Adolescent and Parental Attitudes About Return of Genomic Research Results: Focus Group Findings Regarding Decisional Preferences
出版年份 2018 全文链接
标题
Adolescent and Parental Attitudes About Return of Genomic Research Results: Focus Group Findings Regarding Decisional Preferences
作者
关键词
-
出版物
Journal of Empirical Research on Human Research Ethics
Volume -, Issue -, Pages 155626461877661
出版商
SAGE Publications
发表日期
2018-05-28
DOI
10.1177/1556264618776613
参考文献
相关参考文献
注意：仅列出部分参考文献，下载原文获取全部文献信息。- Children’s Decision-Making Involvement About Research Participation: Associations With Perceived Fairness and Self-Efficacy
- (2017) Victoria A. Miller et al. Journal of Empirical Research on Human Research Ethics
- Preferences for the Return of Individual Results From Research on Pediatric Biobank Samples
- (2017) Kurt D. Christensen et al. Journal of Empirical Research on Human Research Ethics
- The MedSeq and BabySeq studies: integrating genomics into the practice of medicine
- (2017) Heidi L. Rehm PATHOLOGY
- How do providers discuss the results of pediatric exome sequencing with families?
- (2017) Sarah A Walser et al. Personalized Medicine
- Adolescents’ preferences regarding disclosure of incidental findings in genomic sequencing that are not medically actionable in childhood
- (2016) Sophia B. Hufnagel et al. AMERICAN JOURNAL OF MEDICAL GENETICS PART A
- Recommendations for reporting of secondary findings in clinical exome and genome sequencing, 2016 update (ACMG SF v2.0): a policy statement of the American College of Medical Genetics and Genomics
- (2016) Sarah S. Kalia et al. GENETICS IN MEDICINE
- The psychological impact of genetic information on children: a systematic review
- (2016) Claire E. Wakefield et al. GENETICS IN MEDICINE
- From “Personalized” to “Precision” Medicine: The Ethical and Social Implications of Rhetorical Reform in Genomic Medicine
- (2016) Eric Juengst et al. HASTINGS CENTER REPORT
- Psychosocial Adjustment and Perceived Risk Among Adolescent Girls From Families With BRCA1/2 or Breast Cancer History
- (2016) Angela R. Bradbury et al. JOURNAL OF CLINICAL ONCOLOGY
- Research Participants’ Preferences for Hypothetical Secondary Results from Genomic Research
- (2016) Julia Wynn et al. Journal of Genetic Counseling
- Informed Consent in Decision-Making in Pediatric Practice
- (2016) Aviva L. Katz et al. PEDIATRICS
- Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents
- (2015) Jeffrey R. Botkin et al. AMERICAN JOURNAL OF HUMAN GENETICS
- The Development of a Preference-Setting Model for the Return of Individual Genomic Research Results
- (2015) Phoebe L. Bacon et al. Journal of Empirical Research on Human Research Ethics
- Informed consent for exome sequencing research in families with genetic disease: The emerging issue of incidental findings
- (2014) Amanda L. Bergner et al. AMERICAN JOURNAL OF MEDICAL GENETICS PART A
- Public preferences for the return of research results in genetic research: a conjoint analysis
- (2014) Juli Murphy Bollinger et al. GENETICS IN MEDICINE
- Attitudes of parents toward the return of targeted and incidental genomic research findings in children
- (2014) Conrad V. Fernandez et al. GENETICS IN MEDICINE
- Defining and managing incidental findings in genetic and genomic practice
- (2014) Shiri Shkedi-Rafid et al. JOURNAL OF MEDICAL GENETICS
- An Emerging Field of Research
- (2014) Ellen A. Lipstein et al. MEDICAL DECISION MAKING
- Parents' Preferences for Return of Results in Pediatric Genomic Research
- (2014) S.I. Ziniel et al. Public Health Genomics
- Actionable, Pathogenic Incidental Findings in 1,000 Participants’ Exomes
- (2013) Michael O. Dorschner et al. AMERICAN JOURNAL OF HUMAN GENETICS
- Attitudes of African Americans Toward Return of Results From Exome and Whole Genome Sequencing
- (2013) Joon-Ho Yu et al. AMERICAN JOURNAL OF MEDICAL GENETICS PART A
- Using the framework method for the analysis of qualitative data in multi-disciplinary health research
- (2013) Nicola K Gale et al. BMC Medical Research Methodology
- ‘Information is information’: a public perspective on incidental findings in clinical and research genome-based testing
- (2013) S Daack-Hirsch et al. CLINICAL GENETICS
- Parental attitudes, values, and beliefs toward the return of results from exome sequencing in children
- (2013) J.C. Sapp et al. CLINICAL GENETICS
- ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing
- (2013) Robert C. Green et al. GENETICS IN MEDICINE
- Mandatory Extended Searches in All Genome Sequencing
- (2013) Lainie Friedman Ross et al. JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION
- Stakeholders’ Opinions on the Implementation of Pediatric Whole Exome Sequencing: Implications for Informed Consent
- (2013) Brooke L. Levenseller et al. Journal of Genetic Counseling
- Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases
- (2013) Erika Kleiderman et al. JOURNAL OF MEDICAL ETHICS
- Ethical and Policy Issues in Genetic Testing and Screening of Children
- (2013) et al. PEDIATRICS
- Genetics patients’ perspectives on clinical genomic testing
- (2013) Michelle L McGowan et al. Personalized Medicine
- Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study
- (2012) Flavia M Facio et al. EUROPEAN JOURNAL OF HUMAN GENETICS
- The beliefs, motivations and expectations of parents who have enrolled their children in a genetic biorepository
- (2012) Erin D. Harris et al. GENETICS IN MEDICINE
- Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study
- (2012) Juli Murphy Bollinger et al. GENETICS IN MEDICINE
- IRB perspectives on the return of individual results from genomic research
- (2012) Lynn G. Dressler et al. GENETICS IN MEDICINE
- Predictive genetic testing in minors for late-onset conditions: a chronological and analytical review of the ethical arguments: Figure 1
- (2012) Cara Mand et al. JOURNAL OF MEDICAL ETHICS
- Public attitudes toward ancillary information revealed by pharmacogenetic testing under limited information conditions
- (2011) Susanne B. Haga et al. GENETICS IN MEDICINE
- What Is Known about Parents’ Treatment Decisions? A Narrative Review of Pediatric Decision Making
- (2011) Ellen A. Lipstein et al. MEDICAL DECISION MAKING
- Public Perspectives on Returning Genetics and Genomics Research Results
- (2011) J. O’Daniel et al. Public Health Genomics
- Effects of genetic risk information on children's psychosocial wellbeing: A systematic review of the literature
- (2010) Christopher H Wade et al. GENETICS IN MEDICINE
- Generalization in quantitative and qualitative research: Myths and strategies
- (2010) Denise F. Polit et al. INTERNATIONAL JOURNAL OF NURSING STUDIES
- Personal genomics and individual identities: motivations and moral imperatives of early users
- (2010) Michelle L. McGowan et al. NEW GENETICS AND SOCIETY
- Public Expectations for Return of Results from Large-Cohort Genetic Research
- (2008) Juli Murphy et al. AMERICAN JOURNAL OF BIOETHICS
- Attitudes regarding predictive genetic testing in minors: A survey of European clinical geneticists
- (2008) Pascal Borry et al. AMERICAN JOURNAL OF MEDICAL GENETICS PART C-SEMINARS IN MEDICAL GENETICS
- Subjects matter: a survey of public opinions about a large genetic cohort study
- (2008) David Kaufman et al. GENETICS IN MEDICINE
Find Funding. Review Successful Grants.
Explore over 25,000 new funding opportunities and over 6,000,000 successful grants.
ExplorePublish scientific posters with Peeref
Peeref publishes scientific posters from all research disciplines. Our Diamond Open Access policy means free access to content and no publication fees for authors.
Learn More