Article
Health Care Sciences & Services
Danielle M. Muscat, Heather L. Shepherd, Don Nutbeam, Lyndal Trevena, Kirsten J. McCaffery
Summary: This paper presents an integrated model that aims to enhance patient engagement in healthcare by drawing on the strengths of health literacy and shared decision-making concepts. The model includes addressing patients' skills and capacities, as well as modifying written and verbal information. It proposes an expanded model of shared decision-making that incorporates health literacy concepts and promotes two-tiered intervention methods to improve communication targeting and personalization and support the development of transferable health literacy skills among patients.
JOURNAL OF GENERAL INTERNAL MEDICINE
(2021)
Review
Nursing
Lotta Kuosmanen, Maija Hupli, Satu Ahtiluoto, Elina Haavisto
Summary: Research findings show that patients actively participate in shared decision-making in palliative care, desiring involvement in everyday nursing care, treatment decisions, and end-of-life decisions. Interdisciplinary teamwork, open communication, a good patient-professional relationship, a conducive environment, and mutual information are prerequisites for patient participation in shared decision-making.
JOURNAL OF CLINICAL NURSING
(2021)
Article
Education, Scientific Disciplines
Matthew Zegarek, Rebecca Brienza, Noel Quinn
Summary: Shared decision making (SDM) is a collaborative process that involves discussing preference-sensitive decisions with patients in an accessible format, allowing them to select an option that aligns with their values and preferences within the context of evidence-based medicine. Although SDM has shown to improve certain quality of care metrics and is included in competencies developed by accreditation bodies, incorporating SDM competencies into clinical teaching can be challenging.
Article
Public, Environmental & Occupational Health
Veerle Y. Siebinga, Ellen M. Driever, Anne M. Stiggelbout, Paul L. P. Brand
Summary: This study found that shared decision making and patient-centered communication are not synonymous and have a weak correlation. In consultations, combinations of high SDM and low PCC or vice versa were common. The combination of high SDM and high PCC was associated with higher patient satisfaction scores.
PATIENT EDUCATION AND COUNSELING
(2022)
Article
Education, Scientific Disciplines
David A. Cook, Ian G. Hargraves, Christopher R. Stephenson, Steven J. Durning
Summary: This study analyzed patient-clinician interactions in management reasoning by observing simulated encounters. It identified problems and successful communication and examined them through the lens of two shared decision-making models. The findings highlighted the importance of effective communication in management reasoning.
Review
Hematology
Cedric Hermans, Declan Noone, Gary Benson, Gerry Dolan, Hermann Eichler, Victor Jimenez-Yuste, Christoph Koenigs, Sebastien Lobet, Debra Pollard, Silva Zupancic-Salek, Maria Elisa Mancuso
Summary: The mainstay of hemophilia treatment is to prevent bleeding and control acute episodes. A practical algorithm has been developed to guide treatment decision-making based on variables such as bleeding phenotype, musculoskeletal status, treatment adherence, venous access, and lifestyle. A patient-focused preference tool has also been proposed to understand individual priorities and goals.
Article
Nursing
Ya-Fang Ho, Pei-Ti Hsu, Kai-Ling Yang
Summary: This study found that information acquisition and shared decision-making are crucial in patients undergoing PD treatment. Patients consider trust in physicians and maintaining pre-dialysis life when choosing PD treatment. There is a disparity between patients' expectations and reality before and after PD treatment.
Article
Medicine, General & Internal
Cheng-Hsu Chen, Chia-Tien Hsu, Ming-Ju Wu, Shang-Feng Tsai
Summary: This 5-year project on shared decision making for renal biopsy collected cases of biopsy and bleeding, and launched a quality improvement process for shared decision making, including the use of videos and an information platform. Results showed that shared decision making helped patients better understand renal biopsy, leading to increased satisfaction.
Review
Public, Environmental & Occupational Health
Kang An, Zengxiang Wu, Yu Qiu, Mengjia Pan, Lin Zhang, Zhenmei An, Shuangqing Li
Summary: The implementation of shared decision making (SDM) in sarcopenia management is still in its early stage, but accumulating evidence suggests its importance in elderly care. This study provides an overview of general SDM practices and explores potential advantages and challenges of incorporating them into sarcopenia management. Structured techniques, such as the seek-help-assess-reach-evaluate approach, can effectively integrate SDM into daily practice and improve patient adherence and satisfaction. Further research is needed to address barriers to SDM implementation and explore measurement and outcomes, coordination and cooperation, and digital technology. The study concludes that integrating SDM into clinical practice offers promising opportunities to improve patient care, with patient-centered and partnership approaches positively impacting treatment outcomes.
FRONTIERS IN PUBLIC HEALTH
(2023)
Article
Pediatrics
Esther S. Schouten, Maria F. Beyer, Andreas W. Flemmer, Mirjam A. de Vos, Katja Kuehlmeyer
Summary: This study aims to examine the implementation of shared decision-making (SDM) in the neonatal intensive care unit (NICU). Through qualitative content analysis, recorded conversations between neonatologists and parents were analyzed. The study found that SDM was only implemented to a small extent in neonatal end-of-life medical decision-making (EOL-MDM) conversations.
FRONTIERS IN PEDIATRICS
(2022)
Article
Health Care Sciences & Services
Tone Andersen-Hollekim, Line Melby, Kari Sand, Heidi Gilstad, Anita Das, Marit Solbjor
Summary: The implementation of Cancer Patient Pathways (CPPs) in Norway aimed to improve cancer diagnostics and treatment initiation by ensuring standardized waiting times and enhancing patient participation through shared decision-making. This study found that standardized CPPs provided patients with predictability and safety, enabling shared decision-making when cancer diagnoses supported preference-sensitive treatment options. Balancing standardizations with individualized care is key to facilitating patient participation in CPPs.
HEALTH EXPECTATIONS
(2021)
Article
Public, Environmental & Occupational Health
Sascha M. Keij, Nanny Van Duijn-Bakker, Anne M. Stiggelbout, Arwen H. Pieterse
Summary: This study identified five key elements of patient readiness for shared decision making and ten characteristics that may influence these elements. Readiness for SDM may vary between and within patients, and clinicians should be aware that some patients may need support to enhance their readiness.
PATIENT EDUCATION AND COUNSELING
(2021)
Article
Public, Environmental & Occupational Health
Sandra A. Hartasanchez, Stuart W. Grande, Victor M. Montori, Marleen Kunneman, Juan P. Brito, Sarah McCarthy, Ian G. Hargraves
Summary: This study aims to identify how current observer-based shared decision-making measures apply to each mode of purposeful shared decision-making. The results show that the existing measures can describe behaviors applicable to all modes, but lack items sensitive to behaviors particular to some specific modes.
PATIENT EDUCATION AND COUNSELING
(2022)
Article
Public, Environmental & Occupational Health
Anke J. M. Oerlemans, Marjan L. Knippenberg, Gert J. Olthuis
Summary: Learning shared decision-making (SDM) in clinical practice involves observing and imitating other professionals, as well as reflecting on personal experiences. Both patients and professionals agree that learning the nuances of SDM is a complex task that requires involvement of patients, informal learning processes, and role models.
PATIENT EDUCATION AND COUNSELING
(2021)
Article
Public, Environmental & Occupational Health
Ling Geng, Zhao Shi, Xiao-yun Chai, Hong-wei Nie, Hong-bin Cong, Shun Ping Li
Summary: This study explored the considerations and barriers to implementing shared decision-making in infertility treatment. The findings revealed that key barriers included communication difficulties, psychological pressure on female patients, patient preferences, multiple treatment stages, male spousal participation, clinician-patient trust, and subjective patient factors.
PATIENT EDUCATION AND COUNSELING
(2023)
Article
Health Care Sciences & Services
Annicka van der Plas, Jolien Glaudemans, Bregje Onwuteaka-Philipsen
Summary: Despite positive attitudes towards advance care planning (ACP) by older people and general practitioners, such conversations are not yet common in GP practices. The implementation of ACP in routine care led to more discussions about hospitalizations, intensive care, and treatment preferences, and more advance directives were drawn up. However, there is a risk that certain groups, such as patients with multiple chronic conditions or lower health literacy, may not be adequately served.
BMJ SUPPORTIVE & PALLIATIVE CARE
(2022)
Article
Otorhinolaryngology
O. M. Neve, J. C. Jansen, A. G. L. van der Mey, R. W. Koot, M. de Ridder, P. P. G. van Benthem, A. M. Stiggelbout, E. F. Hensen
Summary: Employment is an important factor in quality of life for vestibular schwannoma (VS) patients. This study assessed employment status, sick leave and productivity in the long-term follow-up, and found that the employment status and working hours of VS patients are comparable to the general population. Treatment strategies do not seem to differentially impact on long-term employment of VS patients.
EUROPEAN ARCHIVES OF OTO-RHINO-LARYNGOLOGY
(2022)
Article
Health Care Sciences & Services
Arwen H. Pieterse, Kim Brandes, Jessica de Graaf, Joyce E. de Boer, Nanon H. M. Labrie, Anouk Knops, Cornelia F. Allaart, Johanna E. A. Portielje, Willem Jan W. Bos, Anne M. Stiggelbout
Summary: This experimental study tested the effects of fostering choice awareness and physician preference on patient involvement in treatment decision making. The results showed that choice awareness communication had a positive effect on perceived room for involvement, while physician preference communication steered patients toward preferring that treatment option. The strategies had no significant effect on understanding, satisfaction, or trust.
MEDICAL DECISION MAKING
(2022)
Article
Medicine, General & Internal
Ellen M. Driever, Anne M. Stiggelbout, Paul L. P. Brand
Summary: This study assessed whether consultants adhere to their self-reported decision-making style when making decisions with patients. The results showed that there was limited patient involvement, regardless of the consultants' reported decision-making style. This suggests that consultants may be lacking in the skill of shared decision making.
Article
Health Care Sciences & Services
Lieneke van den Heuvel, Marjan Knippenberg, Bart Post, Marjan J. Meinders, Bastiaan R. Bloem, Anne M. Stiggelbout
Summary: This study examines the perspectives of individuals diagnosed with Parkinson's disease (PD) on the value of personalized prediction models (PPMs) for predicting disease progression. Most participants express a desire for more personalized prognostic information to better prepare for the future. They emphasize the need for individualized predictions, adequate supervision, and professional guidance. The availability of interventions that can positively impact the identified prognostic factors is particularly important to them.
HEALTH EXPECTATIONS
(2022)
Article
Oncology
Mathijs R. de Veer, Merel Hermus, Charlene J. Van der Zijden, Berend J. Van der Wilk, Bas P. L. Wijnhoven, Anne M. Stiggelbout, Jan Willem T. Dekker, Peter Paul L. O. Coene, Jan J. Busschbach, Jan J. B. Van Lanschot, Sjoerd M. Lagarde, Leonieke W. Kranenburg
Summary: This study examines how surgeons use steering behavior to influence patients' choice of treatment and participation in a randomized trial. The results suggest that surgeons employ various techniques, such as framing and suggestive language, to steer patients towards a particular treatment option.
Article
Health Care Sciences & Services
Tessa D. Bergman, Annicka G. M. van der Plas, Roeline W. Pasman, Bregje D. Onwuteaka-Philipsen
Summary: This study examined the awareness and actual knowledge of palliative care among older people in the Netherlands and explored factors that contribute to their knowledge of palliative care. The majority of respondents had heard of palliative care, but their actual understanding was limited. The study also found that personal experience, higher education, being female, and higher income were associated with better knowledge of palliative care.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2023)
Article
Medicine, General & Internal
Anne Stiggelbout, Ingeborg Griffioen, Jasper Brands, Marijke Melles, Judith Rietjens, Marleen Kunneman, Marion van der Kolk, Casper van Eijck, Dirk Snelders
BMJ EVIDENCE-BASED MEDICINE
(2023)
Article
Oncology
Nicole E. Billingy, Vashti N. M. F. Tromp, Neil K. Aaronson, Rianne J. A. Hoek, Harm Jan Bogaard, Bregje D. Onwuteaka-Philipsen, Lonneke van de Poll-franse, Jacqueline G. Hugtenburg, Jose Belderbos, Annemarie Becker-Commissaris, Corina J. G. van den Hurk, Iris Walraven, N. C. van Walree, K. de Jaeger, S. Samii, W. Y. Lam-Wong, F. Koppe, J. A. Stigt, G. J. M. Herder, A. Welling, O. C. J. Schuurbiers-Siebers, J. M. Smit, A. J. van den Brekel, W. K. de Jong
Summary: This study compared the effect of reactive and active approaches in monitoring patient-reported outcome measures (PROMs) for lung cancer patients. The results showed that weekly PRO symptom monitoring significantly improved health-related quality of life (HRQOL) in these patients, with the reactive approach being more suitable for implementation.
JNCI-JOURNAL OF THE NATIONAL CANCER INSTITUTE
(2023)
Review
Medicine, General & Internal
Martha Kidanemariam, Arwen H. Pieterse, Dorine J. van Staalduinen, Willem Jan W. Bos, Anne M. Stiggelbout
Summary: This scoping review examined the measures used to assess the effect of VBHC implementation and found that the commonly used measures are not patient-centred. The evidence supporting patient-centred care in VBHC is limited, highlighting a knowledge gap in VBHC research.
Article
Health Care Sciences & Services
Dorine J. Van Staalduinen, Petra E. A. Van Den Bekerom, Sandra M. Groeneveld, Arie Franx, Anne M. Stiggelbout, M. Elske Van Den Akker-Van Marle
Summary: This study investigated the perception of healthcare professionals from different backgrounds regarding the composition and quality of interprofessional collaboration within Integrated Practice Units (IPUs). The results showed that medical specialists and nurses were most frequently considered as part of an IPU and reported high-quality interactions. Allied health professionals were less often recognized as part of the team and reported low-quality interactions. Differences in the quality of interprofessional collaboration were influenced by organizational structures, knowledge of each other's expertise, and communication methods.
INTERNATIONAL JOURNAL OF INTEGRATED CARE
(2023)
Article
Public, Environmental & Occupational Health
Sophie C. C. Renckens, H. Roeline Pasman, Martijn Huisman, Emiel O. O. Hoogendijk, Bregje D. D. Onwuteaka-Philipsen
Summary: This study aimed to investigate self-reported changes in personal development and meaning in life among older adults in the Netherlands during the COVID-19 pandemic, as well as the characteristics of the groups reporting these changes. The results showed that a substantial number of older adults paid more attention to things they enjoy doing in their spare time, reflected more on important things in life, and made fewer future plans during the pandemic. The reported changes varied among different subgroups, and were associated with personal adverse experiences and health issues.
HEALTH & SOCIAL CARE IN THE COMMUNITY
(2023)
Article
Hematology
Joell E. Bense, Lotte Haverman, Erik G. J. von Asmuth, Marloes Louwerens, Michiel A. J. Luijten, Anne M. Stiggelbout, Arjan C. Lankester, Anne P. J. de Pagter
Summary: Survival rates in pediatric hematopoietic stem cell transplantation for nonmalignant diseases have improved, but long-term patient-reported outcomes are lacking. This study aimed to determine these outcomes and compare them with Dutch reference data.
TRANSPLANTATION AND CELLULAR THERAPY
(2023)
Article
Public, Environmental & Occupational Health
Samare P. Huls, Sylvie M. C. van Osch, Werner B. F. Brouwer, Job van Exel, Anne M. Stiggelbout
Summary: This study assessed the reliability, dimensionality and validity of the Health-Risk Attitude Scale (HRAS-13) in a sample of the general population and a patient population. The results suggest that the HRAS-13 is a promising multidimensional tool for measuring health-risk attitude.
PSYCHOLOGY & HEALTH
(2022)
Article
Psychology, Multidisciplinary
Martijn Hagens, H. Roeline W. Pasman, Bregje D. Onwuteaka-Philipsen
Summary: This study analyzes the characteristics and counseling situation of those who chose self-ingestion of lethal medication after receiving non-medical assistance in suicide. The majority of these counselees had serious diseases and physical or psychiatric suffering, with half of them having requested physician assistance in dying. This suggests that patients can persist in their wish to end life even after being denied such assistance. Additionally, not all individuals with underlying medical conditions choose physician assistance in dying, indicating a potential role for physicians and psychiatrists in assessing competency, diagnosing diseases, and offering or referring for treatment in these cases.
OMEGA-JOURNAL OF DEATH AND DYING
(2022)
Article
Health Care Sciences & Services
Louise Annemoon Jonker, Madelon T. Heijltjes, Judith A. C. Rietjens, Agnes van der Heide, Geeske Hendriksen, Johannes J. M. van Delden, Ghislaine J. M. W. van Thiel
Summary: This study explores the perceptions and experiences of patients and relatives regarding Continuous Deep Sedation (CDS). The findings suggest that patients and relatives consider CDS as a regular palliative care option and prioritize avoiding suffering at the end of life. They also claim a substantial say in the decision-making process.
HEALTH EXPECTATIONS
(2024)