was to explore factors impacting caregiver burden and to explore possible solutions for family caregivers of terminally ill patients. Results: The majority of caregivers reported experiencing role conflict and inadequate stress management. Caregivers who worked outside the home, those who cared for two parents concurrently, those with the least amount of outside assistance, and caregivers who spent a longer period of time caregiving reported the highest levels of health problems and overall burden. Caregivers stated a need for more support from Hospice agencies, more education on caregiver training, and more public education about Hospice services. Faith played a positive role in alleviating caregiver burden. Conclusion: Early identification, intervention, education and coordination of services may help to alleviate caregiver burden, which will improve quality of life for both patient and caregiver.

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